Tag Archives: mother and baby unit

15 August 2023

A day in the life of…a Peer Support Facilitator: Natalie

Natalie Thompson has worked with APP since 2019 and is based in our Birmingham and Solihull peer support teams. Having experienced PP twice herself in 2003 and 2007, and later being diagnosed with bipolar disorder in 2010, Natalie helps support women and families affected by PP (or other illnesses featuring manic or psychotic symptoms). After treatment in an acute psychiatric ward and fantastic care at the Birmingham Mother and Baby Unit (MBU), Natalie knows how challenging it can be to settle back into everyday life.

Here, she shares a typical day in the life of her role with APP.

08:45

I always start the day with a cup of tea to wake me up. Steaming hot brew at the ready, I’ll check my emails to see if there’s anything urgent I need to respond to and contact any women I am due to see that day to make sure meeting is still convenient for them.

09:00

I’ll make my way over to a local children's centre where I support with NHS Perinatal groups such as Play and Stay and Baby Massage. Sometimes I help facilitate other interventions such as Tree of Life and Five to Thrive.

It's good to have a Peer in the groups to be able to support the mums as someone who’s walked in similar shoes.  I know from personal experience that chatting to someone who has been through what you have is such a big help and makes you feel less alone in your recovery (which also helps to speed up recovery).

12:00

To end the morning, I might refresh my skills by taking part in training and shared learning. Sometimes this will be provided by the brilliant team at APP, but, as a partner of the local NHS Trust, we are also able to access NHS training and development too. It’s always good to keep learning and hearing best practice and I feel lucky that this is something APP is so supportive of.

12:30

Time for a lunch break and another cup of tea!

13:00

After lunch, I might attend an MDT meeting - multi disciplinary team meeting. This might be attended by clinicians, nursery nurses etc. and some of the issues we might address could include women on the high risk pathway and admissions to the MBU.

14:00

Next I’ll make sure I get moving and get some fresh air by doing a social walk with one of the women on my caseload who is recovering from PP. These ‘walk and talk’ peer support meetings are great – especially for women who feel anxious leaving the house alone and those who don’t have a great social network. Getting out is difficult for new mums as it is, but even more so when you’re recovering from severe mental illness – and we know that exercise and fresh air both contribute to wellness so it’s a win-win.  From these meet ups I’ll write up my notes to make sure I am able to reflect on any areas I need to follow up on.

15:00

I will make time to contact women on my caseload to see if they want to talk through anything over the phone or indeed want to meet up in the coming weeks.

Next, I might prepare for the APP café group – a session where several women get together to share their experiences or just to socialise with others who have been through similar experiences.  I’ll check out the venue, make sure they have good facilities and open space for little ones, etc. Then, I’ll email participants a little reminder of where café groups take place, and check on the dreaded weather!

16:30

Time to clock off. That’s the great thing about working for a charity that’s committed to mums and babies spending time together – they like to ensure your work doesn’t eat too much into your family time! So even when I work from home, I’m pretty strict about clocking off at the end of my shift and joining my family for a relaxing evening.

To find out more about current APP peer support job vacancies, click here.

26 July 2023

Samantha’s story: I was diagnosed with schizoaffective disorder after PP - but it’s not the life sentence I thought it was going to be

I’d never experienced any real mental health problems prior to being diagnosed with postpartum psychosis. However, six years later, following another psychotic episode, I was diagnosed with schizoaffective disorder and told I’d need medication for life. But after learning how to better manage my health and wellbeing, I’ve been symptom-free for over seven years. Now, I want to inspire others by showing that, despite your diagnosis, you can go on to live a healthy and happy life.

In 2005 I gave birth for the first time. I had quite a large baby - he was nearly 10 pounds and, following a forceps delivery, I lost a lot of blood. It was a terrifying time, I had to have a blood transfusion, I hadn’t slept for three days straight before the birth and I really believed I was going to die.

Looking back, it definitely felt as though this trauma marked the beginning of my mental health problems.

After the blood transfusion I could feel that something wasn’t right. I even joked that they’d ‘given me the blood of a mad man’. They wanted me to see a psychiatrist at this point but I denied that there was anything wrong with me and they let me go home with my baby.

After getting home my family became really concerned. I trashed the house and experienced visions, so they got the mental health team involved and I ended up being sectioned.

My memories of that time are still quite hazy and I feel I have blocked a lot of it out as a protection mechanism, but some of the visions I experienced are still very vivid. I am certain I was never suicidal and I didn’t have any worrying thoughts about my baby, but things definitely weren’t right with me.

Unfortunately, there wasn’t a Mother and Baby Unit (MBU) nearby and my then husband had to make a decision for me to go into a general psychiatric ward, as I wasn’t able to articulate myself how I wanted to be treated.

My experience on the mixed ward was not a good one, and there were some awful incidents that traumatised me. I wasn’t sleeping and was continually walking around the wards apparently putting myself at risk amongst some of the unwell male patients. I remember being restrained and put in seclusion on more than one occasion. I also felt uncomfortable when there were usually just male members of staff on duty especially at night. I had already had a traumatic time giving birth and all of this just added to the distress. This would not have happened had I been sent to where I should have been – an MBU. I ended up staying on the general ward for 28 long days.

I was told that there was a 50% chance of me getting PP again if I had another baby. However, 19 months later, having given birth to my daughter, I felt more prepared.

I had a planned c-section, knew what to look out for and felt more supported. I had a mental health team keep an eye on me throughout the process but refused any type of medication. Thankfully, I didn’t experience PP following my daughter’s birth.

However, after being well for six years, I experienced a psychotic episode, which I believe was linked to the trauma and I ended up back in the psychiatric unit for 28 days again. This was in 2011 and between then and 2016 I ended up being sectioned four more times for subsequent episodes.

I was initially diagnosed with bipolar disorder and then told it was actually schizoaffective disorder which was a real shock as there is so much stigma attached to the label. My family were told that my condition was so severe I would need medication for life, which really affected me as I had always preferred a holistic approach, so I kept stopping the medication they supplied me with. Because of this they were unable to trust me and had to give me monthly injections which I also found traumatic.

My last episode was in 2016 due to a lot of stress in my life within a short period and I was hospitalised for three months. During that time my mind and body totally shut down and I couldn’t communicate with anyone. Luckily, this time, I was in a women only ward.

After this last event I was referred to an extremely good NHS psychiatrist who did not believe that everyone with this condition needed to be on medication for life. He worked with me over a long period of time and carefully weaned me off my medication so that by 2019 I was medication free. It was at this time I decided to work on healing myself and dealing with past traumas through reiki and other holistic therapies.

My experiences inspired me to want to give something back to others, and I now work full time supporting adults with learning difficulties.

Another big achievement was buying my own house in 2020 – something I never believed would be possible.

There’s a lot more to my story but for the last seven years things have been great. I have had my ups and downs like everyone else - especially during Covid and working in a care home. I have dealt with a lot during this time but have managed to stay well. I really want to express that a psychiatric diagnosis doesn’t mean you are written off and it doesn’t have to be a life sentence. I am now leading a normal and happy life and in some ways, I wouldn’t change a thing as it’s made me the strong woman I am today.

