National Lottery Awards Update - Weds 29th July

VOTING ENDS AT MIDNIGHT!

Well here it is – the final update.

Unsurprisingly it’s been the busiest week of the campaign. It’s also been the wettest. Volunteers braved the downpours and over 500 people voted for APP at the Sheldon Countryside Festival, where the team also received support from the Lord Mayor of Birmingham. 130 people voted at Sacred Heart and Holy Souls church and families also voted at holiday events organised by the Pavilion Church at Bournville and at indoor play centres Tiny Terrorz and Funatticz.

Thanks to the tremendous efforts of our members we have had media coverage in the Londonist, the Yorkshire Post, the Birmingham Mail, and articles in the Exeter Express and Echo and the Sidmouth Herald (repeated in the Midweek Herald).

Social media has been remarkable. Just in the past week (to yesterday) our content has reached over 1.07 million individual Twitter accounts, with 2.7 million impressions (the total number of tweets that have appeared). The figures for the week before were 320k accounts and 642k impressions. The most retweeted was a tweet from the NSPCC and we’ve had more help from Denise Welch as well as tweets from Britmums and lots of Twitter activity around the Londonist piece.

Voting is open until midnight. Remember that everyone in your household can vote with their own email address or phone number.

We have done our very best and, win or lose, have made a massive step forward in raising awareness. When voting has finished and we’ve all had a chance to have a sit down and/or a meal without a laptop, phone, voting forms or leaflets in hand, we will be getting together to have a look over all that has been achieved in the past five weeks. Our task then will be to work out how best to build on the incredible work everyone has done. Thank you all.


 

Tracey completes 10 mile walk for APP

charity-walk-tracey-RobinsonIn June 2015 my sister-in-law joined me in a 10 mile charity walk through the Kent countryside. It was an exhausting but rewarding day, with the added bonus of plenty of sunshine and beautiful views. I selected APP as my chosen charity as the work they do for women and their families is so important. When I suffered postpartum psychosis myself 11 years ago there was very little user-friendly reliable information, and no access to peer support. It was a lonely and terrifying place to be, and the stigma surrounding mental illness really hindered me in properly engaging in the treatment and support that I was offered. I count myself very lucky to have achieved a good recovery.  The information produced by APP, their anti-stigma work and online peer support forum provides amazing support for women who experience this distressing and dangerous illness. I hope that the £180 I raised will be a really worthwhile contribution to their work.

Congratulations and heartfelt thanks to Tracey for completing the walk and raising funds too!


 

National Lottery Awards Update - Weds 22nd July

IT’S THE LAST WEEK OF VOTING!

We’ve come a long way but we really need a final push. APP’s volunteers, supporters and friends have been doing an amazing job. We’re tired, our fridges are empty and our laundry baskets are full, but we know that we’re making a difference, not just by getting votes but by reaching large numbers of people who’d never heard about PP before and increasing the understanding of maternal mental health issues.

On TV we’ve seen postpartum psychosis feature on the Victoria Derbyshire show on BBC Two on Monday, on Channel 4 news also on Monday and on ITV news on Tuesday (the news pieces in response to Healthwatch England’s report on unsafe discharge from hospital).

It’s been a busy week on Twitter - the NSPCC mentioned us to their 167k Twitter followers and we’ve had tweets and retweets from the Heart of England NHS Trust, Prof Louis Appleby, MGC Hayles, Mental Healthy, Mental Elf, and Love Brum. Many of the Maternal Mental Health Alliance organisations have also tweeted. Our first 50 tweets this week are at 48075 impressions, and still counting (as it goes Friday to Friday). Our #endPPmyths video was the main story in the Postpartum Post. Organisations who’ve supported us include the Institute of Health Visitors, PIP UK, PSI, Praeclarus Press, PNP Support New Zealand, National Centre for Mental Health and APPAH.

We’ve also been going out and about. We got a really positive response at the Good Hope Hospital Community Fete on Saturday. And a supporter simply knocked on doors around his local area and asked people to vote – and collected 250 votes! Amazing!

