As the coronavirus pandemic continues, we know that pregnant women and new mothers have questions about what will happen to their care and how they should access services.
Action on Postpartum Psychosis (APP) has compiled information for: pregnant women with a history of postpartum psychosis / bipolar; women and families in crisis or who are developing psychosis; and for those recovering from PP at this time.
This is a fast-moving situation. Health trusts/boards across England, Wales, Scotland, and Northern Ireland are continuing to make changes to their services. We will update this guide as information becomes available.
Click the below images for specific information:
Action on Postpartum Psychosis
Help with a research survey
We are working with colleagues at the National Centre for Mental Health to understand better the impact COVID-19 is having on people with mental health conditions. To find out more about how to participate in the NCMH COVID-19 survey click here
Keep up to date with our plans for Maternal Mental Health Awareness Week!
Join us each day between Monday 4 May - Sunday 10 May. Here's what we have planned:
Catch up on Monday's topic - "What is Postpartum Psychosis?" here, where you can watch Sally and her husband Jamie discuss their experience of the early signs and symptoms of postpartum psychosis with Ian Jones, Professor of Psychiatry and Trustee of Action on Postpartum Psychosis.
From World Mental Health Day, you can also watch APP in conversation with Catherine Cho, author of 'Inferno: A Memoir' here. Hear Catherine discuss her PP experience with Jessie from Action on Postpartum Psychosis.
Thursday's topic - "What support is there for partners, families & friends of women affected by PP?" is available here, where Kat and her husband Tom discuss their experience of postpartum psychosis with Giles Berrisford, Perinatal Psychiatrist and Chair of APP and with Ellie, Peer Support Coordinator for APP.
You can also watch Saturday's Facebook Live "#Honest Conversations" with Laura Dockrill, Dr Jo Black and Jessie here.
If you have been affected by anything in these films, need any support, or want to meet others, visit: https://www.app-network.org or contact us on firstname.lastname@example.org for more information.Read full news item
Today we join with charities to call on Government to urgently support the wellbeing of babies, toddlers & their families during the Covid-19 crisis. Pregnant and perinatal women need support now more than ever.
Read the statement here: https://parentinfantfoundation.org.uk/our-call-on-government-to-keep-babies-safe/Read full news item
This information has been updated, click here to read our latest information on Postpartum Psychosis and Covid-19
We know that pregnant women and new mothers have many questions about what will happen to their care and how they should access services during coronavirus outbreak. Action on Postpartum Psychosis (APP) is trying to compile up-to-date information for pregnant women at high risk of PP; women and families in crisis or who think they are developing symptoms of psychosis; and for those recovering from PP.
This is a fast-moving situation and health trusts across England, Wales and Scotland are continuing to make changes to their services. APP will update this guide as information becomes available.
(i.e. those who have had a previous PP or who have a bipolar disorder diagnosis):
1. What will happen to my antenatal psychiatric appointments or preconception advice appointments?
- In England, Scotland & Wales, there are plans in place for routine home visits and out-patient appointments to continue, but they will be done by telephone or video conferencing. We will add information from Northern Ireland when we have it.
- Perinatal Psychiatrists say that birth planning for women at high risk of PP will in most cases be offered remotely but will still be thorough and comprehensive.
2. How do I get medication during this crisis?
- In England, Scotland and Wales, medication plans for women known to be at high risk can be made with perinatal psychiatrists in advance to ensure there is plenty of time to get prescriptions filled.
- Women who are remaining on Lithium throughout pregnancy will continue to need the same degree of medical vigilance. Antenatal care is still “open for business” and obstetrics/ maternity and perinatal mental health will work collaboratively to ensure the safest possible antenatal care remains uninterrupted.
- In Scotland, medication prescribing remains with GPs on recommendation of mental health services.
- You can phone your GP prescriptions line / psychiatric services and they can send prescriptions directly to your local pharmacy for collection. We will add more information here as we know more.
3. What impact does Covid-19 have on pregnancy, foetal development or risk of postnatal illness?
- Our best knowledge to date is that Covid-19 doesn’t seem to cause problems with pregnancy or transmit to the foetus, so it is believed that having CV-19 is unlikely to impact on your baby’s development. Most pregnant women who develop the illness will experience mild or moderate cold or flu-like symptoms. Pregnant women with other health conditions should be extra cautious as they may be more unwell than other women. Pregnant women have been placed in the ‘vulnerable group’ as a precautionary measure as not enough is yet known about the virus. The Royal College of Midwives and The Royal College of Obstetricians and Gynaecologists have produced some excellent guidance for health professionals and women, which is being regularly updated here and here.