12 July 2023

Jodie jumps for APP!

On Saturday 22nd July in Glasgow the very brave Jodie McNairn bungee jumped from 160ft (nearly 50m!) to raise funds for APP and awareness of postpartum psychosis.

Jodie chose this challenge as she felt a jump like this would feel so freeing. She says she's using it as a way to leave the past behind and move on.

Jodie has also bravely shared her story with us to help ensure more people understand the signs and symptoms of PP and to bring hope to others affected by PP:

'The day I got home from hospital after giving birth to my daughter five days previous, I started hallucinating and became obsessed with my health thinking something was wrong. Me, my boyfriend and my daughter went to stay with my mum for some support but after a few days things progressively got worse. I was confused, withdrawn, erratic and was starting to have awful thoughts that were becoming dangerous. This is probably when my family realised it was more serious than they thought. I was admitted to a general mental health unit and while there ended up sectioned as again things got worse and I had no control over myself anymore.

This was during Covid so I couldn’t see my daughter while I stayed there which was even more confusing. I remember while I was there I thought I was dead and that I was living in hell repeating the same day over and over and over.

A week later a bed became available at Leverndale Mother and Baby unit which was the start of my journey to getting the right help I needed. The women there were amazing, they helped me so much. I spent my 23rd birthday there as well as mine and my daughter Lyla's first Christmas, which brings me to why I wanted to raise money for APP.

On Christmas all the girls and their babies received loads of gifts and information/support from APP and it was at this point that I knew I wasn’t alone and what I was going through was a real Illness. I was discharged on Hogmanay to continue recovering from home with the support of my family and friends and Laura the CPN that stayed in touch regularly.

Nine months later I fell pregnant with my son and the day he was born I went back on medication in case the psychosis came back which thankfully it never did and I got to enjoy my newborn without being unwell. Two and a half years ago I didn’t even think I would be here and now I get to live life with my 2 year old daughter and my 1 year old son.

Things WILL get better - you are stronger than you think.

If you managed to read all that then thank you! And thank you to APP for giving me the chance to raise money for all the amazing things you do!'

Jodie reported back after smashing her bungee: 'So, so scary but what a feeling once you jump!'
If you'd like to add your support for Jodie's jump, you can do so here:
https://www.justgiving.com/fundraising/Jodie-Mcnairn

And if you're inspired by Jodie to take on a bungee jump for APP, contact fundraising@app-network.org and we'll send you all the info you need.

Good luck Jodie!

7 July 2023

Read APP's July 2023 newsletter

Health professional training

New dates announced! Book on to APP’s health professionals training in postpartum psychosis (PP) and stay up to date with best practice care.

Supporting dads and co-parents affected by postpartum psychosis
This half day online workshop, led by Dr Sally Wilson and APP Partners Coordinator Simon O’Mara, is informed by real life experiences of dads and co-parents whose partners have experienced postpartum psychosis. At the end of the workshop: you will have an up-to-date knowledge of the research into the impact of PP on partners; understand the needs of dads and co-parents; and have learned about strategies and interventions to improve support.
Friday 14th July / Zoom
10am - 12.30pm BST
£99
Find out more & book: www.eventbrite.co.uk/e/app-training-supporting-dads-and-coparents-tickets-648045761317

Best practice care in postpartum psychosis
This one-day online course draws upon cutting-edge research in postpartum psychosis and bipolar disorder and is informed by the experiences of women and families. The course will develop knowledge, understanding, and confidence in managing this severe form of postnatal mental illness.
Wednesday 15th November / Zoom
Full day training
Early bird (to 31st July) £165, full price £195
Find out more & book: www.eventbrite.co.uk/e/app-training-managing-postpartum-psychosis-for-health-professionals-tickets-496307337607

Essential knowledge for preventing maternal suicide
The Alex Baish Memorial Lecture: a free webinar for GPs, midwives, antenatal educators and frontline health professionals
Suicide is the leading cause of maternal death in the UK and rates are increasing nationally. This free lunchtime webinar aimed at frontline health professionals will outline the actions needed to support and protect women who develop the condition. The webinar will include a Q&A session with APP’s clinical, academic and lived experience experts.
Wednesday 18th October / Zoom
12pm – 1.30pm BST
Free
Register your interest at: training@app-network.org

Supporting Black, Asian and Minority Ethnic families affected by postpartum psychosis
This new online session led by APP’s National Training Coordinator, Dr Sally Wilson, and APP’s Diverse Communities Outreach Team, will focus on supporting women and families from Black, Asian and Minority Ethnic communities who develop postpartum psychosis. By the end of the session, you will have knowledge of the support and information needs of women from Black, Asian and Minority Ethnic communities; and have considered strategies to remove barriers and improve care.
Thursday 16th November / Zoom
12pm – 2.30pm BST
£99
Find out more & book: www.eventbrite.com/e/supporting-black-asian-and-ethnic-minority-families-affected-by-pp-tickets-671354869487

Northern Ireland campaigning update

In Northern Ireland we’re waiting for news of the next step for a Mother and Baby Unit (MBU). We campaigned hard last year for public, professional and government support for the unit. The government strategic review due in the spring has been delayed until summer and we’ve heard that’s because all five Health Trusts were keen for it to be in their area.

With no Government in Northern Ireland, and no Health Minister, even when a Trust is chosen to develop a business case, nothing can be done. But we’re not going to let an MBU fall off the agenda.

We’ve got plans to lobby when politicians are back from their summer break, and we’re staying in touch with journalists who have reported on this before.

We’ve got three questions we need answered:

  • What’s the timeline for building and opening an MBU?
  • What’s the budget and where will the money come from?
  • What is going to be done for mums who need admission in the meantime?

To really make our case, we need support from women in Northern Ireland who’ve experienced postpartum psychosis. We know it’s much harder to ignore people who have real stories to tell, so we’re reaching out to anyone who is prepared to talk to media - even anonymously - or to talk to an MLA about their experience.

Please also get in touch if you used to live in Northern Ireland and had access to an MBU elsewhere in the UK that you wouldn’t have had at home - we’d love you to share your story. APP volunteer, Tara, recently shared her experience of postpartum psychosis (PP) in this podcast.

We’ll support you through the process. Even if you don’t feel certain about talking, you can give us a call to discuss it. Get in touch with Ellie here.

It’s just not fair that women have to leave Northern Ireland to get the help that’s available in all other parts of the UK, and we’re determined to change that.

#MumBabyTogetherNI

We are recruiting

APP is recruiting casual Peer Support Worker(s) to join our innovative collaborative project with Birmingham and Solihull Mental Health Foundation Trust providing peer support to inpatients at Birmingham Mother and Baby Unit (MBU).

