Sisters challenge themselves for APP

Laura Kirkpatrick and her sister Helen Long are undertaking several challenges this year to raise funds for APP.  They have completed a Tough Warrior event, Laura has run the Great North 10K and both of them will be running the Great North Run in early September.

"I experienced postpartum Psychosis after the birth of my second child Lucy.  She was 6 weeks old when I was admitted to the Beadnall Mother and Baby Unit in Morpeth. It was there that I received excellent support from the APP peer support worker Sharon Bell. Sharon was there to support me and my family, speaking often on the phone with my mum to help ease her mind that I was going to recover. She was always there for me when I needed someone to talk to and she was very reassuring and supportive. It was also reassuring looking at the information on the website and reading stories from other mums who had suffered and recovered from postpartum psychosis."

To raise money for APP my sister and I completed Total Warrior in June which was hard but really fun! We will also run the Great North Run in September. We wanted to raise money for APP to ensure they can continue to provide the support to other mums suffering with postpartum psychosis and we have raised over £1400 between us so far.'

Thank you so much to both Laura and Helen for taking on these challenges and thank you to everyone who has donated to support them so far.

 

I received excellent support from the APP peer support worker Sharon Bell. Sharon was there to support me and my family, speaking often on the phone with my mum to help ease her mind that I was going to recover.

You can read more about their stories and support Laura and her sister Helen here:

www.justgiving.com/fundraising/laura-kirkpatrick3

www.justgiving.com/fundraising/helen-long15

Gina’s story: "My paranoia got worse on the psych ward – I only started to recover when I was reunited with my baby".

I was taken by ambulance to an acute psychiatric mixed ward without my baby. I’d been having delusions since a couple of days after giving birth and at home things had got much worse. It was only when I was taken to Bethlem MBU and reunited with my baby that I finally started to trust people and get on the road to recovery.

My pregnancy was straightforward, a very lovely pregnancy. But I was overdue so things didn’t exactly go as planned and I ended up having an emergency c section. Unfortunately, both my baby and I had an infection so we ended up being on the postnatal ward for a week rather than the couple of days I was expecting. I had severe insomnia and I was taking strong pain medication and I think this might have all played a part in me getting unwell.

So I was in pain, medicated, emotional and exhausted. But I think the turning point was when I received a message from a friend with some bad news about another close friend of ours, which triggered some strange thoughts and symptoms in me and some extreme paranoia.

For example, I noticed that when someone sent me a message, my response wanted to say happy new year or happy Christmas and I couldn’t understand why I wanted to write it. I also believed that I was being tested as to whether or not I was a good enough mum. And every time there was a bleeping sound on the ward I thought it was because I had done something wrong.

I filled in a form to say that I wasn’t feeling great mentally, but as my paranoia got worse, I retracted the letter. I asked for it back and ripped it up. And then, even though I wasn’t well, at times I appeared, on the outside, to be fine. So it was decided that I was going home with my baby.

When I finally got home, all the paranoia ramped up and I never slept. I was stuck in the house and there were people coming and going – midwives, health visitors, family members.

It got to a point where I was really confused. I couldn’t give the midwife the correct information, and when my family visited from America I was confused about who was who and started imagining that my niece was my long lost daughter. Then I started going through phases believing that my son had died – so much so that when I went to register the birth I was convinced they were going to hand me a death certificate.

I just questioned everyone and everything felt really trippy, and I became obsessed with things like clocks, so my mum removed all the clocks from the house.

My family, realising there was something very wrong, tried to work together to get me some help. Eventually I was visited by paramedics and then a doctor who I think prescribed me an antipsychotic – they were trying to treat me at home at that point.

Meanwhile, my mum was doing her own research and found out about postpartum psychosis – so, in a way, it was my mum who diagnosed me! But I became quite aggressive and frightened, so they had to call the police and the paramedics, and I even had to be handcuffed in order to be taken to hospital.

They took me by ambulance to an acute psychiatric mixed ward without my baby.

The ambulance ride was frightening because I was convinced I was in grave danger and I thought all the medical professionals were fake – I thought they were really all terrorists.

So when I finally got into hospital I refused to eat or sleep or take medication. I was paranoid about everyone and everything.

Nothing was working and I was in full-blown psychosis, at the peak of my illness, and without my baby. Everything seemed crazy to me - but I was the one being crazy. I started doing morse code on the window, and became paranoid about different colours – anyone who had a pen or who was wearing anything in the colour blue I simply couldn’t trust.

As I wasn’t getting any better, they decided to take me by private ambulance to Bethlem Royal to the MBU there.

Thankfully, not long after getting to the MBU, things started to change.

I don’t know if I felt more comfortable because there were more women there, and because my son was able to come and stay with me, but I started trusting the staff and taking my medication.

