All posts by Jessie Hunt

APP supports expert panel in call for postpartum psychosis to be recognised by diagnostic manuals

An international panel of women's mental health experts has, this month, issued a call for postpartum psychosis (PP) to be formally recognised in diagnosis classification manuals.

Professor Veerle Bergink of the Icahn School of Medicine at Mount Sinai and Erasmus University in Rotterdam, led a panel of prominent PP academics, including APP's Professor Ian Jones and Trustee Dr Clare Dolman, in developing a consensus statement. Professor Bergink said: “We argue that with its specific onset, phenotype, phenomenology, risk profile, and prognosis, postpartum psychosis has distinct prevention and treatment recommendations.”

The team have spent several years pulling together clinical and biological evidence and consulting patient groups, to demonstrate that postpartum psychosis deserves official recognition and a new classification should be created within the bipolar disorder chapters.

Although the term is used widely by clinicians, researchers and people with lived experience, official diagnostic manuals currently force doctors to classify postpartum psychosis under a range of different names in different subsections of the classification manual, leading to confusion for patients, clinicians and researchers alike.

Dr Clare Dolman, King’s College and University of Edinburgh, Trustee of Action on Postpartum Psychosis, said: “The case for postpartum psychosis being recognised as a distinct condition in the diagnostic manuals is clear and is supported by the wealth of evidence provided by the Expert Panel. Both as a researcher in this area for 15 years - and a woman who has suffered a postpartum psychosis - I do not understand the reluctance to make this straightforward but much-needed change.”

Dr Jess Heron, CEO, Action on Postpartum Psychosis, said: “This is a momentous occasion. If these recommendations are accepted by the team who oversee the Diagnostic and Statistical Manual (DSM) in the US, it could lead to significant improvements in patient care and research quality globally.”

The full consensus statement is available here.

The issue of diagnosis is a confusing topic for many people affected by PP and their families (partly caused by its absence from diagnostic manuals). For help and support, please reach out to APP’s peer supporters, or join a discussion on the APP forum.

Hollyoaks work with APP for new issue-based storyline involving Cleo McQueen

Hollyoaks will explore Postpartum Psychosis (PP) when Cleo McQueen, played by Nadine Mulkerrin, struggles with her mental health following a traumatic birth with her first child, Joseph.

APP colleagues and storytellers have advised on the Hollyoaks storyline which will hit the screens this week.

Cleo went into early labour at 28 weeks pregnant and, assisted by Dodger (Danny Mac), was rushed to hospital. After giving birth, Cleo haemorrhaged and required emergency medical attention.

Baby Joseph needs to stay in the Neonatal Intensive Care Unit due to being premature. Cleo, who fell ill after childbirth, is later given the green light by doctors o go home. Red flags start to appear when, at first, she doesn't believe her baby is hers.

This quickly progresses when Cleo starts losing track of time and feels guilty for struggling to produce milk. Cleo’s girlfriend Sienna Blake (Anna Passey) moves into the McQueens house to help support the new mum.

The storyline follows Cleo and her support system - Sienna, Dodger, and her McQueen family – as they convince her to seek help when they start noticing her concerning behaviour.

Cleo will be treated in a general psychiatric ward – she’s not able to go to a Mother and Baby Unit due to Joseph being in the NICU unit.

For this issue-based storyline, Hollyoaks worked with APP colleagues and storytellers, consulting with the cast members involved and advising on the storytelling process.

Nadine Mulkerrin, who plays Cleo McQueen, has said “It’s been a new challenge taking on the role of motherhood and the difficulties that being a new mum can bring, especially the strain it can have on your mental health. We had a consultation with APP [Action on Postpartum Psychosis] whilst filming this storyline, and it was helpful to hear other people’s experiences - my heart breaks for poor Cleo.”

Dr Jess Heron, CEO, Action on Postpartum Psychosis said “Responsible portrayals of PP on popular TV shows such as Hollyoaks are invaluable. With greater public awareness, partners, friends, family members and frontline health professionals will be more able to quickly spot the signs and seek specialist emergency help as soon as possible. We’re grateful to Hollyoaks for playing a part in awareness raising and for their diligent approach to producing a sensitive and accurate storyline.”

Hollyoaks is now available to stream from 7am Monday to Wednesday on Channel 4 or watch live on E4 at 7pm.

Shubina’s story: Finding your ‘tribe’ in recovery is so important 

It was 1997 when I got married to a man I didn’t know. I was a very naïve 23 year-old, and wasn’t ready for marriage. So, there was the shock of that and then the shock of marrying someone from a different culture who spoke a different language. Worse still, as the marriage progressed, he became abusive and controlling. 

 I fell pregnant quickly. My pregnancy was difficult – I didn’t put on much weight, I was sick all the way through and my husband’s abuse went up a gear. I turned to my mum and dad for support, and they were just amazing. With them by my side I was able to leave and I finally felt safe. 