We’re looking for people with lived experience of postpartum psychosis to help support women, one-to-one and through small group activities, at the MBU. Peer Support Workers also spend time talking to partners and families of women during the acute illness phase, sharing information, giving hope and signposting to APP’s online support, community forum, and information. Part of the role will be spent helping to run monthly café groups in the Birmingham area and - working in collaboration with Black Country Healthcare Foundation Trust - at various locations around that region. You don’t need to have experience of peer supporting. Training will be provided.

Full details of how to apply for the role are on our website. The application deadline is midnight on 21st August 2023.

Scotland Mother and Baby Unit petition


We know that some mums in Scotland who suffer from postpartum psychosis are treated in general psychiatric wards away from their baby and family.

There are currently only two specialist Mother and Baby Units (MBUs) in Scotland based in Edinburgh and Glasgow.

APP believes every family affected by PP should have access to specialist care. MBU beds accessible to women in the North of Scotland are vital.

You can help us by adding your name to this petition, developed by Lesley, one of our Scotland volunteers, which is currently under consideration by the Scottish Government. Adding your name will help the Scottish government understand how strongly we feel about access to specialist care – and keeping mums and babies together: https://petitions.parliament.scot/petitions/PE2017

#KeepMumsAndBabiesTogether

Celebrating Perinatal event

On 24th May, APP attended the "Celebrating Perinatal" event, organised by Midlands Partnership University NHS Foundation Trust and North Staffordshire Combined Healthcare NHS Trust.  It was a wonderful occasion to celebrate all the work done in the region over recent years, and to look back to the start of services in the North Staffs area in the 1980s.

APP’s Hannah Bissett, National NHS Contracts Coordinator, Jo Derry, Black Country Peer Support Facilitator, and Jenny Stevenson, National Online Peer Support Coordinator joined Dr Giles Berrisford, APP's Chair of Trustees, who gave a national update on the progress of perinatal services as Specialty Advisor PMH for NHS England. Hannah is pictured above with Harriet Lambah-Heap (ward manager at Brockington Parent & Baby Unit).

Color Obstacle Rush

On Saturday, June 17th, a group of 12 APP staff and families (pictured above) from the north west took part in the Color Rush at Manchester. It was such a fun event consisting of lots of coloured powder, foam, giant inflatable obstacles and maybe some running.
As a group, they managed to raise £1,086. There is still a chance to donate here.
We are thinking of doing this again next year and there are various locations all over the world! So please get in touch with fundraising@app-network.org if you’d be interested.

Professor Louise Howard, OBE

Congratulations to Professor Louise Howard who was awarded an OBE in the first King’s Birthday Honours last month for services to women's mental health.

Louise is Professor Emerita in Women’s Mental Health at King’s College London. Her research programmes aim to improve mental health service policy and practice for women. She led research that informed the updated NICE guideline on how to identify and treat perinatal mental illness and her work has also informed pregnancy planning tools commissioned by NHS England and Public Health England.

Fabulous fundraisers

Our amazing supporter Lee Smith is continuing his epic 12 month, 12 challenge fundraiser. He’s already taken part in several running events, including a back-to-back Total Warrior event followed by the Great Run 10k, he’s also climbed Scarfell Pike, run 5k a day for a month and just last month, he and his wife Jess climbed Ben Nevis.  To mark their joint achievement, their daughter made them this beautiful book as a present – she’s so proud of them and we are too. Add your support to Lee’s incredible campaign here.

Ultra Event!

We have our first APP ultra runner in action this weekend! Michael Henderson-Sowersby is taking on the mammoth 100km ‘Race to the Stones’ on 8th July, raising money for APP in memory of his school friend Alex Baish, and for another charity close to his heart - Devizes & District Opportunity Centre.  Find out more about his epic training efforts and add your support here. Good luck, Michael!

Miles for Mums and Babies

Another huge thank you to everyone who took part in our Miles for Mums and Babies challenge this year – donations are still coming in and challenges are still underway, but already our amazing fundraisers and their supporters have raised more than £20,000! This will have such an incredible impact on the work we can do supporting mums and families. Thank you so much. You can read more about our Miles for Mums and Babies adventures here.

Looking for your next challenge?

There are dozens of running events going on this October all over the country – half marathons in cities including Oxford, Glasgow, Manchester, Portsmouth and London (including the beautiful Royal Parks Half); full marathons in Chester and York, 10 milers in Leicester and Yorkshire, 10kms in Guildford, Tatton and Glasgow, and inflatable 5k fun runs in Huntingdon and Warwickshire – wherever you are and whatever level of challenge you’re looking for – we’ll find the event for you! For most events, there’s a small registration fee of just £25 and a minimum fundraising target that ranges from £100-350 depending on the race. There's still plenty of time to get your training in before October. Tempted? Email fundraising@app-network.org and we’ll sort you out with a free APP running vest and lots of support and encouragement!

Suncatchers

We’re very excited to have been donated more beautiful suncatchers, all handmade with love and care by our wonderful APP supporter, Peter the Glass.  Numbers are very limited so if you’d like one, get your order in quickly. More info here.

Research

You can help improve care for the future by supporting research into PP. Please join our lived experience network, and then contact the researchers for information on each study.

Exploring Black mothers’ experiences of postpartum psychosis and the role of racism
APP is supporting Emily Monger, a Trainee Clinical Psychologist at the University of Essex, who is exploring the experiences of postpartum psychosis for Black mothers, and how the role of racism and/or discrimination may have impacted women’s recovery for women. She is looking for women in the UK, aged 18+ who identify as being from a Black background and who have experience of PP to take part in her study. To find out more email em21633@essex.ac.uk.

The causes and triggers of postpartum psychosis
The National Centre for Mental Health (NCMH) and Action on Postpartum Psychosis (APP) are working together to understand more about the genetic factors, and other causes and triggers of severe mental illness during pregnancy and following childbirth.

You are invited to take part in this research if you have experienced postpartum psychosis or other severe mental illness around childbirth. For more information and to sign up to participate, please visit this page.

Enhancing recovery from postpartum psychosis
A research team at the University of East Anglia, led by Dr Jo Hodgekins, would like to talk to partners of women who have experienced PP. The research team is interested in learning more about what ‘recovery’ means to people with lived experience of psychosis and their families and the kinds of issues people would like additional support with, and what this support might look like. For more information, email j.hodgekins@uea.ac.uk.

The role of sleep in the development of postpartum psychosis
APP is working with researchers at the Institute of Mental Health, Birmingham University, led by Dr Isabel Morales-Munoz, to investigate the role of sleep in postpartum psychosis (PP). If you have experienced PP, you can help by completing questionnaires about sleep patterns. To take part, register with APP’s Lived Experience network, and email: c.a.f.carr@bham.ac.uk.

If you are a researcher and would like us to support your research, please get in touch at an early stage in planning: research@app-network.org.

