Maternal Mental Health - the Economic Case for Action

WestminsterOn Tuesday 21 October 2014 the MMHA’s report into “The costs of Perinatal Mental Health Problems” was launched in parliament.
 
Representatives of over 60 UK charities and health professional organisations met with MP’s from all parties, and people with lived experience, to highlight the unacceptable variation across the country in maternal mental health service provision and focus attention on the economic case for action.
 
Dr Dan Poulter MP, Parliamentary Under Secretary at the Department of Health, pledged commitment to implementing NICE guidelines across the country; highlighting the importance of specially trained Midwives and Health Visitors and the availability of Mother & Baby Units in all areas of the country, so that women do not have to travel great distances from their families to be admitted, or worse still, be separated from their baby on admission.

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Failure to fully address mental health problems in pregnancy & following childbirth costs over £8 Billion, report finds

Centre for Mental HealthLSEEveryone's Business

Perinatal mental health problems carry a total economic and social long-term cost to society of about £8.1 billion for each one-year cohort of births in the UK, according to a new report ‘The costs of perinatal mental health problems’ released today by the London School of Economics and Centre for Mental Health.

However the report also finds that the NHS would need to spend just £337 million a year to bring perinatal mental health care up to the level recommended in national guidance.

The report is part of the Maternal Mental Health Alliance’s ‘Everyone’s Business’ campaign (www.everyonesbusiness.org.uk),  which calls on national Government and local health commissioners to ensure that all women throughout the UK who experience perinatal mental health problems, receive the care they and their families need, wherever and whenever they need it.

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Congratulations London to Brighton Riders!

Our huge thanks go to Anna Jones who celebrated her 40th birthday by thinking of others. Anna persuaded her friends to join her in a recent charity London to Brighton bike-ride for APP. This really was no mean feat given that she managed to build a team of 34 women who trained for months to complete the ride. They all arrived in Brighton in a purple t-shirted haze of glory and raised the most magnificent sum of £11,598.82 to help us with our work. Again, we cannot thank team Anna Jones enough for what has proved to be a real highlight for APP.

London Brighton Riders


 

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North-West Triathlon Relay Triumph!

Kerstin Botham North West TriathlonOur huge thanks go to Stephen and Kerstin Botham and to their friend Jen who successfully completed the recent North-West Triathlon Relay in aid of APP. The triathlon was the culmination of very many months of fundraising by team Botham on behalf of APP, in memory of their friend rosy who died after an episode of PP.

We cannot thank the Bothams' team enough for their months of arduous training and for the selfless giving of their time at the saddest of times for all concerned. Their efforts raised a huge sum for app of £4,325 which will be used to support and raise much needed awareness of PP so that other women might escape the tragedy which has faced Rosy's family and friends.

 


 

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Royal College of Psychiatrists Statement on #everyonesbusiness campaign

RCPSYCHStatement: From current and past presidents, Royal College of Psychiatrists, on launch of Maternal Mental Health Alliance’s Everyone’s Business campaign

Current and Past Presidents of the Royal College of Psychiatrists come together to highlight Maternal Mental Health Alliance’s Call to A.C.T. - call postcode lottery of services ‘a disgrace’.

everyones business logo

The current and past Presidents of the Royal College of Psychiatrists today jointly welcomed the launch of the Maternal Mental Health Alliance’s Everyone’s Business campaign and their Call to A.C.T. Professor Sir Simon Wessely (President of the Royal College of Psychiatrists) and Professor Dame Sue Bailey (Chair of the Children and Young Peoples Mental Health Coalition (CYPMHC) and Immediate Past President of the Royal College of Psychiatrists) said:

“It is a disgrace that although one in ten mothers will develop a mental illness either during or in the first year after pregnancy, half of the women in the UK do not have access to specialist community perinatal mental health services. The current postcode lottery of provision means women are left to suffer, families risk breakdown, children suffer and society suffers. It is frankly unacceptable that suicide is one of the leading causes of death for women during pregnancy and one year after birth.

“We wholeheartedly welcome the Maternal Mental Health Alliance’s Everyone’s Business campaign which calls for Accountability for perinatal mental health care to be clearly set at a national level and complied with, for Community specialist perinatal mental health services meeting national quality standards to be available for women in every area of the UK and for Training in perinatal mental health to be delivered to all professionals involved in the care of women during pregnancy and the first year after birth.