 The final part of my pregnancy was more stable, although I did have a long and exhausting labour. My mum stayed with me throughout and, eventually, my beautiful daughter was born. I went home to Mum’s but, two days later, my husband turned up, banging on the door. I was holding my baby and he threatened me while she was in my arms. It was frightening and I think this was the trigger for my postpartum psychosis (PP). 

 I couldn’t sleep, I was too afraid to eat and I became extremely paranoid. After about five days of no food or sleep the hallucinations started. My younger brother tried to encourage me to eat, but the paranoia I was experiencing was too strong. 

By this point I was in the midst of a psychotic episode and I didn’t trust any healthcare professionals, convinced that they were going to hurt my baby.  

 My family didn’t know what to do so my mum went to the doctors and asked for help. A couple of doctors came out to the house but they didn’t know what was wrong with me either. This was a time when there wasn’t much awareness of PP.  

A family friend at the time was a nurse who suggested it might have something to do with giving birth so my dad took me to the mental health unit where I was voluntarily admitted. There was no Mother and Baby Unit at the time so I had to leave my baby at home in the care of my amazing sister who took time off work to look after her for me. 

A headshot of Shubina smiling to camera with long dark brown hair and a black top

I was in the mental health unit for a total of three weeks. I remember when I first got there, still in the psychosis, I was confused as to where I was, and my superhero - my dad - would visit me every day, even though he wasn’t allowed in to see me, but he would just sit in the grounds to be close to me. 

After I was discharged, my dad took all the family on holiday. He said we’d all been through so much we needed to get away. Tragically, whilst away, he suddenly died after being in a car accident. It was horrific. I had fully recovered by now, but feared I might relapse. I didn’t though. In fact, I haven’t experienced an episode of psychosis since.

I gained so much strength from my dad and in life he really helped me to recover. 

Since then, I had another baby, a son, and after he was born I became a single mum again and have been ever since. When I was pregnant the second time I had a lot of healthcare support in the run up to the birth and I didn’t get unwell again. In fact, I’ve never had to have any mental health support since first having PP. 

Driven by my own experience, I went back to college and retrained as a psychotherapist so I can help others who have experienced mental illness. I’ve also started volunteering for APP’s Muslim Women’s Support Group. There was so little awareness when I experienced PP that it took me 25 years to find peer support through APP – which I discovered after a Facebook ad popped up on my feed.  

The Muslim Mum’s Cafe Group is so important on many levels, but what is particularly important for me is that, as human beings, and this goes back to the beginning of time, we’ve always lived in tribes.

And for a Muslim woman, because our experiences can be unique to our culture, finding other women who look like us, who sound like us and who have been through some of the things we have is invaluable.

There’s a huge cultural aspect to PP in my community and stigma is very much alive and well, so being visible and sharing my story is so important because many Muslim women still don’t seek help.  

I know that having PP is a really scary time, but I want others to know that there is help out there, you’re not alone and the APP community is here for you. And, like me, you can recover. 

Aimee’s story: I wish I could have spoken to someone else like me when I was in hospital

In the years  since I gave birth I felt completely overwhelmed by shame and guilt – until I met someone else who had experienced postpartum psychosis (PP). Getting that peer support from APP helped me come to terms with what I had been through - and marked the first time I felt any degree of normality since giving birth.

I had been in hospital for almost a year after becoming unwell with PP. There were times when I honestly didn’t think I would get better. In fact, I think if I could have spoken to someone else who had been through it when I was in hospital I might have found hope and recovery sooner. But today, me and my son George have the absolute best bond, I’m back at work and I’m even managing George’s junior rugby team. There was a time when I never could have imagined this life.

Aimee standing at the back with black vest top, red hair and sunglasses, next to a man in a grey t-shirt on a rugby field. In front are six children in green rugby shirts.

My pregnancy was generally fine – up until the point that I was induced, got sepsis and had to have an emergency C-section. I was in hospital for about five days and I didn’t get much sleep. As a single mum, I lived with my mum at the time and, when I first brought George home, she noticed something was really wrong with how I was behaving. It was as though I went completely round the twist – believing that the girl from The Exorcist was living in my wardrobe and thinking that I was going to die or George was going to die. I also stopped my mum from touching George because I believed she was poisonous and that the poison would seep out of her blood and get into him. I wasn’t sleeping and I was excessively cleaning and panic buying things. I was also talking manically and was very hyperactive.

It was a strange situation because I didn’t think there was anything wrong with me, it was everyone around me, all my family members, who noticed that there was something very wrong.

I agreed to go back to the maternity unit for a check up and was assessed in hospital by psychiatrists. I was incredibly manic at the time and becoming really out of control. They gave me a lot of sedatives and put a section on me, which they then lifted. That was when I was admitted to a Mother and Baby Unit (MBU).

A couple of hours later the sedatives wore off and I completely flipped out. I was restrained and injected and, from that point on, I barely remember a thing. It was like I woke up in hospital and it was next year.