Dates for your diary

APP Lancashire and south Cumbria virtual café group meet up, Monday 10th July: APP regional café groups webpage

APP London virtual café group meet up, Monday 10th July: APP regional café groups webpage

APP Grandparents virtual café group meet up, Tuesday 11th July: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Lancaster, Wednesday 12th July: APP regional café groups webpage

APP Yorkshire virtual café group meet up, Thursday 13th July: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackpool, Friday 14th July: APP regional café groups webpage

APP Dads and co-parents virtual café group meet up, Wednesday 19th July: APP regional café groups webpage

Birth Trauma Awareness Week, 16th-22nd July: www.birthtraumaassociation.org.uk

APP Wales virtual café group meet up, Thursday 20th July: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Preston, Friday 21st July: APP regional café groups webpage

APP Muslim women’s virtual café group meet up, Saturday 22nd July: APP regional café groups webpage

APP Black Country face to face café group meet up at Walsall Arboretum, Wednesday 26th July: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackburn, Friday 28th July: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Preston, Saturday 12th August: APP regional café groups webpage

APP Black Country face to face café group meet up at Walsall Arboretum, Wednesday 23rd August: APP regional café groups webpage

Events

Improving Safety in Maternity Services, Thursday 13th July
Online conference focussing on a multidisciplinary approach to improving safety in maternity services following the Ockenden Review. Book tickets here.

Suicide Bereavement: Practical Applications Conference, from Tuesday 5th September
Fourth annual conference organised by Harmless featuring a series of live webinars on Tuesdays and Thursdays. The theme of this year’s event is ‘2 steps forward, 1 step back. Book tickets here.

If you would like to advertise your event here, please get in touch: app@app-network.org.

26 May 2023

Mammoth Miles for Mums and Babies efforts this May!

This year we have had more people than ever take part in our Miles for Mums and Babies fundraising challenge. 

Here's just a few pictures to give you an idea of what everyone has been up to, with individuals and teams getting involved all across the UK.

Thank you to absolutely everyone who has taken part, provided moral or physical support or donated to keep our fundraisers going - it's been an incredible effort, and it's still ongoing!

Becky took on an epic 42 mile walk - find out more and check out the fab pics here.

Justine and a huge team of friends climbed Cavehill on a beautiful sunny day near Belfast.

Kayleigh and her husband Dave are walking 56 miles over 5 days - 56 miles was the distance Dave had to travel to visit Kayleigh when she was in an MBU.

A huge team from Nottingham's Margaret Oates' MBU completed 318 miles - and some dedicated team members didn't even stop when they were on holiday! The whole team completed the miles with a fabulous family walk. Find out more about what they've been up to and add your support here.

Some of our tiniest fundraisers got involved through Jenny Wren’s Rattle & Rhyme group who completed a wonderful five mile buggy push and toddle.

Emma took part in a 10k race on a sunny Wednesday evening in Northamptonshire.

The fantastic nationwide BleepKind team smashed their original 318 mile target, completing over 400 miles in total, and an incredible 92 hours of activity on bikes, on foot and in pools!

Husband and wife team Georgina and Chris are running 108 miles this month, and were even spotted in action at Trentham Gardens by an eagle eyed member of the APP Team!

Natalie is completing 60 miles over the three months, fitting it in around her already very busy life, and loving every step of the way!

Over in Spain, (yes Miles for Mums and Babies is international now!) Ruth had a 10k race planned but when an injury put a stop to her training and running, her amazing friends, Afra and Sinead, stepped in to ensure it didn't put a stop to her fundraising!
Afra completed a 21k race in early May, and Sinead is taking part in the Edinburgh marathon at the end of the month - what fantastic friends!

Hazel cycled amazing 65 miles in just one day from Dundee to Livingston, via Perth.

Hannah and Ryan are walking and running 156 miles throughout May - 120 miles for the distance their family travelled to be with Hannah when she was ill, and 36 miles for each day she was in the Mother and Baby Unit.

The North Wales Perinatal Mental Health Team have completed a MASSIVE 2000 miles between them and are finishing off in style with a team away day walking up Moel Famau meaning Mother Mountain - the highest hill in the Clwydian range in Denbighshire.

We also have a swimmer on board - up in Scotland Alice is planning on completing 71 miles of swimming in a month - 71 miles representing the number of days she spent in hospital while unwell with postpartum psychosis.

Laura D decided to tie her Miles for Mums and Babies challenge in with a Couch to 5K adventure.

Jennifer and Lee walked from their home to Nottingham MBU - a distance of more than 20 miles - in one day.

Laura C is running a fantastic 50 miles in the month of May.

Becky is running 5k EVERY DAY in May, often pushing a buggy to make it even more challenging!

Sally is walking a huge 100 miles in May and has smashed her fundraising target!

Shelley and friends completed a 5K in Stormont at the end of the month, not only to raise funds but also to highlight the desperate need for an MBU in Northern Ireland.

10 year old Annie has shown real dedication by running a mile every single day during May, not missing a single one and sometimes even having to get up early to fit her mile in before school!

Some people have even longer term plans - Emily aims to walk an amazing 1000 miles this year - and has already completed nearly half of these miles; and Heidi is aiming for 1400 miles of running this year!

It's been a huge effort this year so far by so many, and we're so grateful to all of you!

Looking ahead, Adeline is running a 10K in Battersea Park at the end of June and Robyn will be paddleboarding in Leamington Spa.

So the month might nearly be over but it’s definitely not too late to get involved – Miles for Mums and Babies can happen whenever and however you want it to! So, if you're feeling inspired and have an idea for your own Miles for Mums and Babies challenge, we’d love to hear from you!

APP May Newsletter

New café groups

We’re delighted to announce the launch of two new peer support café groups for women and families affected by postpartum psychosis (PP):

On 22nd July, we’ll be holding our first online meet-up for Muslim women who have experienced psychosis in the perinatal period. The group will be run by Zebunisa and Ramlah from APP’s diverse communities outreach team for Muslim women to share experiences of PP, make new friends as well as find and offer support.

Zebunisa says: “I’m very much looking forward to meeting Muslim women who have been through postpartum psychosis. It’s a topic which isn’t discussed or mentioned enough and hopefully by meeting we can help raise awareness of mental illnesses such as PP following childbirth”.

Ramlah says: “I had PP back in 2014, after the birth of my first child. I am a British African Muslim woman with two beautiful children who I love dearly. Mental health is an open conversation I enjoy being a part of; I hope you are willing to come along and join us in this zoom call.”

If you would like to learn more or join the group, please email: zebunisa@app-network.org, or ramlah@app-network.org.

APP’s first UK-wide café group meeting will be held on 5th July. This friendly, informal meet-up on Zoom is for anyone who has experienced psychosis in the perinatal period, no matter where they live in the UK. To join, sign up on Eventbrite.

We already run nine regional café groups around the UK which meet virtually and face-to-face throughout the year. The groups are attended both by those newly recovering from PP and those who may have recovered many years ago. If you are interested in joining any of the groups – in Wales, Sussex & Hampshire, Northern Ireland, Scotland, Yorkshire, North East & North Cumbria, Lancashire & Cumbria, Birmingham and London - please email app@app-network.org.