“We are pleased that the RCPsych Faculty of Perinatal Psychiatry was able to assist the Alliance with its mapping of current services, and we will lend whatever advice or support is needed by those at the helm of health policy in the four nations for them to act to address this iniquitous and unjustifiable variability which penalises women – wives, partners, daughters and friends - at their most vulnerable. By improving the health (and there is no health without mental health) of any woman you improve the lives of their children, generations of children to come, and it leads to more flourishing communities.”


 

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Shocking gaps in UK maternal mental health services

#everyonesbusiness Campaign Launched Today

Pregnant women and new mothers across almost half of the UK do not have access to specialist perinatal mental health services, potentially leaving them and their babies at risk, according to data released today (8 July).

Everyone's Business

Maps highlighting the gaps in provision are published today by the Maternal Mental Health Alliance to mark the launch of its everyonesbusiness campaign.

The Alliance of professional bodies, patient organisations and charities, is warning that women who develop a perinatal mental illness are missing out on essential and potentially lifesaving care.

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APP Volunteering Event 2014

World First: Highest number of women with lived experience of Postpartum Psychosis come together under one roof!

Volunteer Event 2014On Saturday 26th April 2014, The Barberry in Birmingham was once again home to another fantastic APP event. The Volunteer Event gave thirty women who have experienced   Postpartum Psychosis and their families a chance to join together to talk about the future of the illness and the charity. 
 
The day combined a more formal agenda with chances for women to chat, meet  each other and share their stories. Several women in the room had never talked openly about their PP episode before and all who attended were deeply moved to be  surrounded  by individuals  who  truly understood  the  illness first hand.  
 
Dr  Jess  Heron,  Vice  Chair,  set  the  tone  for  the  day  with  a warm  and  informative welcome;  she  gave  an  overview  of APP, its history and hopes and dreams for the future. Andrea Lambert, Peer Support Coordinator, then described the amazing work being done to help women and their families via the forum and on an individual level. Lucy Vernall talked about media volunteering, pointing out the pros and cons of choosing to share your story publicly. Nicola Muckelroy spoke about her current project, to launch a Regional Representative network, ensuring APP has every region in the UK covered by at least one active volunteer who will raise awareness and fundraise in their specific area. Heather Heron, Trustee, filled the pre-lunch slot  with  an  enthusiastic   and  passionate   plea  for fundraising and the difference it makes.  
 
After lunch,  Anna  Jones,  Volunteer,  talked  about  her experience   of  PP  and  talks  she has  been  giving  to  the medical profession in her area to help the PP cause. Professor Ian Jones, Chair, bought  the  more  structured  agenda  to  a  close  by sharing his academic research in to PP and answering questions from individuals about the illness, recovery, medication, symptoms and its connection with other mental illnesses.
 
In the afternoon, the attendees split in two different groups to brainstorm,  collaborate and tackle questions regarding the future work of APP. Topics  covered  included: Regional Rep roles, obtaining and spending future funding, support opportunities for woman and families, providing useful literature, research projects, campaigning at government level, involving high profile individuals and equipping Volunteers with the necessary skills set.
 
Dr Giles Berrisford, Clinician & Trustee, gave a summary of all these discussions, remarking on the extraordinary progress APP has made to date and how vital its support is to the world of perinatal psychiatry.
 
Throughout the day, Lucy Vernall, APP’s  Media Coordinator, was ready and armed with a camera in the photo booth to record snippets of women talking about their PP experience with messages to the general public, sufferers and policy makers about the illness. These clips will be made into short films for the APP website to help with campaigns for improved services.
 
Another remarkable APP event bringing women together to help cement a brighter future for Postpartum Psychosis and improved services for those affected by it.
 
Onward!
 

Following the event we received many messages from attendees expressing how much meeting other PP women face to face meant to them and how much they got from the day on so many levels. Here’s one of them: 

"I wanted to drop you all a few quick lines to say simply "Thank You!" for last Saturday at the Barberry. It was the first time I had attended an APP event & most importantly for me, the very first time I had met another living, breathing mother who had also experienced Postpartum Psychosis!! I now truly understand I have not been alone in this long old journey & this was an incredible feeling, very special indeed. I want each of you to realise that what you have achieved so far is worth every single minute & hour of effort that I understand must go into running that kind of Workshop. Thank you so very much." ~ E.G.