A close up of a baby being held by his mum, Aimee. She has her hair tied back, glasses and a white vest top on.

During that period I was moved between the MBU, a psychiatric intensive care unit and two other psychiatric hospitals. I wasn’t responding to medication, so it took a few months to find the right one and come round from the psychosis. But for some time I was basically like a zombie in a chair - dribbling, non-verbal, unkempt and putting on a lot of weight. During this time my mum looked after George but she also looked after me – advocating on my behalf at the hospital and asking for more support.

Being in hospital was traumatic. At one point I was on a mixed ward and I was punched in the face and sexually assaulted by a couple of the male patients there. In December of last year I started having really distressing nightmares about my experience there.

Luckily, the all-women hospital I was moved to was where things started to improve. The clozapine was working and the environment was much better – the staff were lovely and being among all women patients and having more homely areas and activities to take part in really helped. I started to get snapshots of memory back. They let me have more visitors as well, and at one point I was able to go home for a night at a time. They also used to help me shower and help me do my hair and make-up, bringing a degree of normality back into my life.

Saying that, my recovery has been quite slow. I was on clozapine for two and a half years after being discharged and my follow-up care wasn’t great – possibly because it was during the pandemic. I was never offered any therapy and I had put on ten stone while in hospital, so I was physically unfit as well.

I eventually came off the clozapine in 2022 and was put on antidepressants but I wasn’t sleeping and kept waking up with night terrors. Eventually, I found a private therapist who was fantastic and helped me talk through my trauma and work on my self esteem.

She helped me come to terms with what had happened and helped me to understand that it was an illness – it was nothing that I had done wrong.

George, s young boy with short hair and a purple/blue t-shirt stood with his mum, Aimee, with her hair tied back and wearing sunglasses

It was around that time I found APP, too. I got in touch with Ellie from the peer support team and took part in my first zoom café group. I was then matched with Krystal as my one-to-one peer supporter who was also really great. It was the first time I had met anyone else who had experienced PP and who had been through a similar trauma. Talking to others who have been there really gives you hope and helps you feel less ashamed and alone.

I have since been diagnosed with bipolar but it hasn’t stopped me living my life. Speaking with others who can relate was a big turning point. And my mum has been a wonderful support and the therapy really helped me too. I think it’s important to reach out for that help because locking it away is the worst thing you can do. You need to process it and you need to find hope to help you recover more quickly.

I feel so lucky that me and George have such a great bond now – he’s such a mummy’s boy.

I was worried it might never happen because we were separated for such a long time and it took a little while but we got there.

I just want others to know that you can be in the absolute worst place ever, but it does get better. It’s hard work and it takes time but you can do it. You just need to learn to reach out and ask for help. If you feel like your meds aren’t right - say so. If you feel any warning signs creeping back in - go and get help. Plodding along and saying that everything’s OK when it isn’t is the worst thing to do. I never had that hope which is why I struggled so much and for so long. I genuinely believe that if I spoke to someone like me when I was at my worst it would have made a huge difference. Everyone needs to be able to see the light at the end of the tunnel.

Rory’s story: It was supposed to be the best year of our lives but we ended up living apart for five months

2023 was supposed to be the best year of our lives, having our first child in Spring and getting married at Christmas time.

Within 12 weeks we went from the feeling of reassurance that the 20 week scan gave us, to living apart for nearly five months when Megan was admitted to a Mother and Baby Unit (MBU) following a mental health crisis.

I'd heard of the baby blues and postnatal depression but I'd never heard of postpartum psychosis (PP), which happens in around 1-2 in 1000 pregnancies. I also didn't know the most common cause of death of women within a year of having a child was suicide, a risk I didn't think we would be managing after becoming parents for the first time.

While PP most often occurs following birth, our case was slightly different and things started to go wrong while Megan was still pregnant. She became more and more anxious about the pregnancy, worrying that something awful was happening and that she couldn't feel any movement. We were visiting A&E regularly, being sent for yet another scan, waiting for hours to be told everything was fine and being asked if this was our first child. People suggesting we were worrying for no reason became our  norm.

However, we were told she didn’t meet the threshold for perinatal mental health support when we finally got an assessment. This cycle went on for weeks with Megan's anxiety becoming worse by the day, and her severe sleep issues led to stronger delusional beliefs. It was only when Megan became suicidal that I feel like we were finally listened to.

At 32 weeks pregnant she was sectioned. It was awful for her and I will never forget the sadness in her eyes as I had to say goodbye. As difficult as that was I knew that her safety, and our unborn child were the priority. A few weeks later, our beautiful son was born prematurely and he spent some time in a Neonatal Intensive Care Unit, while I spent my days visiting him in one part of the hospital and Megan in the other. Three weeks later was the first sign of hope I had, as Oscar was discharged and able to move to the MBU to be with his mummy, and supported by the most wonderful nursery team who looked after my family outside of visiting hours and when I returned to work.