We also run a virtual peer support group for dads and co-parents. It meets on the third Wednesday of every month and is for people who have supported a partner through PP. Our grandparents group meets approximately six times a year. If you would like to be on the mailing list for either of these groups, please email app@app-network.org.

New mother and baby unit

Plans for a new Mother and Baby Unit (MBU) - a specialist in-patient treatment unit where mums with mental illness are admitted with their babies - have been announced by Cheshire and Wirral Partnership NHS Foundation Trust.

The eight-bed unit will be opened in Chester to support new and expectant parents across Cheshire, Merseyside and North Wales.

APP’s National Training Coordinator, Dr Sally Wilson, is working with the Cheshire, Wirral and North Wales NHS teams to ensure the voices of lived experience are heard throughout the whole development process, as well as ensuring the unit helps to meet the needs of families from North Wales.

APP has long been campaigning for more MBU beds in the UK. We’re delighted that this new MBU will improve provision, enabling more mums and babies to stay together. There is work to be done to ensure that this is truly an accessible unit for women in North Wales including Welsh-speaking women and their families.

In many parts of the UK it is still the case that mothers and babies are forced to travel miles for treatment or that mums can be separated from their baby for treatment on an adult psychiatric ward. You can read more about APP’s campaigning for MBUs in Northern Ireland, the Republic of Ireland and Northern Scotland and add your voice here.

Richard's epic ride

On Monday, the incredible Richard Baish and his team of friends, will set off on a 475-mile, 5-day bike ride from Glasgow down to Oxfordshire. Richard is undertaking this challenge in memory of his wife Alex. He has already raised more than £37,000 so is well on his way to his £50,000 target.

His aim is to ensure healthcare professionals, antenatal educators and parents-to-be are made aware of the signs, symptoms and risks of PP, in the hope that no other families will have to go through what they have. We can’t thank him enough for all he has done already, and we’re all wishing him well on his ride – look out for updates on our social media feeds next week.

Dads and co-parents support

Chris, one of APP’s dads and co-parents peer supporters, took part in a podcast to share his experience of postpartum psychosis from the partner's perspective.

Chris spoke to Dr Rachel Davies, Clinical Psychologist at the Maternity Mental Health Service, for the Southern Health podcast.

Please note, this story talks about the trauma of postpartum psychosis very openly from a dad's perspective. Please take care if these are difficult topics for you at this stage in your recovery.

As Chris describes, PP is a hugely traumatic experience, not just for the women who develop it, but also for their partners and families. APP has produced an information guide for partners available here.

We are also hosting a specialist online training session: Supporting Dads and Co-parents on 14th July for health professionals and anyone interested in learning more about the impact of PP on families. The session will be delivered by the APP team along with dads and co-parents who have been affected by postpartum psychosis; share research related to the impact of PP on partners, as well as better understand the support needs of dads and co-parents.

For more information and to book a place email training@app-network.org.

Big Give - big thank you

A huge thank you to everyone who supported our Big Give campaign during Mental Health Awareness Week – to everyone to donated, and to those who shared our emails and social media posts. We hit our £5,000 target by 8pm on Saturday – nearly two days ahead of the deadline. This will make such a huge difference to our dads and co-parents support project, which is so vital for families affected by PP.

111,000 people reached during Maternal Mental Health Awareness week

The Perinatal Mental Health Partnership’s Maternal Mental Health Awareness week ran from 1st to 7th May, engaging people throughout the world. APP shared content each day and ran events, including Laura Dockrill’s fabulous creative writing workshop, Peer Support sessions reaching the international community, and a research webinar in collaboration with the National Centre for Mental Health (NCMH), Birmingham University’s Institute of Mental Health and the University of East Anglia.

Thank you to everyone who shared our posts – our social media activity reached more than 111,000 people during the week.

We also launched some brand new resources:

A free online toolkit for antenatal educators to support the delivery of information about PP in classes, and our postpartum psychosis signs and symptoms poster available as a free A4 printed poster and as downloadable social media graphics.

Both have been very well received:

“Just wanted to say that your awareness campaign is great. I do talk about postnatal psychosis with my antenatal class parents-to-be but I know a number of them ‘switch off’ when we try to discuss scary subjects. I have supported one family where the mother developed PP”. - Antenatal class provider

“Thank you so much for these downloadable resources. I'm an NCT antenatal teacher and have been spending 5 mins on PP since you encouraged us to, but these resources will help make the message clearer”. - NCT antenatal teacher

British Medical Journal paper on maternal deaths

A new BMJ paper highlights the need for Government action to ensure that all health care professionals are trained to identify and manage risk of suicide in the perinatal period.  An early release of MBRRACE data for 2019-2021 shows that suicide continues to be a leading cause of death, accounting for 8% of all those who died in the first year after birth. Suicide due to postpartum psychosis can be prevented through early detection of the illness, rapid access to specialist inpatient treatment in a Mother and Baby Unit and support services (including peer support) through to full recovery and beyond.

Through NHS consultations this year, APP will call on the UK Government to make training in postpartum psychosis mandatory for all health professionals and first responders who come into contact with new parents.  Lives can be saved by ensuring all parents are aware of postpartum psychosis antenatally and training all professionals to recognise symptoms and access urgent specialist treatment.

The report highlights the continued inequalities in perinatal suicide rates - with social disadvantage and multiple adversity increasing risk significantly.  It is vital that our training reaches professional groups working in disadvantaged communities and that we continue to grow our communities outreach work.

Health professional training

We were delighted to deliver our first face to face APP workforce training day since the start of the Covid-19 pandemic COVID earlier this month with the Lancashire and South Cumbria NHS Foundation Trust (pictured above).

APP’s training is suitable for any professionals working with pregnant and postnatal women and families and draws upon cutting-edge research in postpartum psychosis and bipolar disorder and the real experiences of women and families. Our courses develop knowledge and confidence in identifying and managing risk, developing pregnancy and postnatal management plans, identifying early symptoms, and providing high quality support to women and families from preconception to recovery.

Booking for the next online workshop on Wednesday 15th November is now open on Eventbrite.

Workforce training days can also be commissioned by individual NHS Trusts for their teams. If you would like to learn more about APP’s training offers email training@app-network.org.

Photography help

If you’re a keen photographer in the Manchester area, could you give APP a couple of hours of your time?

We’re looking for someone to take some high-quality pictures of a training event we’re holding on Saturday 8th July.

Please get in touch (app@app-network.org) if you could help. Thank you.