I think it was also because there was more of a normal kind of atmosphere in the MBU and there was a really good programme with specialists who knew all about mums and babies. I had lots of help learning how to make a bottle up and how to change my baby’s nappy – something that was invaluable because, with PP, everything seems ten times harder. Plus, knowing my son was safe and close by meant I was able to start sleeping. I started getting a good eight hours sleep!

I stayed in the MBU for nine weeks.

I 100% believe that if I had gone in the MBU straight away I would have started my recovery straight away.

I think my parents and my husband were given the option of an MBU at the start, but they didn’t really understand what it all meant so I really wish there was more awareness about specialist services and why they’re so important.

Now I feel I’ve fully recovered. Since my son turned seven months I’ve been so active with him, visiting friends, going to baby groups. I love being a mum and I feel like I’ve been making up for lost time – doing all the normal things new mums do.

I’ve also gone back to work and I now work with a charity that helps people with learning disabilities and mental health problems. And I’ve started a mother and baby group to help provide peer support and a place for mums to be able to talk freely with other mums.

While the whole experience of having postpartum psychosis – and the anxiety and postnatal depression that followed - was frightening, in some ways I’m glad I experienced it. It’s helped me to relate to people, and to provide support to others because of my lived experience which is really valuable in my job, too.

I feel that its so important for me to be able to share that there is light at the end of the tunnel, there is hope - even when you’re seriously unwell like I was.

 

Jenny and family's fundraising for APP 10 years on

Jenny Stevenson and a team of family members spent a month clocking up some ‘Miles for Mums and Babies’ 10 years after Jenny experienced postpartum psychosis (PP).

Jenny experienced PP after the birth of her first son, Toby, in 2012. Admission to the Brockington Mother and Baby Unit (MBU) in Stafford, prompt specialist treatment, and good support from family and friends all aided a relatively quick recovery. Peer support, via APP’s online forum and reading personal experiences and stories on APP’s website, subsequently played a huge role in helping Jenny to come to terms with what had happened. Jenny attended an APP volunteer event the following year and trained as a peer support volunteer at the beginning of 2015. She is now working as one of APP’s National Peer Support Coordinators.

Jenny wanted to mark the 10 year milestone by raising some money and awareness for APP. She decided to take on a ‘Miles for Mums and Babies’ fundraising challenge between the dates she was an inpatient on the MBU (exactly one month) in 2012. The initial target was to jog and walk 37 miles during the month, the distance from her home to the MBU. With help from family members, the hope was to double this distance and cover the return journey.

Over the course of the month, Jenny’s team (Jenny, Toby, Jenny’s mum, sister and brother-in-law) jogged, walked and swum 375 miles between them. Each mile completed as part of this challenge reflects the journeys mums, babies, partners and families travel to be together, whilst mums receive care in Mother and Baby Units. 375 miles reflects five return journeys from Jenny’s home to the MBU in Stafford, a journey travelled by her husband every day during her stay.

The team raised £1275 for APP and by asking people to donate via the Big Give, which match-funded donations during the month of July, APP received double this amount – a total of over £2500.

“I’m delighted to have raised so much money for APP and that the money raised via the Big Give will be used to help grow the peer support service. Peer support is vital to so many women and families affected by postpartum psychosis – I see first-hand the positive difference it makes.”

Double your donation with The Big Give

Double the donation, double the impact!

We’re very excited that APP have been selected to be part of The Big Give campaign as part of their Women and Girls fund 2022.

This means that throughout July, every donation we receive via our campaign page on The Big Give website (www.bit.ly/APPTheBigGive) will be doubled, thanks to match funding from the DCMS’ Tampon Tax.

So, if you’d like to donate to APP during July, we would be so grateful – and your donation would have DOUBLE the impact – you donate £5, APP will receive £10; you donate £25, APP receives £50 and so on.

Our target for the month is to reach £5,000 in donations – which would mean a total of £10,000 raised. This would make such a difference to our work – and we are particularly keen to increase our offer of peer support - setting up more face to face café support groups, particularly in areas of the UK that are currently underserved. We’d also like to try and reach and support more women from Black, Asian and minority ethnic communities; and to provide additional support for partners and parents of women who develop postpartum psychosis.

We know our peer support service is vital, life changing, and in some cases, life-saving - giving women and family members with experience of PP the opportunity to meet and talk with others.

We're so grateful for your support – we are a small charity, and as such every single donation we receive really does make a big difference to the work we do.

If you aren’t able to donate more at the moment, we totally understand – but please do share our campaign with others if you can.

That link again is www.bit.ly/APPTheBigGive - only donations through that page will be doubled. You can also find shareable posts on our social media feeds.

You may also be interested in our ‘The Big Bake’ campaign that we’re running alongside The Big Give – find out more here...