Coming back to an empty flat for the best part of five months broke my heart but mums and their babies need each other and that's one of the reasons MBUs exist. Sadly,  there still isn't enough of them across the UK and none at all in Northern Ireland where we planned to have our children. I spent a lot of time researching postpartum psychosis and finding the stories on APP’s website and forum gave me hope - as did the MBU staff reassuring me that "she will get better".

A photo of a young boy with blonde hair and beige short-sleeved shirt
Rory and Megan's son, Oscar

When Megan and Oscar came home I told myself if I could get through those months, everything else would be a breeze. And whilst things slowly got better, my personal resilience was shot, just as I was finally feeling like a proper dad for the first time and not relying on hospital staff. In truth the last year and a half has not been easy as Megan continued to recover at home, and we have both had our mental health challenges.

Megan continued to engage in the professional services even when she didn’t want to. Her  hard work, support from our family who visited regularly, our patience for each other and the love of the most amazing little human have got us to where we are now. Now we are looking forward and building memories as a family and have a lot be thankful for. Sadly not everyone makes it this far, but those who access the support we have are able to have a much better chance.

Seeing how far Megan has come in the last 6 months makes me proud. She kept a lot of her feelings and experiences inside as there is a lot of stigma associated with mental illness, but she has come through that and no longer feels shame. She has now shared her experiences openly with friends and family, many of whom had no idea what she went through, as well as social media, and that's what's inspired me to write this.

The work of APP is critical in raising awareness including their campaign to open Northern  Ireland’s first MBU, and educating medical professionals in maternal mental health. For anyone reading this who is going through something similar, don’t lose hope as things really can get better.


Rory is running the London Marathon for APP in April 2026. Find out more and add your support for his run here.

Urgent need for an NI Mother and Baby Unit under the Spotlight: APP says funding is urgent to save lives

Media release: 3rd June 2025
For immediate release

Today’s BBC Spotlight investigation into perinatal mental health care in Northern Ireland shows just how urgently a Mother and Baby Unit (MBU) is needed to save lives and prevent life-long trauma, national charity Action on Postpartum Psychosis (APP) says.

Northern Ireland is the only part of the UK without an MBU, a specialist inpatient mental health treatment centre where mothers can be admitted with their babies for care and treatment. Instead, mums are admitted to acute psychiatric wards for non-specialist treatment, separating them from their babies.

APP estimates that around 100 women a year will require hospital admission for severe mental illness in the year after birth, including about 35 with postpartum psychosis, a severe and life-threatening mental illness that can develop suddenly. Suicide is the leading cause of maternal death in Northern Ireland.

While APP welcomed the announcement more than six months ago that Belfast Trust will take forward plans for NI’s first MBU, we are concerned that we still haven’t seen ring-fenced funding, a firm timeline, and interim measures.

Dr Jess Heron, Chief Executive of Action on Postpartum Psychosis said:

“Tonight we heard from mums and their families who urgently need better mental health care. It’s a story APP hears all the time from the mums who attend our postpartum psychosis Northern Ireland peer support group who, like Shelley, have been separated from their babies and admitted to psychiatric inpatient wards for treatment.

“And too often we hear the stories of tragedy, with lives lost - a story we all heard tonight from Siobhan Graham about her daughter Orlaith Quinn.

“We’ve waited 16 years since Michelle O’Neil and the Stormont Health Committee agreed that Northern Ireland needs a Mother and Baby Unit, but only now are we seeing real plans for this to progress. And we keep waiting. We have a site chosen, but there still isn’t a business plan. The Minister has told the Assembly he hopes to greenlight it this calendar year, but we need a commitment that this will happen. 

“We are concerned that in reality, it could be many years until an MBU opens. Years when women continue to be separated from their babies for treatment by non-specialists; where they don’t receive appropriate physical care in the weeks after giving birth; where they miss out on vital bonding with the baby; and where families struggle to provide care for babies. Years in which women continue to die by suicide because they aren’t getting the care and treatment they need.

“We’re cautious about calling for interim measures, as there is always a risk that what should be short-term solutions become long-term, or even permanent. But there needs to be a plan while we wait; we know there are women dying, and being needlessly traumatised in non-specialist units.

“Spotlight visited the Exeter MBU which is a great example not just of how an MBU supports recovery while keeping mum and baby together, but is also an example of how an interim unit has been just that – not ideal, but a safe and appropriate space where mums can be with their babies while they recover from severe postpartum mental illness while a permanent unit is built.

For more information or to arrange an interview contact Liz Morrison on 07711 558 296, liz.morrison@me.com / Lucy Nichol on 07771 967 032, lucy@app-network.org

Anyone affected by postpartum psychosis, now or many years ago, can access support from APP, including an NI Peer Support Group for mothers who have experienced it at any time. Email app@app-network.org for more information. For more information on postpartum psychosis and support available go to www.app-network.org

Background

Northern Ireland is the only part of the United Kingdom that doesn’t have a Mother and Baby Unit (MBU), which provides specialist inpatient care for mums experiencing severe postnatal illness and their babies. Instead, mothers are admitted to general acute psychiatric wards for non-specialist treatment, separating them from babies.