On her blog 'Bumps and Grind', Kathryn writes about coming along to the Volunteers Event & also her experience of receiving support via our PPTalk online forum.

Kathryn's blog: 'Bumps and Grind: PP Survivors United'>>


 

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Women on antidepressants more successful at breastfeeding if they keep taking medication

University of Adelaide researchers have found that women on antidepressants are more successful at breastfeeding their babies if they keep taking the medication, compared with women who quit antidepressants because of concerns about their babies' health.

These results have just been presented this week at the 18th Perinatal Society of Australia and New Zealand (PSANZ) Annual Conference in Perth. Using data from the Danish National Birth Cohort in Denmark, researchers in the University of Adelaide's Robinson Research Institute studied the outcomes of 368 women who were on antidepressants prior to becoming pregnant.

"We found that two thirds of the women (67%) stopped taking their antidepressant medication either after becoming pregnant or during breastfeeding," says Dr Luke Grzeskowiak from the Robinson Research Institute.

"A third of the women (33%) continued to take antidepressant medication throughout their pregnancy and while breastfeeding, and these women were much more successful at maintaining breastfeeding up to and beyond the recommended six months.

"In contrast, those women who had stopped taking antidepressants were also more likely to stop breastfeeding within the recommended six months."

Dr Grzeskowiak says the health benefits of continued breastfeeding greatly outweigh any perceived risk to the baby from antidepressant medication.

“This is a really important message ... on the balance of it, we believe that continuing to take antidepressant medication and maintaining regular breastfeeding will be the best outcome for both the baby and the mother”

"This is a really important message because we know that breastfeeding has immense benefits for the child and the mum herself, including a degree of protection against post-natal depression," he says.

"The amount of antidepressant medication that finds its way into a mother's breast milk is very low. On the balance of it, we believe that continuing to take antidepressant medication and maintaining regular breastfeeding will be the best outcome for both the baby and the mother."

Dr Grzeskowiak says many women struggle with decisions about what to do with medications both during pregnancy and lactation.

"If they're taking antidepressants, they should be supported and encouraged by family members, friends and healthcare professionals to continue with their medication, knowing that good breastfeeding outcomes are all-important for them and their child," he says.

This research was funded by the National Health and Medical Research Council, and the Women's and Children's Hospital Foundation.


 

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Call for partners & husbands get involved!

FamilyHere at Action on Postpartum Psychosis (APP), we have been working towards developing online resources and an information leaflet for the partners of mums who have suffered Postpartum Psychosis, offering information and support for them during an episode of PP.

Over 80 partners of APP members have completed a postal survey and 12 men have taken part in telephone interviews about their support needs during PP - thank you! Last year we held a small focus group with partners to develop an outline for our web resources and we have now produced draft web and leaflet content.

In March 2014, we are planning to hold a workshop for partners.  We are looking for partners who want to help us finalise our resources. We need partners to review and comment on the web and leaflet content, their design and presentation and ways that they can be promoted. We would also like partners to help us create a short videos aimed at other men in a similar situation, and photos / images to go alongside the web and leaflet materials.

The workshop will be a day session and is likely to be held on a Saturday at the University of Birmingham. Food will be provided and all transport expenses will be refunded. We hope it will be a great opportunity for partners to meet other partners who have been through similar experiences, and help us make the situation better for others in the future.

If you are a partner and you might be willing to consider coming along to this workshop or would like to use your IT, marketing or artistic skills to help us in any other way, please get in touch. It’s not a commitment at this stage, we aim to find out how many people might be interested in our workshop.

Email: ruth@www.app-network.org

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APP’s Chair wins prestigious psychiatric research prize

Ian Jones AwardAPP’s Chair, Professor Ian Jones of the National Centre for Mental Health at Cardiff University, has won a major prize at the fifth annual Royal College of Psychiatrists Awards.

Professor Jones, who is Deputy Director of the research centre and an Honorary Consultant Psychiatrist in Cardiff and Vale University Health Board, was awarded the Psychiatric Academic / Researcher of the Year prize at a ceremony held at The Royal Society of Medicine in London.

The awards mark the highest level of achievement within psychiatry, and are designed to recognise and reward excellent practice in the field of mental health.

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