News from regional projects

  • On Wednesday 22nd March, Lucy - one of APP’s Northern Ireland based volunteers - ran an awareness-raising session at a women’s group which was attended by local women as well as health and social care professionals.
    APP staff talked about our work and the need for a Mother and Baby Unit (MBU) in Northern Ireland. Northern Ireland volunteer Tara shared her experience of PP with the group, many of whom were previously unaware of the condition. Their feedback included:
    “…it’s such a hard thing to talk about. It’s helped me understand a lot better and what to keep an eye out for.”
    “…she is amazing and to be able to come and speak about her experiences so honestly will truly help women as there is still stigma around mental health.”
    Further sessions for other teams of professionals and women are being planned for Northern Ireland.
    Please follow and share our campaign posts for an MBU in Northern Ireland on social media using the hashtag #MumBabyTogetherNI. You can read more about APP’s Northern Ireland campaigning here and if you have experienced PP and live in NI, get in touch.
  • MMHA week Friday 12th May - Annette and Liva (pictured above), from APP’s Lancashire and South Cumbria project, attended an event at Blackpool Victoria Hospital for Maternal Mental Health Awareness day alongside Dad Matters, The Reproductive Trauma Service, maternity services and other organisations. A great opportunity to chat to with health professionals and share ideas about maternal mental health.
  • Mother and Baby Unit Open Day Saturday 13th May - APP joined Ribblemere’s open day held at the partner house on hospital grounds for families who had previously been at the MBU. It was lovely to see how well the mums were doing and how much the babies had grown. There was face painting, a treasure hunt and lots of tea and biscuits!
  • Birmingham-based Peer Support Facilitator, Soukaina, showcased APP’s work at the Chamomile MBU’s recruitment day on 22nd May. Around 200 people visited the event where Soukaina was able to talk about her work providing peer support to women, their partners and families at the MBU as well as across the community teams we work with in the Birmingham and Solihull area.

Media and books

Jocelyn, APP’s Peer Support Facilitator, talked about her work supporting mums at Ribblemere Mother and Baby Unit in Lancashire and South Cumbria NHS Foundation Trust’s experience of care week newsletter.

APP’s National Training Coordinator, Sally, explains why it is so important for families to have access to Mother and Baby Units in an article for Wales Online.

APP Ambassador, Catherine Cho, and Diverse Communities Outreach Worker, Zebunisa, talk to CNN about PP for a series on gender inequality.

Zebunisa talks to Tommy’s Pregnancy Hub about postpartum psychosis and antenatal education

Hannah, APP's National Coordinator for NHS Contracts and Regional Projects, spoke to Rochdale Online about the launch of our new partnership with Greater Manchester Mental Health NHS Foundation Trust (GMMH) to provide peer support at Andersen Ward Mother and Baby Unit.

APP’s Book Club will be meeting on Wednesday 21st June to talk about Lucy Nichol’s new book, Snowflake: Breaking Through Mental Health Stereotypes and Stigma. Book your free place on the Zoom meet-up here.

Fabulous Fundraisers

Fabulous fundraisers Flora and Mollie (pictured right) took part in the Hackney Half Marathon last Sunday, raising an awesome £3,439 for APP. They were inspired to run by their best friend who was diagnosed with PP after the birth of her son. They trained hard, had a brilliant day and crossed the line together – thank you so much to both of them.

If you feel inspired to take on a running challenge – email us fundraising@app-network.org – we have access to places in events all over the UK, including the London Landmarks Half, the Robin Hood Half, the Yorkshire Marathon, Cardiff Half, Great South Run and the Great Scottish Run, to name just a few. Get in touch if you fancy it!

It’s been our busiest May ever for Miles for Mums and Babies, with individuals and teams taking part all over the UK, covering hundreds of miles and raising thousands of pounds for APP.  You can find a mini round up here, read about Becky’s epic walk here (pictured above), Justine and team’s (pictured below) Cavehill Climb here; Nottingham MBU’s family walk here, Jenny Wren’s Rattle & Rhyme group five mile buggy push and toddle; the nationwide BleepKind team smashing their 400mile challenge; plus keep an eye out for lots more updates at the end of the month.

Look out for those purple APP t-shirts if you’re out and about – in the last few weeks they’ve been spotted at the top of Scafell Pike (sported by our amazing fundraiser Lee) and at Trentham Gardens (worn by the fabulous Georgina and Chris – pictured right) Let us know if you see one of our purple tops out in the wild!

Over the next few days you might have an even better chance of spotting one than usual as so many fundraisers will be out and about all across the UK – Hazel will be cycling an amazing 65 miles in one day from Dundee to Livingston; the North Wales Perinatal Mental Health Team will be heading up Moel Famau in Denbighshire; Alice will be starting her huge 71 mile swim; Jennifer and Lee are completing a 26 mile walk to Nottingham MBU on Saturday;  Shelley and friends will be running a 5K in Stormont, NI; and one of our youngest fundraisers, 10 year old Annie, will be completing her mile a day in May challenge in Cornwall.

The month might nearly be over but it’s definitely not too late to get involved – Miles for Mums and Babies can happen whenever and however you want it to! So, if you have an idea for your own Miles for Mums and Babies challenge, we’d love to hear from you!

Research

Exploring Black mothers’ experiences of postpartum psychosis and the role of racism

APP is supporting Emily Monger, a Trainee Clinical Psychologist at the University of Essex, who is exploring the experiences of postpartum psychosis for Black mothers, and how the role of racism and/or discrimination may have impacted women’s recovery for women. She is looking for women in the UK, aged 18+ who identify as being from a Black background and who have experience of PP to take part in her study. To find out more email em21633@essex.ac.uk.

New psychological intervention to support women and families who have experienced postpartum psychosis

A research team at the University of East Anglia, led by Dr Jo Hodgekins, would like to talk to partners of women who have experienced PP. The research team is interested in learning more about what ‘recovery’ means to people with lived experience of psychosis and their families and the kinds of issues people would like additional support with, and what this support might look like. For more information, email j.hodgekins@uea.ac.uk.

The role of sleep in the development of postpartum psychosis

If you have experienced PP, we are working with a team at Birmingham University to find out more about the role of sleep in the development of PP. Anyone who has experienced PP can take part in the pilot study which will involve filling in a number of questionnaires about their sleep patterns. For more information or to take part in the study, email: I.Morales-Munoz@bham.ac.uk or c.a.f.carr@bham.ac.uk

If you are a researcher and would like us to support your research, please get in touch at an early stage in planning: research@app-network.org.

Dates for your diary

APP Yorkshire virtual café group meet up, Thursday 8th June: APP regional café groups webpage.

APP Lancashire & South Cumbria face to face café group meet up in Blackpool, Friday 9th June: APP regional café groups webpage.

APP Lancashire & South Cumbria virtual café group meet up, Monday 12th June: APP regional café groups webpage.

APP Wales virtual café group meet up, Monday 12th June: APP regional café groups webpage.

APP Scotland virtual café group meet up, Tuesday 13th June: APP regional café groups webpage.

APP Lancashire & South Cumbria face to face café group meet up in Lancaster, Wednesday 14th June: APP regional café groups webpage.

APP London virtual café group meet up, Thursday 15th June: APP regional café groups webpage.

APP Lancashire & South Cumbria face to face café group meet up in Preston, Friday 16th June: APP regional café groups webpage.

APP Dads and co-parents virtual café group meet up, Wednesday 21st June: APP regional café groups webpage.

APP Book Club virtual meeting, Wednesday 21st June: Book here https://www.eventbrite.co.uk/e/app-book-club-snowflake-by-lucy-nichol-tickets-641366172487?aff=ebdsoporgprofile&keep_tld=1

APP Northern Ireland virtual café group meet up, Thursday 22nd June: APP regional café groups webpage.