An MBU provides specialist care for both mum and baby. Mental health teams with specialist training are able to provide the best care, for example: prescribing drugs that are suitable for use in the perinatal period; supporting the mother-infant relationship and the development of parenting skills; providing adequate postpartum physical care and appropriate facilities (such as nappy changing, milk fridges, play areas, safe places for older siblings to visit).

One in 5 women will experience mental health problems during pregnancy or after birth. Around 1000 women each year in Northern Ireland will develop a severe postnatal illness. This can include postpartum psychosis, severe depression and anxiety, and obsessive compulsive disorder. Between 84 and 122 will need admission to hospital. Suicide is the leading cause of maternal death, but with the right care is almost always preventable.

Postpartum mental health problems, in particular postpartum psychosis, can come on and escalate very quickly. This is not rare. The charity, Action on Postpartum Psychosis, who run a peer support group for women in NI who have experienced PP, estimates that 35 women in NI will develop the illness each year. While women with bipolar disorder are more likely to develop postpartum psychosis, 50% of cases are ‘out of the blue’, to women who have experienced no previous mental health problems. 

The risk was highlighted at the 2022 inquest into the tragic death of Orlaith Quinn, who took her own life on a maternity ward while experiencing postpartum psychosis. The Coroner called for an MBU in NI.

According to the Confidential Enquiry into Maternal Deaths, suicide was the leading cause of maternal death in the first year after birth in the UK.

Facts about postpartum psychosis

  • Episodes of severe mental illness, such as mania or psychosis, follow 1-2 in 1,000 deliveries.
  • In Northern Ireland, around 35 women a year experience postpartum psychosis.
  • An average-sized maternity unit would see 8-10 cases of rapid-onset psychosis following childbirth in a year. Around 1,400 cases occur each year in the UK.
  • Postpartum Psychosis is a devastating illness for mothers and families.
  • It strikes at a time when families are full of expectation. Mothers feel loss, guilt, and responsibility for missing out on the early months of motherhood. Fathers become responsible for a newborn or are separated from their families. They do not know if their partners will fully recover.
  • Postpartum Psychosis can occur in women from all social classes, occupations, and educational backgrounds. Often, it occurs 'out of the blue' to women without any previous psychiatric history.
  • The stakes are high if the illness is not identified sufficiently early, or is poorly managed, both in terms of maternal outcome (including risk of suicide) and child outcome (including rare and tragic cases of infanticide).
  • According to The Confidential Enquiries into Maternal and Child Health (MBRRACE-UK https://www.npeu.ox.ac.uk/mbrrace-uk), suicide is the leading cause of maternal deaths. Half of these suicides occur in mothers suffering the acute onset of psychotic illness. Completed suicides are the tip of the iceberg in terms of ‘near miss’ events occurring to women who develop Postpartum Psychosis.
  • Postpartum Psychosis is eminently treatable, but services must respond quickly and appropriately to these psychiatric emergencies. Episodes have a rapid onset, usually within days of delivery, and may escalate to full-blown psychosis quickly - within hours or days.
  • Although episodes of Postpartum Psychosis are among the most severe illnesses seen in clinical practice, Postpartum Psychosis also has one of the best prognoses.
  • Acute symptoms are similar to those of bipolar disorder and may include: extreme elation or euphoria, rapid mood changes, or depressed mood; the rapid onset of unusual beliefs; visual and auditory hallucinations; extreme confusion; and behaviour can be very bizarre. Episodes can be very frightening for women and their families.
  • The causes of Postpartum Psychosis are unknown, but the dramatic hormonal and biological changes that occur at childbirth are thought to be involved. There is some evidence of a genetic component to the illness and of a link with bipolar disorder. One in 4 women with a history of bipolar disorder experience Postpartum Psychosis following childbirth.
  • The majority of women are substantially recovered within a few months, but full recovery and coming to terms with the illness may take 12 months or longer.
  • Recovery is a difficult and lengthy process. Factors that contribute to these difficulties include: limited availability of information about Postpartum Psychosis and recovery; isolation caused by lack of visible others who have experienced the illness; poor awareness in the general public and media; the stigma associated with experiencing mental illness - particularly at this time when women have high hopes of new motherhood; difficulties coming to terms with behaviour during the illness; limited availability of specialist psychological and practical support following admission to facilitate coming to terms with the episode, looking after a baby, rebuilding relationships, and mothering confidence.
  • Misguided portrayals in the media can contribute to mothers' feelings of isolation and to difficulties in discussing their experiences with other mothers. Often, when women or their partners search the internet for information about their illness, alarmist stories about mothers harming their babies are the first they encounter.
  • Postpartum Psychosis is not simply a more severe form of postnatal depression. In fact, many mothers with Postpartum Psychosis do not experience any symptoms of depression at all; rather, they experience extreme elation, spirituality, confusion, and quickly lose contact with reality. The majority of women, therefore, are unable to seek help for themselves, and others must obtain help for them.