With a week to go please think what else you can do to help. Please share the message with friends, contacts, and colleagues and please email, tweet large organisations and post the link to vote on large and influential Facebook groups. Check your friends HAVE actually voted (not just said they WOULD!). Take a few paper voting forms and drum up face to face votes at whatever you’re going to – big family BBQ, village fete, car boot… We can send you forms (and official APP T shirts to wear!). We will be at Sheldon Countryside Festival on Sunday so come and say hello if you are there.

A week today will be the final campaign update. We need a sprint to the finish line – and to know we have done all we can.

Ollie's half marathon 'thank you' for APP support

Ollie ChapmanThis year I will be running the Leicester Half Marathon on Sunday 25th October. A complete turnaround for someone who hated running six months ago and couldn't run a mile. A 10k assault course for charity in April whetted my appetite and the next step beckoned.

I feel I really have to push myself this year, I'm not getting any younger, I want the physical challenge but the ultimate goal is to represent my heroic wife and the support APP have provided to both of us. Giving something back is of paramount importance to me.

My wife encountered PP in summer 2013 after the birth of our daughter and then suffered a particularly nasty relapse in summer 2014. I encountered the comforting arms of APP during and after the relapse. You were there when I needed you and when my wife was well enough, when she needed you. The chance to speak to volunteers and other families going through the same experiences was and still is invaluable as we try to make sense of it all; To learn that you are not alone, despite the apparent destruction of your 'world'.

APP has been incredibly supportive of me as a husband, the carer in the bad times. A mentor, a chat on the forum and a chance to shape future care with discussions and taking part in research with Cardiff Uni. If I could grade your support, A*, every time.

Thank you, Ollie.

<Click here to sponsor Ollie>


 

National Lottery Awards Update – Weds 15th July

Three weeks down – two to go

We’re past halfway, and it feels like we are at a critical point. We’ve had re-tweets from Home-Start UK, Solihull Police, lots of Birmingham-based MPs and TV presenter (and mum) Professor Alice Roberts. And auctioneers Sotheby’s have asked all their staff to vote for us!

We’ve also had some unhelpful responses from a variety of organisations, from online sites for parents, to publications for GPs – who typically say ‘we have information on postnatal depression, so we don’t need it on postpartum psychosis’. To which we say – yes you do need it. It is so important that families and GPs are properly informed about maternal mental health.

Next week there should be some press coverage and a tiny bit of TV featuring APP. Monday’s episode of ‘Victoria Derbyshire’ on BBC Two/BBC News Channel 9.15 to 11am is all about mental health. Keep an eye on our social media for more info on our media coverage.

Please continue your support. Anyone you know you’ve not asked to vote yet – please ask! Do you work for an organisation with a large mailing list or a high circulation newsletter which could put something about voting for us in it? Please ask them. Might you take one of our ‘voting by paper’ forms along to your choir practice, sports team training or work coffee room? Do you have relatives overseas you could ask to vote (votes from abroad still count!). We need more votes and everyone voting is someone who may find out about PP who had never heard of it before – and that can only be a good thing.

Thank you, thank you, thank you to all who are working so hard to achieve all we can before the 29th!

National Lottery Awards Update – Weds 8th July

Two weeks down – three to go

Work has continued apace to get the word out about the National Lottery Awards – and to get people voting! We’ve added another 500 likes on our Facebook voting page (and are now at 2400) and added 100 new likes on our Action on Postpartum Psychosis main Facebook page. Writer Jodi Picoult retweeted to 111 000 followers, and we had a retweet and support from Norman Lamb. We’ve had support from the South West Strategic Clinical Network and Postpartum Support International. We were mentioned in an article in the Telegraph online yesterday highlighting the need for better mental health services for women in pregnancy and after birth. We’ve also managed a huge mailout to 450 members, sending them our guides, information about our services and a letter about our lottery nomination, with voting information. Special thanks to volunteers who spent a very hot couple of days in the APP office stuffing envelopes.

Thank you to all the individuals working so hard – too many to name here – let’s keep on going.

National Lottery Awards Update - Weds 1st July

One week down – four weeks to go!