- We do not yet know whether anxiety or stress due to the crisis will impact on rates of maternal mental illness. We know that managing stress in pregnancy and the postnatal period is important. You can find excellent advice from Mind about managing anxiety and isolation here and from the Mental Health Foundation here.
- APP are here for you. If you are a pregnant women with previous experience of PP, you can talk to an APP peer supporter by visiting our forum or registering for email or video support here. We are looking at other services we can provide for women and families with our network of peer supporters and clinical experts during this anxious time.
Women and families in crisis or developing symptoms
You can find APP’s general resources about symptoms of postpartum psychosis here and getting help here. You can find more information on common early symptoms here. You can find APP information guides about PP for women and partners here.
1. If I develop symptoms of PP, how will assessment happen?
- If you believe you are developing symptoms of postpartum psychosis (or your partner, family members is) you need to act urgently via the normal routes: telephone your GP, maternity services, or 111. If you believe you or someone in your household is in imminent danger, call 999. In most areas, urgent home visits are still being completed, but initial contact may be via video call (particularly if the person also has a cough or high temperature).
- In Scotland, A&E mental health presentations are being diverted directly to mental health sites. Crisis/Out of Hours staff will work in assessment centres with extra resources, seeing people from A&E and other urgent referrals. Glasgow is currently looking to complete urgent referrals, where the specific team has capacity, at the assessment centres which are more likely to be set up for assessment of patients who may already be infected. Other areas of Scotland are likely to be making similar arrangements.
2. Are Mother & Baby Units staying open?
- In England and Scotland MBUs will remain open and are doing an enormous amount of work to minimise any risk of infection on inpatient units (There are no units in Wales; Welsh admissions are normally transferred to MBUs in England.)
3. How are MBU’s managing coronavirus?
- MBUs are following general NHS inpatient guidance on barrier nursing and staff will be using personal protection equipment (PPE) for patients with coronavirus symptoms. MBUs have set up isolation areas to care for women separately.
- As we write, MBU visiting is still in place. Traditional visiting hours are not being restricted in order to avoid peak numbers. However, visitor numbers are being limited for any individual, restricting visitors to close family and no children. Units will have different advice for this – some units will restrict visits to one named family member per patient. We believe this advice may change today, and visiting in-person may be restricted.
- Patients will be supported to use facetime and telephone video calling more. Peer Support, including that delivered by APP, will be available via video call.
- NHS guidance on visiting during the coronavirus crisis can be found here.
You can find APP’s general resources on recovery here.
1. How will I get medication? How will I be monitored and supported during recovery?
Urgent home visits will continue. Most route appointments will happen via video call. There is a possibility that other professionals will reduce their routine home visits but this is not entirely clear at the moment and this is an evolving situation.
2. How can I manage my anxiety, depression, isolation during recovery if home visits do not happen, and we are meant to be socially distancing?
UK wide, online resources and peer support will be incredibly important for recovering women. There is already a wide range of online resources and more are being produced each day. The links below contains further resources, recommended reading and support and will be added to.
3. Social distancing and isolation mean my usual family support, and especially grandparents, are not available. Where can we find help?
APP will continue our national peer support services throughout the outbreak. Our Forum is available for you to talk to other women and partners: www.app-network.org/peer-support/
We also offer one to one peer support for anyone in the UK, where you are paired with an APP coordinator with lived experience, or a volunteer peer supporter. We can give this one to one peer support via private messaging on the forum, or via video call. If you would like to access this support, email email@example.com.