Frankie’s story: I was lucky to get a bed on an MBU – every woman with PP should have access to one

By Frankie Roe

My friend said I’m the world’s worst patient and she is absolutely right. My brain doesn’t cope well with being told what to do or being stuck indoors, so I keep it happy by being active and spending lots of time outside. So, if I’m being honest, I absolutely loathed being stuck in an MBU. But I don’t know where I’d be today without the high standard of care that I received in there.

It was after giving birth to my firstborn that I became unwell, although, when I look back on it, I was struggling with anxiety for a long time before I even got pregnant. I found the pandemic really tough - not the fear of being ill, but the fear of being confined. I was also struggling with anxiety around the pregnancy, as I miscarried the first time which was really traumatic. Due to covid restrictions my partner waited in the corridor while I sat on my own waiting for our scan to confirm the pregnancy had ended. He was briefly allowed in before being sent back outside.  We weren’t offered any counselling or support.

I got pregnant a few months after the miscarriage and hated every second of the pregnancy. Even after the 12-week scan when they told me my baby was well and wriggling around, I couldn’t relax. I became convinced the baby had stopped moving and was going to die.

I told myself that when the baby arrived I’d be able to relax, but my daughter wasn’t gaining weight and seemed so vulnerable. And so after the birth my fears about dead babies intensified.

I wasn’t sleeping, I was having to drive to the other side of the city for health appointments because of the pandemic and I was exhausted. But I kept powering through. When I couldn’t sleep at night I was cooking or painting furniture at 4am, and I was putting my daughter in her baby sling and going for four-mile walks across the moors. Because I’m such an active person these things didn’t stand out too much, but in retrospect they were definitely extreme - even for me.

I saw my GP and was diagnosed with postnatal depression and given antidepressants – and things rapidly deteriorated.

After starting antidepressants, I was cycling through rapid mood swings – being absolutely manic one minute and telling my partner I felt like jumping off a bridge the next. Plus, my sleep at this point was pretty non-existent and I became convinced that it was because of the colour of my bed sheets. I was terrified that I might never sleep again and the lack of sleep would kill me. I became increasingly possessive over my baby and refused to let my partner take on his share. I was hearing babies crying when I did manage to step away from her for a shower or to rest but would come downstairs in a panic to find her sleeping peacefully.

About ten weeks post-birth I mentally hit a cliff edge, the crisis team was called, and I was admitted to a Mother and Baby Unit (MBU).

I already knew what an MBU was because they came up in my Google searches when I was trying to find out what was wrong with me. I knew something wasn’t right - I just didn’t know what - so I agreed to go in voluntarily. My partner later told me that had I not agreed, I would likely have been sectioned the following day.

It was a weird experience because it was during the pandemic, and I had to stay in 24-hour isolation upon arrival, but it was good for me because I was given lorazepam and finally slept.

They immediately took me off my antidepressants and started me on antipsychotics and the psychosis improved really quickly. Still, I didn’t enjoy being in there. I know people need MBUs and hospital care, but I resented being inside and feeing like my life was controlled – and all the pandemic restrictions on top of that were tough, too. But I knew it was the best place for me.

Although the psychosis subsided quite quickly, I had really bad anxiety and my sleep patterns were all over the place. Even after discharge, I had recurrent periods of insomnia and I lost a lot of confidence. I found myself deferring to my partner when I’m naturally independent and stubborn.

I was back at work 10 months after giving birth and, although in hindsight I probably wasn’t fully ready for it, my manager was great and I felt really supported.

After having PP, I didn’t think I’d have another baby. But after a few years I felt ready to try.

I became pregnant really quickly and have been lucky that the second time around I didn’t become mentally unwell – but I also knew I had lots of NHS professionals on the case if I did.

I feel so grateful that, when I needed it, that specialist care on an MBU was there for me – because the idea of being separated from your baby on a general psychiatric ward is inhumane. I was told there were only eight beds for Yorkshire and the Humber so I was incredibly lucky to get a place when I needed it – and that’s why we need more MBU beds available for anyone who needs them. You hope you won’t need one but if you do become seriously ill, it’s definitely the best place for you. It will probably be hard but what would be a damn sight harder is sitting at home and letting it get worse and worse.

That’s why I think, if you get the choice to go voluntarily, you should absolutely take it. You might feel as though you’re losing your freedom at first, but you’ll get your freedom back so much sooner if you accept all the specialist help on offer. And when you look back on it, you’ll feel good about making that choice and accepting that help. I know that being on a mental health unit doesn’t make me a crap parent – and that accepting the help was the best thing to do for me and my baby.