We’ve made an amazing start to the opportunity given to us by the National Lottery Awards by being nominated to become Health Project of the Year. In the first week of voting we’ve had 1.9 thousand Facebook likes registered on our National Lottery voting page, and been mentioned on Twitter by Ruby Wax, Fern Britton, Denise Welch and Marian Keys. We’ve had support from organisations such as The Marce Society, Bipolar UK, Time To Change, and the Royal College of Midwives. Organisations have tweeted directly to around 187,500 followers, and there are nearly 44,000 followers of organisations who have retweeted our tweets. And in the middle of a very busy week we had a wonderful Family Fun Day where families and friends got together to enjoy a fabulous picnic, play games, chat, raise money for APP and meet others to share experiences of and interests in postpartum psychosis. Oh and of course to vote!

Well done and thank you everyone for a tremendous start – let’s keep up this momentum over the next four weeks.

Make a difference in mental health - vote for Action on Postpartum Psychosis in the National Lottery Awards! http://bit.ly/voteforapp

Exploring PP through art

PicMonkey CollageA group of 13 women with experience of PP travelled to the beautiful area of Dittisham in Devon as guests of Lara Lloyd, the owner of Coombe Farm studios, in May 2015. The object of the weekend was to explore, through art, the experience of Postpartum Psychosis. 

Many women who have had experience of PP do not feel they have a voice. Such is the burden of guilt, of confusion, of isolation and traumatic memories of PP. Feelings that are largely due to years of needless stigma of maternal mental illness. Thus to meet up with other women (perhaps the only time that some will have met another woman who has suffered an episode of PP) was of immense value. The feelings of acceptance, ease and support throughout the weekend is hard to put in to words, but it was a truly incredible bond shared between the amazing participants we had on the workshop.

"The opportunity to talk to others has been incredible, such a powerful healing opportunity."

"The experience of talking with other women was very profound and moving. It was a really safe place – I made some amazing connections. There was huge connection between all of us."

"The pride I have for this group of women cannot be measured."

Julia VaughanArtists Julia Vaughan and Li Appleby proved superb in leading our art workshop. They sensitively gave everyone expert guidance, quickly gained the trust of participants, and clearly understood what was needed to enable women to interpret their experiences of PP in graphic forms. Julia shared with the group some of her own beautiful images around the theme of harbour, which then inspired one of the activities carried out on the Saturday. Li shared her expertise in lino cutting. This was a really exciting and uplifting activity and lead to some great prints being produced.

The warm, embracing environment of Coombe Farm, the care taken by Lara and the healthy, delicious meals prepared by Lauren sealed what was a magical weekend. In addition, we were joined by external speakers Dr Jo Black, perinatal psychiatrist, and Dr Heather O’Mahen, clinical psychologist to speak at our exhibition on the Saturday night. They spoke with such emotion, honesty and integrity that many of the participants were moved to tears. We were very grateful to have such amazing speakers join us for an evening of celebration of the beautiful artwork which had been created.

"The venue was a beautiful, comfortable, welcoming oasis"

"I feel so privileged to have been there and it is an experience that I will treasure forever. The words spoken by Jo Black the perinatal psychiatrist were the most profound words I’ve ever heard in relation to PP and women who have experienced life changing illness. Words I will never ever forget."

The weekend overall was incredible. It is difficult to put into words the immense feelings from the weekend. To be in a stunning setting in Devon, surrounded by such strong and inspiring women, producing the most beautiful art work, was at times truly overwhelming. The weekend will be remembered by all for being a hugely healing, wonderful experience with bonds being made that will last forever.

"This gave me the opportunity to meet other women to reflect, learn and mend my soul."

"I just want to say thank you so much for this experience. It was the most profound, moving experience – something I think I will treasure and remember for all my life"

Read a participant’s account of attending the workshop»

A collection of some of the artwork pieces created at the workshop

Big Lottery

We owe a great dose of gratitude to the Big Lottery for their support of the APP Art Workshop weekend. And thank you to all the inspiring, incredible women who came to share their stories, art and love in the little haven in Devon.