Action on Postpartum Psychosis
Links and more information/support:
APP offer support for those affected by postpartum psychosis or at risk of PP, due to bipolar disorder. For telephone, email or Facebook support for postnatal depression and anxiety, see: https://www.pandasfoundation.org.uk/
For general advice about managing mental health, isolation and anxiety:
- Government Advice: Looking after mental health: https://www.gov.uk/government/publications/covid-19-guidance-for-the-public-on-mental-health-and-wellbeing/guidance-for-the-public-on-the-mental-health-and-wellbeing-aspects-of-coronavirus-covid-19
- NHS: Dealing with a mental health crisis: https://www.nhs.uk/using-the-nhs/nhs-services/mental-health-services/dealing-with-a-mental-health-crisis-or-emergency/
- Recovery College Online: https://www.recoverycollegeonline.co.uk/your-mental-health/coronavirus/
- MIND: www.mind.org.uk/information-support/coronavirus-and-your-wellbeing/
- The Mental Health Foundation: www.mentalhealth.org.uk/publications/looking-after-your-mental-health-during-coronavirus-outbreak
For advice specific to perinatal mental health during Coronavirus:
- RCPsych: Covid-10: Mental health before, during and after pregnancy: https://www.rcpsych.ac.uk/mental-health/treatments-and-wellbeing/perinatal-care-and-covid-19
For more advice about Coronovirus:
- Coronavirus (COVID-19): latest information and advice on GOV.uk
- Information about the virus and how to protect yourself on NHS.uk
- Royal College of Psychiatrists advice for Perinatal Services
- Maternal Mental Health Alliance update
- Bipolar UK coronavirus update for pregnant women with bipolar disorder
Read full news item
Lauren Walsh, Trainee Clinical Psychologist, Staffordshire University, is working with APP to conduct a a research study that is researching the experiences of women from Black Asian and Minority Ethnic backgrounds who have experienced Postpartum Psychosis. Lauren aims to recruit 8-10 women by December 2019.
The study would involve meeting with a researcher for a semi-structured interview for approximately 1 hour. You will be asked about your experience of Postpartum Psychosis, and particularly your experience of accessing care. You would need to be living in the UK to take part. You can also find out more via the poster here.
If you are from a non-White or mixed ethnic background, have experienced Postpartum Psychosis, and would like to take part or find out more about this study, please get in touch: firstname.lastname@example.orgRead full news item
Rachel Jack, Trainee Clinical Psychologist at Teeside University, is looking at how Postpartum Psychosis affects partners’ relationships with mother and baby.
Rachel says: "There is a growing body of evidence showing the effect of postnatal psychosis on mothers, however there is only limited research regarding the impact on partners and particularly the impact on their relationships.
In order to consider relationships following maternal mental health, the current research believes they should be viewed as more than a mother-child relationship, and instead include the partner as part of a mother-partner-child relationship. It is suggested that partner’s report a shift in their role and a change in parenting styles following postnatal psychosis. Additionally, it is thought that perhaps children may also be impacted in some way, posing an important role for partners at this time. There is, however, a lack of understanding on how partners’ relationships with mother and baby may be affected or impacted.
This study therefore aims to explore how postnatal psychosis affects partners’ relationships with mother and baby. I am looking to recruit partners of mothers who have experienced postnatal psychosis within the last 10 years. The study involves a telephone discussion, at a time convenient to you, lasting approximately an hour. If you are interested in taking part, please email me on T7127956@live.tees.ac.uk and I can send you out some more information."
You can also view the poster for more information here.Read full news item
Dr Jess Heron interviews Mark Casebow, Director of Louis Theroux’s new documentary, Mothers on the Edge.
It was lovely to meet you during the process of filming for the new documentary. We are delighted that Louis is helping to bring this issue into the mainstream. It’s only the second documentary that has managed to navigate the many ethical & practical issues involved in making a documentary like this, so it’s a huge credit to you and Flo to have successfully navigated this.
Did you know about Postpartum Psychosis before you started filming?
No, I don’t think I had ever heard of PP before starting this project. I had some basic knowledge about postnatal depression, but I was pretty ignorant about perinatal mental health to be honest.
What was important to you in the making of the programme?
Mother and Baby Units are such an unfamiliar world to most people. The idea was for Louis to experience what it’s like for patients in crisis, and also their families and the staff who try to help them recover.
Despite people being much more open about their struggles with mental health issues in recent years, it still feels like there is a particular taboo or stigma around discussing mental health issues brought on by having babies.
It was really important for us that everyone taking part was happy with the way we have handled their stories, and I hope that they feel that participating in a documentary has been a positive thing to have done during such a difficult time in their lives.
Was there anything that surprised you?
Many things were surprising - like most people I had never set foot inside a psychiatric ward. You carry lots of preconceived and often inaccurate ideas about what they are like. But mostly I was surprised by the honestly and bravery of the women and their families who allowed us to film them at an extremely vulnerable time in their lives.