APP Lancashire & South Cumbria face to face café group meet up in Blackburn, Tuesday 27th June: APP regional café groups webpage.

APP Sussex and Hampshire face to face café group meet up, Saturday 1st July: APP regional café groups webpage.

APP UK-wide virtual café group meet up, Wednesday 5th July: APP regional café groups webpage.

APP Muslim women’s virtual café group meet up, Saturday 22nd July: APP regional café groups webpage.

Upcoming conferences and events

Coventry & Warwickshire Perinatal Mental Health Awareness Walk, Sunday 11th June
5km walk at Ryton Pools Country Park. Organised by By Your Side. More information here.

Perinatal Mental Health Services: Improving access and support, Friday 7th July
Virtual conference focusing on improving perinatal mental health services as well as access and support during and beyond Covid-19. Book tickets here.

Improving Safety in Maternity Services, Thursday 13th July

Online conference focussing on a multidisciplinary approach to improving safety in maternity services following the Ockenden Review. Book tickets here.

If you would like to advertise your event here, please get in touch: app@app-network.org.

25 May 2023

Hazel's 65 mile cycle

Last weekend, APP volunteer Hazel Oates from Perth in Scotland took on a huge #milesformumsandbabies challenge for APP.

She cycled 65 miles from Ninewells Hospital in Dundee, to the general psychiatric ward at the Murray Royal Hospital in Perth, then on to the Mother and Baby Unit (MBU) at St John's hospital in Livingston - the journey she made when ill with postpartum psychosis.  She was joined along the way by friends and family who were also a big support to her on her recovery journey.

She said:

What an incredible day! It was a real full circle moment, the first time round I was driven to the hospital by a care assistant whilst completely wracked with panic, fear, and strange thoughts. This time I travelled there with some lovely friends and family under my own steam and felt like the journey was reclaimed.

She stopped in at the MBU during her cycle to say hello to staff and give some gifts to the mums there. Hazel has now raised an incredible £5,000 from over 230  supporters - showing how many her message has already reached.

She also bravely chose to share her own personal story with the local media to help raise even more awareness of the illness and the effects it can have. Read her sensitive and powerful article here.

She posted regular updates of her training (and pictures of the beautiful Scottish countryside) on her GoFundMe page - you can see more and add your support for her fantastic achievements here.

Thank you Hazel!

27 April 2023

A focus on fundraisers in Northern Ireland

Claire's half marathon in memory of her friend, Orlaith

Claire Tennyson is taking on the Hillsborough Castle & Gardens Half Marathon this July, in memory of her dear friend Orlaith Quinn.

Claire says:

This October will mark five years since Orlaith left us. Orlaith was charismatic, compassionate, fiercely loyal, full of sass and an absolute stunner. There are people in life you instantly connect with, and for me, she was one of them.

Orlaith’s passing was found by a court to be 'foreseeable and preventable' and at the time of the hearing the coroner also called for a Mother and Baby Unit (MBU) to be established in Northern Ireland.In the absence of a functioning Executive, the possibility of this being developed in the near future is very slim but APP are continuing to do all they can to push for reform.

In that context, I want to raise money in the interim for this very worthwhile charity to assist in the support they give mothers, mothers-to-be and mothers yet to come.

It is the biggest honour of my life to be a mother and for that privilege to have been so cruelly cut short for Orlaith, and her children, is heart breaking.

So please donate if you can, share to raise awareness, and most importantly of all spare a thought for Orlaith.  She is missed.

You can support Claire here.

Also taking part in the Hillsborough Castle and Gardens Running Festival is APP volunteer Lucy who will be challenging herself to complete the 10K event on the day. Find out more and add your support for Lucy here.

Miles for Mums and Babies in Northern Ireland

We have two teams taking on our #MilesforMumsandBabies Challenge in Northern Ireland this year.

On the 13th May, Justine Lewis and a team of friends will be attempting to climb Cavehill - a challenging 1,207ft peak just outside Belfast.

Justine was diagnosed with PP after the birth of her baby in 2019, and due to the lack of MBU in NI, she was separated from her newborn for 12 days. She is undertaking this challenge to raise awareness of the need for an MBU in the area.

You can add your support for Justine here.

Then, later in the month, Shelley Browne and a group of friends will be running 5k at Stormont to highlight the fact that 1 in 5 women will experience some form of mental health issue in the postnatal period.

Shelley had PP in 2021 and really wants to raise awareness of the need for an MBU in NI. She says: 'I truly believe with this facility, my treatment would of been less traumatic and I would have not have needed to be separated from my baby so early on.'

Support Shelley and her team here.

Not only are our NI APP volunteers getting out and about fundraising for us this year, they're also helping to raise awareness of PP:

Tara helps to raise awareness in Garvargh

On Wednesday 22nd March, one of our Northern Ireland based APP volunteers arranged for an awareness-raising session at a local Women’s Group she attends. She didn’t want to talk about her own experiences with PP herself, as not everyone is comfortable or finds it helpful to do that, which is fine. So, working with APP's events and fundraising staff, she invited along another local APP volunteer who very bravely talked to the group about her experiences of PP.

Staff from APP HQ also zoomed in to the session to explain more generally about PP, the work of APP and the need for an MBU in Northern Ireland. The Women’s Group, which included both local women and health & social care professionals, were very interested and moved to hear the first-hand account of a real women’s experience of PP, as many were previously unaware of the condition.

Very positive feedback was received from the group:

“…she is a brave young woman, speaking out to help others. Thank you.”

“Very brave lady to be able to talk about everything she has been through. Can’t have been easy to do that”

“…she was lovely and very good at speaking about her experience.”

“…she definitely was very good and spoke well, and we got a lot of knowledge about this condition.”

“…it’s such a hard thing to talk about. It’s helped me understand a lot better and what to keep an eye out for.”

“…she is amazing and to be able to come and speak about her experiences so honestly will truly help women as there is still stigma around mental health.”

The local health visitor and social worker were invited to the session and already are asking if further sessions can be put on around the area for other teams of professionals and women around Northern Ireland.

****

If you'd like to find out more about raising awareness or fundraising in Northern Ireland, or accessing our peer support group, please contact app@app-network.org 

Miles for Mums and Babies 2023!

A big shout out to everyone who has signed up for our Miles for Mums and Babies challenge so far! We’ve got more people than ever before ready to run, walk, swim and cycle hundreds of miles to raise awareness of PP and funds for APP.

Fundraisers all over the UK are taking part – here’s just a little taste of what’s going on during May…

In Scotland, Alice in Dundee (pictured right) will be swimming 71km in 28 days, and Hazel in Perthshire will be cycling 65 miles in a single day later this month.

In Wales the BCUHB perinatal mental health team in North Wales who have a team of 18 aiming to cover 154 miles during May; Laura in Cardiff who is planning to walk 50 miles over the month; and Heidi, a perinatal mental health nurse in Monmouthshire who is taking on a huge 1400 miles by the end of 2023 to represent the number of women who experience PP each year.