How to get involved with Maternal Mental Health Awareness Week

We're proud once again to support Maternal Mental Health Awareness Week (5 - 11 May) – an important campaign founded by the Perinatal Mental Health Partnership.
The theme for this year's campaign is “Your Voice, Your Strength” – something that resonates deeply with us at APP, reinforcing the work we already do to amplify the voices of women and families affected by PP.
During the week you'll see us sharing stories and further highlighting the information and support we have available so no one has to go through this alone.
There are plenty of ways you can get involved, too, so we've outlined some of the activities we'll be taking part in on social media below:
  • Just prior to the main week, on Friday 2nd May, we have Pregnancy and Postpartum Psychosis Awareness Day (#PPPAwarenessDay). We’re also opening bookings for FREE training for health professionals.
  • On Monday 5th May, the theme is “Conversations That Matter” – so we’ll be having open and honest discussions around maternal mental health, and launching new resources to support families.
  • On Thursday 8th May from 7.30pm, we're hosting an online creativity session that you're welcome to join. It will be a relaxed online session where you can share your creative work (art, poetry, or something else) related to postpartum psychosis, and chat about what it means to you.
  • On Friday 9th May, it’s the ‘Perinatal Positivity Pot’ day where we'll be focusing on stories of hope and recovery and, at 10am, we're excited to be going live on Instagram with Eve from the Perinatal Mental Health Partnership and Shaheda and Sally from the APP team.
  • Plus, on the same day at 12.30, we're thrilled that author and APP ambassador, Laura Dockrill,  is going to be running another online creative writing session for our lived experience community. No experience is required - all you need is something to write with and on, and to book ahead!
Remember, to get involved and be kept up to date with further information:
  • Follow @ActionOnPP on social media (Facebook, Instagram, X, LinkedIn, TikTok, YouTube, Threads and BlueSky). Every like, comment and share helps spread awareness.
  • Share your story or your thoughts and tag us.
  • Book ahead for the Thursday evening creativity session and the Friday lunchtime writing session.
  • Join our free APP Network to connect with others and get regular updates, just visit our website and tap ‘Get involved’.
  • Sign up for our Miles for Mums and Babies challenge this May to help raise awareness and support families affected by postpartum psychosis.

Nurse makes miles matter for maternal mental health

Laura Davies, a Mental Health Nurse at Betsi Cadwaladr’s Perinatal Mental Health Service, is running almost 70 miles from Ysbyty Gwynedd’s Maternity Unit to the site of the new specialist mental health Mother and Baby Unit at the Countess of Chester Hospital to raise money for APP and Awyr Las: The North Wales NHS Charity’s Perinatal Mental Health fund.

In Winter 2025 the all-new Seren Lodge Mother and Baby Unit will be opened at the Countess of Chester Hospital following a unique collaboration between Cheshire and Wirral Partnership NHS Foundation Trust, Mersey Care NHS Foundation Trust, Betsi Cadwaladr University Health Board, NHS England and NHS Wales.

For the past few months, Laura has been training hard for her incredible challenge whilst raising almost £1,400 for her chosen charities.

Talking about her challenge, Laura said: “We know that admission to a mental health unit can be a scary and stressful time for many of our families and we want to be able to offer additional support that goes over and above what the NHS can fund to anyone who may need it during this time.

“This is why during the first week of May, to coincide with Maternal Mental Health Awareness Week, I have decided to embark on this big challenge in order to raise funds for our service and Action on Postpartum Psychosis.”

Once open, Seren Lodge will become a specialist eight bedded mental health unit to support perinatal mothers, babies and their families from across North Wales, Cheshire and Merseyside.

The unit will provide a safe and therapeutic space for women to receive care and treatment and will enable mothers to remain with their babies whilst they recover, whilst also supporting partners and families during this time.

A spokesperson for Awyr Las: The North Wales NHS Charity said: “Laura is taking on an incredible challenge by running almost 70 miles from Ysbyty Gwynedd to the Countess of Chester Hospital to raise funds for Perinatal Mental Health at Betsi Cadwaladr, and also to raise awareness for maternal mental health as we enter Maternal Mental Health Awareness Week. The money Laura raises will go towards funding over and above support for women and their families during challenging times. Good luck, Laura!”

As the UK’s national charity dedicated to supporting women and families affected by postpartum psychosis – for which admission to a Mother and Baby Unit, like Seren Lodge, is paramount - APP is delighted to be included in this impressive fundraising challenge.

Felicity Lambert, National Fundraising Coordinator, APP, said: “We’re wishing Laura the best of luck for her incredible ultra marathon this weekend. We’re all in awe of her taking on this massive challenge to raise funds and awareness of APP and for Seren Lodge Mother and Baby Unit. The funds she raises for APP will help us support even more women and families affected by postpartum psychosis – a severe but highly treatable maternal mental illness. Thank you, Laura!”

To support Laura’s fundraising challenge, you can donate to both Awyr Las: The North Wales NHS Charity and APP here: Team fundraising for Awyr Las and APP is fundraising for APP

Iqra's story - I kept pushing myself like I had a superpower

When a mental health professional told me that I was really poorly - but that I could be treated - I stopped running away from it. I finally knew that there was something wrong with me, that it wasn’t my fault and, with the right help I could get better. It was the most reassuring thing anyone had said to me since I gave birth to my twins.