You met up with the APP team during the filming process - how was this helpful?
It was really helpful to understand more about the condition from recovered women and also from an academic perspective, and to hear more about care and campaigning nationally. It was useful to hear about the messages that women and families who have experienced this illness would like to share with the public.
Hearing about your work helped us to appreciate how much women can benefit from talking about their experience with people who have been through something similar during their recovery, and we saw that on the MBU's themselves with patients often forming really strong friendships there.
We hoped we could show peer support in action at an APP café group, but unfortunately it was not possible in the time frame.
What do you hope the impact of the programme will be?
I hope that the documentary will do something to help to reduce the stigma around PP and other mental health crises that can happen after having a baby. I also hope it will raise awareness of these issues more generally and show people the extraordinary work done by mother and baby units.
Are there any ambitions you had for the programme that were practically or ethically unfeasible?
We knew that filming patients as they were experiencing acute PP was difficult for a number of reasons and we would only be able to proceed cautiously and with the consent of the family and clinicians. We also knew would have to seek consent again from patients when they had recovered and had capacity to participate in the filming.
As expected it did prove very difficult to start filming with patients whilst they were most unwell, but we also made a positive decision to not just focus on the acute phase of the illness and to follow patients during recovery and the difficult transition to living back at home.
What would you most like to change in the future for women and families affected by PP?
The Mother and Baby Units we filmed in were all filled with dedicated staff, I feel like they are a real NHS success story and I hope that this comes across in the documentary.
Like all public services these units are juggling scarce resources with high demand. I hope soon what is still a patchy national service will become available to all women who experience PP no matter where they live.
It was also clear that community mental health services are really overstretched in some areas and this can make the transition home more difficult for many women and their families.
Hopefully more funding will also be directed towards recovery, and to support services like those APP provide for women and their families once they get back home.
Louis Theroux’s documentary Mothers on the Edge will be broadcast on Sunday 12th May 2019 at 21:00.
Visit the BBC Louis Theroux Programme page for more information.Read full news item
APP began life as a research network: helping to facilitate studies of PP; translating research findings into information for women, families and health professionals; and enabling women and families to contribute to the research process.
We are passionate about encouraging research into all aspects of PP. The unknowns surrounding this illness are distressing for women, families and their health professionals. We try to keep our members up-to-date with new research into PP from all over the world.
APP works closely with researchers at Cardiff, Birmingham and Worcester Universities. We also support recruitment & lived experience engagement for other academic research and student projects, where our resources allow. If you would like APP to support your research, please get in touch at an early stage in planning.
Here is a round up of the studies we have helped with in 2018/19.
Please get in touch if you would like to hear more about taking part in any of the studies
Pregnancy and Birth Plans for those at risk of PP
Elen Thomas - PhD Student, National Centre for Mental Health (NCMH), Cardiff University. Elen is working with APP to develop and test a new guide to support decision making for women with Bipolar Disorder or previous Postpartum Psychosis during pregnancy and the postpartum period. The guide will review the issues for women and their health professionals through the process of planning conception, pregnancy, and the postpartum period, outlining the facts at each point and decisions to be made. The guide will allow women to lead the discussion with their clinicians, and help women and professionals work together to implement gold standard care during this time.
Status: currently recruiting - If you have experience of planning a further pregnancy after an episode of PP or a Bipolar Disorder diagnosis, or have had an episode of PP or Bipolar Disorder and are considering having a baby, please get in touch, email: ThomasE45@cardiff.ac.uk
Experiences of PP in women from Black and Minority Ethnic groups
Lauren Walsh - Trainee Clinical Psychologist, Staffordshire University
Lauren is working with APP to conduct a qualitative study of the experience of Postpartum Psychosis and information & support needs in women from BAME communities. Lauren aims to recruit 8-10 women.
Status: currently recruiting - If you are from a non-White or mixed ethnic background, have experienced PP, and would like to know more about this study, please get in touch: email@example.com
Accessibility & Acceptability of Specialist Perinatal Mental Health Services to women and families from Black and Minority Ethnic groups
Dr Jelena Jankovic & Prof Stephan Priebe - Birmingham & Solihull Mental Health Foundation Trust & Unit for Social & Community Psychiatry, Queen Mary University of London.