We’re delighted to have lots going on in Northern Ireland too, with Justine and Shelley getting friends and family on board to take part in their hiking and running challenges.

And across England there are individuals and teams taking part in all sorts of different ways, including…

Jennifer Dawson who’s taking on TWO challenges – one walking 26 miles with her husband Lee and another with her Rattle and Rhyme group – who'll be getting together to toddle 5k!

Jenny and Lee aren’t the only husband and wife team working together to reach a Miles for Mums and Babies target though, we also have Hannah and Ryan in Leeds planning to walk and run 156 miles - 120 miles for the distance their family travelled to the MBU and 36 miles for each day Hannah was in the unit; and Georgina and Chris who are aiming for 108 miles - the distance to and from their nearest MBU.

Most of those taking part have chosen a number of miles that has a meaning to them - Natalie (pictured right) has chosen to walk 60 miles as that represents the distance to and from her home and the MBU she spent time in - the journey her husband had to make to be able to come and see her and their baby.

Rebecca (pictured top) is planning a mammoth 43 mile walk in a single day, with the aim of raising £2400 - the number of mums who will have been diagnosed with PP in the two years since she herself was diagnosed. And she's very close to her huge target goal already!

We’re also really delighted to have the Blue Minds and BleepKind network involved this year, taking on an epic 318 mile challenge, which is already underway!

And having whole teams getting on board is just wonderful - including the Leicester Partnership Trust Perinatal Mental Health Team who are doing a mix of walking, running and swimming; and the Margaret Oates MBU in Nottingham who will be walking, pushing buggies, toddling, running, cycling and even getting their four legged furry friends involved to reach 318 miles (which is the distance from the most westerly MBU in the UK to the most easterly).

And this isn't even everyone who has planned to get involved - we'll keep posting updates throughout the month.  A HUGE thank you to everyone who has signed up so far and to everyone who has supported them already.

It's never too late to get involved in you'd still like to, just email fundraising@app-network.org and we'll send you a free Miles for Mums and Babies pack.

22 December 2022

Nicola’s story: "I had to leave my dream job to look after our baby."

My partner, Arina, was only in the MBU for a couple of months when she was discharged. It wasn’t that she was well enough to come home, it was because they said she wasn’t making any progress. Our baby had already been discharged, and I had taken time off work to be a full-time parent. But then when Arina came home as well, I realised that there was no more support available to us and I had to leave my job as an ambulance care assistant – something I had worked so hard for.

It was December when Arina gave birth to our daughter. I hadn’t realised that there was anything wrong at first. Our baby cried a lot, and we were told she had reflux so Arina was naturally anxious and, because I’ve got three older children, I just put it down to it being early days.

Arina had struggled with mental health problems prior to giving birth, and she had been diagnosed with BPD (borderline personality disorder) which is a serious mental health issue that can cause overwhelming, distressing and changeable emotions.

When I was due to return to work after our baby daughter was born, Arina mentioned that she was feeling really anxious. It was New Year’s Day and, because I was expected in work on the 2nd, I contacted Arina’s sister who lived a couple of hours’ drive away to ask if she’d come and stay, which she did. However, she contacted me at work saying she was concerned about Arina who was really struggling and distressed, and she suggested she could take the baby for a couple of nights so that we could get Arina some help.

I reluctantly agreed, and we contacted the crisis team, who came out to see Arina but they weren’t very helpful – simply suggesting that she take a bath, have a cup of tea and get some sleep. But the problem was she couldn’t sleep. And I could see that she was incredibly vulnerable.

We were due a visit from our health visitor so I collected our daughter from Arina’s sister and brought her home. I was at work on the day of the visit, but they called me and said I needed to come home otherwise they would need to remove our daughter. They felt that it was unsafe to leave Arina and the baby alone as they suspected Arina had postpartum psychosis. I went straight home as they tried to find an MBU to get the care Arina clearly needed. However, it was a real struggle because the crisis team maintained that she didn’t need help.

Eventually, we managed to get Arina in to see the GP – she was incredibly anxious by this point. The GP agreed that Arina needed help and, the following day, we finally got the call saying that she could be admitted to the MBU.

Because of Covid, I literally had to drop Arina and my daughter at the MBU door, which was heartbreaking. Leaving your partner and daughter, not knowing how they might settle in or where they were going to sleep, was really difficult. I had also developed a really strong bond with our baby so it was difficult being separated from her as well having previously spent 24 hours a day with her.

The MBU was about a 45 minute drive away from our home as well, so I was having to work full time and travel every day for the one hour a day visit, and it was emotionally and physically draining.

After about a month, I was shocked when the MBU suggested our daughter should come home with me. Arina had mentioned that the MBU staff were still carrying out most of our daughter’s care, and they suggested that Arina needed some time on her own. I was worried because I needed to work to bring the money in, and also because I thought Arina should have the opportunity to bond with our daughter.

I arranged time off work, thinking it was just for a few days but, as time went on, nothing was mentioned about any plans for our daughter to return to the MBU. I was taking her back and forth every day to see Arina and then looking after her the rest of the time on my own.

I had been working with the Ambulance Trust and had only just started the job in the October, so I was devastated at having to take so much time off. Eventually, I was told by the MBU that Arina needed to be referred to an adult psychiatric ward for further treatment but that they couldn’t find a bed, so she would need to come home. We were told at that point that we would get some childcare support to enable me to go back to work part time but nothing materialised.

So, after two months in the MBU, Arina was also home, and I left my job and had to claim benefits to keep us going. Arina applied for PIP (Personal Independence Payment) but that was eight months ago and we still haven’t got it so we are relying on basic benefits – other than £5 a week for baby class. We just feel as though we have been left completely on our own.

It’s quite difficult, as a same sex couple, to access support because everything for partners seemed to be targeted at ‘dads’ or ‘fathers’. I couldn’t see anything that felt it might include me. However, during a conversation with an old friend who I discovered had herself been in an MBU, she told me that she’d seen a story on the APP website about a same-sex couple so I had a look straight away and reached out to Ellie from the peer support team.

Since meeting Ellie, I’ve been put in touch with another female couple and we’ve been in contact regularly, texting back and forth, and it’s been a lifeline. It’s just so good to have someone you can actually relate to.

There are still challenges we are facing because of our situation though. For example, because I’m not on the birth certificate I have to adopt our daughter, so being classed as a full-time parent I currently have the responsibility but not the legal rights, so I can’t even open a bank account for her or register her with a nursery. This is really tough because Arina is still struggling with her mental health as well. And, on the flip side, the social workers have told us that, once I adopt my daughter, they will no longer be able to support us at all – so it feels like a lose-lose situation.

The thing that keeps me going, however, is reading the stories of others, and speaking to Ellie and the couple that APP put me in touch with. While everyone’s experience is different and unique, there is always something you can relate to. It makes such a difference knowing that you’re not alone.