Personal experience of attending the APP art workshop

My Personal Experience of Attending the Art Workshop

Written by Jane

In spring this year I was lucky enough to attend the APP art workshop at Coombe farm near Dittisham in Devon. Having suffered from PP after the birth of my son 4 1/2 years ago and having spent my career in the visual arts the event seemed tailor-made for me, on paper at least, but I must admit to having been apprehensive in case the experience awakened upsetting memories. In the event, I needn't have worried. Never having met anyone who had experienced PP before, I suddenly found myself one of 13 women at different stages in their recoveries, ranging from some whose episodes had taken place as little as 12 months previously, to others who had experienced the illness more than thirty years before. The shared experience meant that immediate bonds were formed between the women and the choice of location was inspired. This beautiful, fecund corner of Devon was guaranteed to foster a sense of well-being and to help us--the survivors of this horrible illness-- to relax, open up, access memories that were indeed troubling and more usually suppressed, but in an atmosphere of support, understanding, acceptance and laughter.

Collaborative pieceThe first group activity we undertook was called 'My Island'. It was collaborative piece in which the participants added images and motifs using a wide mix of media to a very large, roughly drawn out, generic island. The images were intended to be reminiscent of happy times with our families and each participant was moved around the large table at approximately five or ten minute intervals to work on a different area--either adding a new imaginative element (boats, fish and chip shops, piers) or modifying someone else's work. This exercise is apparently more usually used for icebreaking  or team-building but it was noted that, even before this first official session as a group, we had already bonded to such a degree as to make that part of the original intention somewhat superfluous!  Rather than restricting ourselves to drawing and painting our way politely around a narrow coastal strip, which is apparently how these things normally go, I have distinct memories of participants climbing onto the table so as to add inland forests, mountain ranges and ski-jumps!

Although neither Julia nor Anneliese was acting as an art therapist at this event, I think it is true to say that being asked questions as challenging as "What does PP look like?" required each of us to approach our memories of this traumatic illness from very unaccustomed directions and encouraged us to express feelings through direct visual means rather than via the more well-worn therapeutic routes of verbal explanation. The activity of making images, even just manipulating media whilst mentally engaged with this difficult material, provides an unspoken means of processing, perhaps going some small way towards resolving, what were traumatic experiences and extreme emotions. There comes a point when words are simply not enough. As a group we had access to a variety of media, but many found the easily manipulable chalk pastels pleasant to experiment with and the sessions with printmaker Anneliese Appleby introduced the deeply immersive technique of linocut to the group. I suspect that many of the women will continue to pursue these deeply therapeutic activities and make some time for themselves at home.

After the very difficult session that dealt directly with our experiences of PP, 'What does PP look like?', we turned to exercises that expressed our relationships with our children in the present. As a part of this, we were privileged to have a look through a selection of Julia Vaughan's work, which has been concerned with notions of harbouring for some time. Beyond images of the literal 'harbour', the protective arms of the harbour walls suggest a more nurturing containment, such as the woman's body during pregnancy and the protection she continues to offer her children. Many of the women brought photographs and precious objects from home for this session, using collage techniques and framing images in relation to one another.

Julia's session about harbouring, and the safe harbour, resonated with me a great deal that weekend. Coombe Farm itself, with its abundance of fresh produce, caught in a sheltering cleft between two verdant hills, felt very safe and very nurturing. It promoted frank, cathartic discussion (which is not nearly as po-faced as it sounds) and, having met such strong, vibrant, funny women at different stages of recovery, moving on with their lives, I for one returned home with a spring in my step and a new cautious optimism.

Worthing 10K run for APP

RunningJo, who is an enthusiastic supporter of APP, is running the Worthing 10K in June and raising funds for APP.

"I hope that mothers, partners & families everywhere will sponsor me in order to enable APP to address the ignorance, stigma & lack of provision which it has already done so much to address."

Running 10k will not be easy for Jo (is it ever?) so please spur her on by sponsoring her if you can. Let us try together to exceed her target!

Click here to sponsor Jo>