This NIHR funded study will investigate perinatal mental health service use differences in UK women from different ethnic groups. It will examine pathways to care in women from BAME backgrounds compared to White British backgrounds at 2 sites in London and Birmingham. It will explore attitudes to services of women, their family members and health professionals. APP is a study partner and will support study recruitment, the dissemination of findings, and will employ, train and support a lived experience researcher to conduct some of the qualitative interviews for the study.
Status: planning stage. If you have experienced PP, are from a BAME background, and would like to support with planning this study, or express an interest in being a lived experience researcher, please get in touch: firstname.lastname@example.org
Clinical & Molecular Genetic Studies of PP
Prof Ian Jones - National Institute of Mental Health, Cardiff University
This research aims to identify genes and other factors (such as sleep disturbance and stressful life events) that make some people more likely than others to experience Postpartum Psychosis. Finding genes is not an end in itself, but we hope it will help us understand the causes and biology of Postpartum Psychosis, in order to identify medications and strategies to prevent these severe episodes of illness. In order to have a chance of finding genes, we need a lot of women to take part.
Status: currently recruiting. If you have experienced PP, or a relapse of Bipolar Disorder after childbirth, and would like more information about taking part in this study, email: email@example.com
The impact of Postpartum Psychosis on Partners
Nia Holford - NIHR, Cardiff University
Status: closed. This qualitative study investigated the experience of PP for partners. You can read about the study here: https://rdcu.be/9WTr
The impact of postpartum psychosis on partners’ relationships with mother and baby.
Rachel Jack - Trainee Clinical Psychologist
This qualitative study aims to explore how postpartum psychosis affects partners’ relationships with mother and baby.
Status: recruiting from May 2019. If you are over the age of 18 and have been a partner of a mother with PP. To take part, email: T7127956@tees.ac.uk
The role and experience of Occupational Therapy in Perinatal Mental Health Services
Mandy Graham - Occupational Therapist, PhD student & Senior Lecturer, Leeds Beckett University
This qualitative study involves interviewing Occupational Therapists working in Perinatal Mental Health Services and women with experience of receiving Occupational Therapy as part of their treatment for a Perinatal Mental Illness.
Status: awaiting ethical approval
Partner's Experience of Postpartum Psychosis
Cari Davies - Psychology Master’s student, University of Liverpool
This qualitative study will investigate the support needed by partners in order to act as a source of support.
Status: currently recruiting. If your partner has experienced PP in the last 5 years, but more than 6 months ago, and are over 18 years of age, please email firstname.lastname@example.org to complete this online questionnaire.
Mothers' experiences of first onset postpartum psychosis and impact on the mother-infant relationship
Siobhan Kelly - Trainee Clinical Psychologist, Royal Holloway University of London
This qualitative study aimed to investigate mothers’ feelings towards her infant and her role as a mother during pregnancy, birth, the postpartum period, to onset of postpartum psychosis and through to recovery and present time.
Status: closed. The study found that women with first onset PP did not feel the experience has long term impacts on the mother-infant relationship. You can read more about the study findings here. For more info: email@example.com
Individualising the risk of recurrence for women with bipolar disorder in the perinatal period
Marisa Casanova Dias - Clinical Research Training Fellowship, NIMH, Cardiff University
The aim of this project is to understand better the factors that influence an individual woman's perinatal risk of a bipolar recurrence, which will enable women and their clinicians to make better informed decisions about their care. Marissa is looking for women with bipolar disorder who are pregnant; have already had children, or are planning to have children & Partners of women with bipolar disorder who are pregnant; have already had children, or are planning to have children to form a lived experience advisory group. If you have a diagnosis of Bipolar Disorder and are currently pregnant, Marissa would be delighted to hear from you: CasanovaDiasM@cardiff.ac.uk
The impact of Postpartum Psychosis on the woman's relationship with her partner: couples’ and professionals’ perspectives.
Nicola Wass - Trainee Clinical Psychologist, Teeside University
Nicola is looking for women who have recovered from Postpartum Psychosis and their partners who are willing to talk about the impact this experience had on their relationship. Taking part in the study will involve attending a meeting with Nicola to discuss your experiences. You will have the opportunity to take part in individual and joint interviews. Participation will take between 30 minutes to an hour per interview, and can take place wherever is most convenient for you.