'Pom-ti pom pom!', a mindful crafting session on Thursday 30th June, 7.30pm-9pm

You are invited to join 'Pom-ti pom pom!', a mindful crafting session on Thursday 30th June, 7.30pm-9pm.

This friendly workshop will take place virtually over Zoom, led by APP volunteer Claire Griffiths. Join us and learn the really handy and satisfying technique of how to create lots of gorgeous fluffy pompoms in one go!

Find out more and reserve your free place: https://www.eventbrite.co.uk/e/app-workshop-pom-ti-pom-pom-tickets-348112001367

Claire says: "I suffered from Postpartum psychosis (PP) in 2016 following the birth of my daughter, I work part-time as a crafts facilitator and throughout the pandemic delivered crafts workshops to people isolated at home via zoom.

I find crafting to be the perfect mindful activity to get some time for myself away from the bustle and stress of family life and I found making things to be a helpful part of my recovery from PP early on. I love to share these skills with other people and I love the idea of sharing them and spending some time virtually crafting together with other mums who've suffered PP.

Pom-poms are such a joyful little thing to create and you will be able to make many using the technique I am going to share; you can then make them into anything you please!"

Ailania’s story: "I was diagnosed early and treated in an MBU – others are not so lucky".

I’d had some experience of mild depression in my late teens and early 20s, but nothing could have prepared me for becoming seriously unwell with postpartum psychosis.

Being pregnant for the first time, my husband and I were like fish out of water. However, it was a really straightforward pregnancy for the most part, and I felt in a good place mentally. We went along to antenatal classes – where there was a brief mention of postnatal depression – but I didn’t really consider it could be an issue for me as I felt really well.

However, towards the end of my pregnancy I became more anxious. I was overdue and I felt disappointed in myself because of that. Eventually, I went into labour naturally but had to have a forceps delivery because my contractions were inconsistent.

I was in so much pain and so exhausted when my little boy was born, I felt like I was in a state of numbness. I just felt so relieved that the birth was over.

After a little time in hospital, I started to feel really confused. I was given charts to fill in about feeding times and I just couldn’t get my head around them, which I found really distressing. I put it down to just being really tired.

We were discharged and I went home with my husband and new baby, and things seemed OK for the first couple of days. But then everything went downhill really quickly, and my husband suggested we go back to the hospital to speak to someone.

From my point of view, everything was really confusing at that point. I hadn’t slept for about five days straight, and my thoughts were just running wild – but there was no cohesiveness to them. I had this overwhelming sense that something terrible was going to happen, and I kept thinking that I might die, so I was in a state of constant panic. I also started to exhibit some quite unusual behaviour at that time, for example, I was dressing in winter clothes even though it was springtime, and I was obsessively cleaning the house.

That’s when my husband noticed that things weren’t right and phoned the hospital.

He shared his concerns and was advised to bring me straight back to the maternity ward.

By this point I had become obsessed with colours and the need for things to be colour co-ordinated in order for everything to be OK. I remember a nurse carrying a mug that was the same colour as her coat and I remember telling her that it made me feel better because the colours matched. I had this awful fear of something bad happening and I felt I had to prevent that by surrounding myself with matching colours.

I also started believing that I might have died, or that my baby might have died, and that the other parents in the hospital were actors and their babies fake. It felt as though we were in a film set or something, but I also remember thinking the TV set was sending messages to me and I was having auditory and visual hallucinations by then as well, and often not being able to recognise my own baby.

I was seen by a psychiatrist really quickly and she diagnosed me straight away with postpartum psychosis, explaining everything to my husband and mother in law and referring me to the nearest Mother and Baby Unit (MBU).

I was so lucky to be sent almost immediately to the MBU, which was only about 25 miles from our home in Edinburgh.

I’m from Belfast, and there is currently no MBU in the whole of Northern Ireland, so I knew that other mums in my situation wouldn’t have been so lucky.

My symptoms started to decrease during my time on the MBU, where I spent around seven weeks altogether. Initially I was under 24 hour observation, but then, as I started to get better, I was able to start building back my confidence and gaining my independence again.

After being discharged, I was still under the care of the MBU, and was regularly visited by an occupational therapist and a community psychiatric nurse – the same one I had met on the MBU.

Sadly, when my son was around seven months old, I became unwell again – but this time with depression. The first time I was admitted to the MBU it was on a section but this time I volunteered my admission, because I knew I needed help to get well and bond with my baby – and I knew that the MBU was the best place for me.

Getting a bed on an MBU twice meant that I was doubly lucky and it meant I was able to recover quickly and strengthen my bond with my baby. With the help of the staff at the Unit, I began growing in confidence as a mum and my love for my son really grew.