It was 2023 when I became unwell with postpartum psychosis (PP). I didn’t actually realise I was unwell at the time, but now I can reflect on it, I can pinpoint when it all started. And I believe I started to become unwell almost straight after giving birth.

I already had three children when I was pregnant with twins. My husband and I were both really excited. We’d recently moved house and had it renovated, and I was due a c-section, so everything felt a bit more planned. But we certainly didn’t plan for me becoming so unwell. In fact, neither me nor my husband had ever heard of PP before it affected us.

After giving birth, I didn’t really feel a connection to my new babies. My husband was obviously busy trying to look after our other three children, one of who has special needs, and I just felt a bit overwhelmed. I was struggling to feed the twins and I was really low on iron, which meant I found it hard to stay awake and I kept losing consciousness.

I just couldn’t admit that I needed help and I needed to slow down.

After having a blood transfusion I was able to go home to be with my family. I was excited to be back at home but I found it really difficult. I’d be up in the night with my newborns, and my husband would be up in the night with our son who is autistic. The workload of running a home and looking after five children just became too much – but every day I kept telling myself that I was fine – I could handle it. I just couldn’t admit that I needed help and I needed to slow down.

As exhaustion started to get the better of me, I started to believe some strange and supernatural ideas. The house we live in is my husband’s late grandad’s, and I started to believe that his spirit was around me and that I could hear his voice. I didn’t feel scared at first – in fact I felt quite positive about the experience. But as time went on, I started becoming agitated as well, snapping at everyone and yet I still refused to admit that I was struggling and needed help.

I set myself really high standards, trying to breastfeed both my twins and trying not to give them dummies which was really tough. Then, when they were eight weeks old, I broke down, feeling defeated. I gave them dummies and felt really disappointed in myself.

I was losing control of my own mind.

From that point on I wasn’t sleeping at night, even when the twins were asleep and I had that time and space to myself. I remember that I would look at their faces and feel scared. My mind was playing tricks on me and, when I looked at them, their faces looked disfigured. I was losing control of my own mind.

I definitely still had some kind of grasp on reality, however, because I knew that if I said out loud what I believed and what I was thinking people would assume I was crazy. So I kept everything to myself.

My delusions and hallucinations started becoming more intense at this point. I created some kind of male figure in my mind who was telling me that I wasn’t attractive and that my hands and my hair were awful. I became obsessed with these thoughts, spending all night brushing my hair and washing my hands over and over. Then the delusion started to spiral out of control, telling me to take my own life, and that my family would be better off without me.

As a Muslim woman in the Asian community, I’d heard people talking about black magic and I started wondering if somebody had performed black magic on me. I had no understanding of maternal mental health problems, and I’d certainly never heard of PP. I was so burnt out and exhausted by this point that I did eventually take an overdose to try to end it all.

My husband found me after I fainted and called an ambulance. The paramedics took me to hospital, but I was so out of it I kept trying to run away, to run back home. Eventually, someone from the mental health team came to speak to me and that was the big turning point for me.

That’s when they told me I was unwell, that I needed help, and that I could get better. Because I had tried to take my own life, I was admitted to an MBU (Mother and Baby Unit) but at this point nobody knew about my hallucinations and delusions as I kept it all to myself – so nobody knew I had PP.

After admitting to the hallucinations and delusions and getting the antipsychotic medication the psychosis started to recede really quickly.

As soon as I was admitted I was given sleeping pills and they worked wonders. However, they certainly didn’t cure me and it wasn’t until I finally admitted to the staff about my psychotic symptoms that I was given the right medication to get me on the road to recovery.

Still, it took a while to get fully better. I took so many medications, at one point I was taking 14 pills every day! My anxiety was sky high and I felt really overwhelmed and panicky and was unable to control the amount of oxygen I needed so I kept passing out.

But after admitting to the hallucinations and delusions and getting the antipsychotic medication the psychosis started to recede really quickly.

You hold back because you think your children will be taken away or you’ll be locked up forever, but for me, being honest was the turning point. Letting the health professionals in on what was really going on was the only way to get me well.

Now I’m recovered I want to share my story because I know how reassuring it is to meet others who have been through what you have. Motherhood is really hard anyway, but adding maternal mental illness into the mix makes things incredibly difficult. One thing I have learnt, however, is that your mind is really important and, if it needs rest, you need to let it rest. Plus, if you are becoming mentally unwell, the only real way out is by being honest about it and asking for help.

Before I was able to open up, I didn’t really socialise in the MBU, where I would stay for three months in total. But when I started speaking to the other mums in there and realising I wasn’t alone and I certainly wasn’t crazy, I started to feel so much better – speaking to others definitely helped me in my recovery. Now, I hope I can play a part in helping other women and families too.