Research Study for Fathers of Women who have been admitted to an MBU
Claire Hargrave MSc Nursing - Kings College London & Bethlem MBU
A online questionnaire looking at partners experience when mothers are admitted to a Mother and Baby unit with their infant in England.
Status: closed. For information, email: firstname.lastname@example.org
A study of experiences and preferences for psychological treatment in women who experience Postpartum Psychosis
Rebecca Forde - Trainee Clinical Psychologist, University of Manchester
A qualitative interview study of psychological treatments as part of a treatment package for women who experience PP.
Status: closed. For information, email: email@example.comRead full news item
Dr Jess Heron interviews Iain Cunningham about his experience of making the film 'Irene's Ghost'
Why did you decide to make the film, Irene’s Ghost?
It was only really when I had my daughter Isla that I started to properly question what went on and to try and reconcile things. I watched her grow and develop and it was amazing to me how fully rounded a very small child can be. I started to think about myself at that age, and what I had experienced. I started to see the world through the eyes of a 2 or 3 year old. I imagined disappearing out of Isla’s life without a trace and it was completely heart breaking. I also started to wonder what the connection might be between Irene and my own experiences, my own mental ill health a couple of years before. I started to feel it was my responsibility to Irene to find her in the way that I could. So that’s what I set out to do.
The most moving scenes in the film involve your father. Given the era’s stigma and lack of information- which were so beautifully conveyed in the film, what impact has the film has had on him?
I always respected the fact that my Dad didn’t want to talk about things, but when I started to find out things about Irene, I felt like I’d been propelled out of a cannon, that’s how compelled I was to do it. I was incredibly nervous about talking to him for the first time, I had to build myself up to do it. It felt like he’d held a lot of emotion inside him for a long time. As the search progressed, we started to understand each other more and more. I think somehow we met in the middle. I started to understand what he had been through, the pain and confusion, and the despair really. I think since making the film, and with a bit of time to digest the experience, our relationship has improved a lot. We can talk more openly than before, and I think we take the time to look after each other a bit more as well. He’s very keen now to try and help men in a similar situation to the place he found himself in, and might even train as a peer supporter for APP.
The film flits between real people and dreamlike animations. Why did you use this device?
I had always thought animation could be a way to help visualise the imaginative world I had as a child, and my slightly unreal or magical memories of my Mother. I had an illustrated baby book, and the palette came from that, those muted 70s tones. Mixing reality and animation hints at the way we construct stories from memories - our memories are not entirely truthful, and that felt like a nice visual metaphor. There’s also a naivety to the style which again echoes the world of a child
You demonstrate in the film that there is pleasure to be gained from open discussions with children about life’s difficult issues. Was it difficult to face the family ‘skeletons’ head on, in order to be able to do this?
When I started out, I realised that it would be important to my daughter to know her Grandmother as much as it was for me to know my Mother. Partly because of my own experiences as a child, I wanted to be as honest as I could with Isla about what I was doing and why. It’s been an incredibly valuable experience to go through together and has enabled us to talk about grief, mental health and well being, relationships and lots of other very important stuff that would have perhaps been more difficult without this real life adventure unfolding around us. People were very generous with me because they could sense how important it was to me, and I’m grateful for that.
What was your experience of meeting women and families through “Action on Postpartum Psychosis”? Did it help you or your family personally?
I vividly remember the first time I met with women from APP and started to realise that this illness could explain the things I had been hearing about from people. Developing relationships with some of those women has been one of the most rewarding and incredible parts of this process. I was able to understand the illness first hand, and felt a kinship with them somehow. They were very welcoming. Hearing about the bond they felt with their children, even in the grip of illness was very important to me personally. Meeting their partners helped me to understand more about my Dad’s position. Also, introducing Isla to the families that meet through APP helped me to talk to her about it all in a way she could understand.
Like many, you hadn’t heard of Postpartum Psychosis before making this film. Has finding out about PP helped or has it increased your sadness or anger at the loss of your mother?
I was very ignorant about mental health in general I think, before making the film, even though I probably felt I was quite clued up. I was incredibly ignorant about the postpartum period in particular, and yes, I hadn’t heard of PP. It’s quite complex how I feel about her PP, tied as it is to an era when treatment wasn’t as good as it is now and awareness was very low. I think people working in psychiatric care have a very tough job to do, and they probably did their best with the tools they had available to them. I wish there had been a different outcome, but it’s impossible to know if there were issues with her treatment beyond the large doses of drugs mentioned in her notes, which were commonplace at the time, but we now know can be harmful. I was angry that her illness seemed to have made it more difficult for people to talk about her after she was gone. Hopefully that stigma is changing.