It was only during my recovery that my diagnosis was properly explained to me. At the time of my illness, I wasn’t able to process anything at all. But I remember feeling really upset because I’d never heard of PP and I felt really alone in it.

As I started to do my own research on what this illness was, I stumbled across APP and realised that I wasn’t alone at all – all these other mums had been through what I had. It made everything a lot easier to process.

Since my illness I’ve had a diagnosis of anxiety and PTSD, so I’ve just finished cognitive behavioural therapy for that, which has really helped.

Now I want to raise awareness of PP so that other families feel less alone, because it’s such a traumatic experience to go through. However, I do feel lucky that I got the diagnosis - and therefore the specialist care I so badly needed - really quickly.

Women need MBUs because they work. It’s frightening to think that some places, like my home of Northern Ireland, still don’t have them.

Chamomile MBU Team take on Snowdon for APP

Good luck to the Chamomile Mother & Baby Unit team from Birmingham who are taking on an epic challenge to help raise funds for APP this weekend - a team of 30 staff from the unit will be attempting to summit the highest mountain in Wales - Mount Snowdon!

Plasters, insoles and plenty of snacks are packed and the team (which includes APP trustee Dr Giles Beresford) are raring to go!

Keep an eye on our social media feeds for updates during the weekend and you can show your support for their amazing efforts here - they're so close to their fundraising target! www.justgiving.com/fundraising/chamomile-mbu

We're really excited to see how they get on and can't wait for pictures from the summit! Wishing the whole team lots of luck!

Dads chat webinar, 12.30-1.30pm, Friday 17th June 2022

APP Dads chat webinar
12.30-1.30pm, Friday 17th June

 

Join us for a lunchtime chat about postpartum psychosis and dads' mental health with:

  • Simon O'Mara, APP Partner peer support coordinator
  • Hugo White, APP Ambassador
  • Professor Ian Jones, a world-leading expert on postpartum psychosis
  • Mark Williams, organiser of International Fathers’ Mental Health Day
  • Guest hosted by Kieran Anders from Dad Matters

Free, book ahead or just drop in: https://APPdadschat.eventbrite.com

This session will be recorded. Register for the event and we will email the recording afterwards.

...

In partnership with

International Fathers’ Mental Health Day

Dad Matters

Action on Postpartum Psychosis statement: tragic news of Orlaith Quinn in Northern Ireland

We are deeply saddened by the tragic news about Orlaith Quinn in Northern Ireland. Our thoughts are with Orlaith’s family at this awful time. Our peer supporters are here for family members and anyone else who has been affected by postpartum psychosis.

Orlaith Quinn

Postpartum psychosis affects 1-2 in every thousand women who give birth in the UK. It should always be treated as a medical emergency and the recommended care involves immediate access to a specialist Mother and Baby Unit - of which there are currently none in Northern Ireland.

Sadly, there still isn’t enough awareness of postpartum psychosis - not only amongst the general public, but also amongst health professionals. This needs to change. Around half of women who experience postpartum psychosis have experienced no prior mental illness. Spotting the signs can be life-saving.

Action on Postpartum Psychosis works with health professionals to provide short training sessions that can significantly impact early diagnosis - helping professionals know when, where and how to signpost to specialist services. We also have a wealth of information available online to anyone who needs to find out more about the illness and its symptoms.

If postpartum psychosis is diagnosed quickly and treated appropriately, women make a full recovery from this severe and life-threatening illness.

Our trained peer supporters are here if you’d like to talk to someone. Find out about Action on Postpartum Psychosis peer support or contact us at app@app-network.org.

Find out about Action on Postpartum Psychosis training for health professionals.

Read about Action on Postpartum Psychosis research and campaigns.

Tonna Trekkers complete their #MilesforMumsandBabies Challenge!

A team of 17 from Uned Gobaith Mother and Baby Unit in Swansea Bay, Wales, have completed their APP #MilesforMumsandBabies Challenge this month - covering over 1000 miles between them during May.

In their first week they covered over 300 miles, initially doing the majority of them separately but they went on to organise a series of group walks - with a team of them even making it to the top of Pen Y Fan - the highest peak in South Wales!

Bethan Williams, Nursery Nurse at the unit, has been keeping us updated on their progress.

She says 'It's been lovely for us all getting out in the fresh air and has been a great team building activity, we have all enjoyed encouraging each other.  Between us we have walked, run, cycled and ridden 1018.4 miles across Wales, England, Norway and Greece.  We have had a number of group walks and our children and pets have enjoyed joining in with us.

We are thrilled that we have raised over £1,200 for APP and are looking forward to taking part in more challenges over the years. It has been a lovely event for us to do to celebrate our first year as a team.'

 

Huge congratulations to the team on their amazing achievement and a massive thank you from all at APP!

You can still show your support for them at: www.justgiving.com/team/TeamTonnaTrekkers