What would you most like to change in the future for other families affected by PP?
I think more knowledge about PP in the wider community in future will mean that it will be picked up earlier and treatment given earlier. I think also that the broader understanding we have about mental health seems to be growing, so hopefully that will continue. I hope families can feel supported as a whole - partners and children too - and that there are the proper facilities, including more MBUs, so that the right care can be given to everyone regardless of where they live.
Has the making of the film and its wonderful reception helped you personally? Do you see its success as honouring your mother?
It does make me feel a sense of pride that I am able to share her story with people, and I will be able to share it with more people if the film has a good reception. In extreme cases, mental illness can rob someone of their life, and even of the way they are remembered. I hope that I’m changing the balance for my Mother a bit. I want people to hear about her, ordinary and extraordinary in her own way, as we all are.
What’s next for you and for the film?
We want to talk to people at screenings and give them more info about PP, and a space to share their experiences about mental health, supported by APP.
I want to make a tool to help families who want to start a difficult conversation about mental health, by creating a 360 degree video, which is a media I work in outside of this film. The film will show the way other families talk, with natural conversations between parents and children about PP and other issues around mental health.
After that, I’m keen to do something different, and have been developing some fiction projects, but I’m still drawn to stories which relate in some way to mental health and identity. I’m sure Irene’s Ghost will keep me busy for a while yet though!
'Irene's Ghost' screenings:
LONDON PREVIEW | Bertha DocHouse | 30/04/2019 | Buy Tickets
LONDON | Bertha DocHouse | 03 & 04/05/2019 | Tickets Available Soon
GLASGOW | Glasgow Film Theatre | 04/05/2019 | Tickets Available Soon
NEWCASTLE | Tyneside Cinema | 04/05/2019 | Buy Tickets
LONDON | Bertha DocHouse | 05 to 09/05/2019 | Tickets Available Soon
MANCHESTER | HOME | 10/05/2019 | Tickets Available Soon
BELFAST | Strand Arts Centre | 15/05/2019 | Tickets Available Soon
BIRMINGHAM | Midlands Arts Centre | 16/05/2019 | Buy Tickets
EDINBURGH | Filmhouse | 19/05/2019 | Tickets Available Soon
LONDON | Curzon Soho | 20/05/2019 | Tickets Available Soon
NUNEATON | Abbey Theatre | 29/05/2019 | Tickets Available Soon
HALIFAX | Square Chapel | 25/06/2019 | Buy Tickets
For more information, visit irenesghost.com
If you have experienced PP and are interested in helping Iain film discussions about mental health between parents and children, please get in touch: firstname.lastname@example.orgRead full news item
On the 9th April, Dr Jess Heron, APP Director and Dr Sally Wilson, APP Training Coordinator, presented at the Midlands Maternity and Midwifery Festival at Leicester football club. They spoke to a packed conference hall of midwives, including student midwives about an evaluation of the 1-day workforce training that APP offer.
This series of conferences run across the UK and are a great platform for raising awareness of postpartum psychosis amongst midwives and other health professionals, which is one of APP's aims for 2019.
APP want to help health professionals to recognise early signs and symptoms, promote the importance of timely treatment, and talk about recovery and support needs for women and their families affected by postpartum psychosis. We are campaigning this year for compulsory training in perinatal mental health, including Postpartum Psychosis for midwives.
Can you help us? Future Midwife standards consultation
The Nursing & Midwifery Council have recently announced a consultation on the 'Future Midwife: Standards of Proficiency for Midwives'. We are delighted that Postpartum Psychosis has been specifically included as a core learning topic for midwives. We would like to make sure it stays included as these standards are refined and consulted upon. If you have experienced PP and would like to make comments, or are a midwife and would like to state how important it is that Postpartum Psychosis is in core midwife standards.
Please respond to the consultation by the 9th May 2019 via here or, please get in touch with Sally if you would like to give any feedback for APP's response. If you have have comments, quotes and stories that you could share with us about your midwifery care, these are really useful in helping to campaign.
APP will be responding to make sure postpartum psychosis and training in PP for midwives remains a focus in these standards.Read full news item