National Lottery Awards Update – Weds 15th July

Three weeks down – two to go

We’re past halfway, and it feels like we are at a critical point. We’ve had re-tweets from Home-Start UK, Solihull Police, lots of Birmingham-based MPs and TV presenter (and mum) Professor Alice Roberts. And auctioneers Sotheby’s have asked all their staff to vote for us!

We’ve also had some unhelpful responses from a variety of organisations, from online sites for parents, to publications for GPs – who typically say ‘we have information on postnatal depression, so we don’t need it on postpartum psychosis’. To which we say – yes you do need it. It is so important that families and GPs are properly informed about maternal mental health.

Next week there should be some press coverage and a tiny bit of TV featuring APP. Monday’s episode of ‘Victoria Derbyshire’ on BBC Two/BBC News Channel 9.15 to 11am is all about mental health. Keep an eye on our social media for more info on our media coverage.

Please continue your support. Anyone you know you’ve not asked to vote yet – please ask! Do you work for an organisation with a large mailing list or a high circulation newsletter which could put something about voting for us in it? Please ask them. Might you take one of our ‘voting by paper’ forms along to your choir practice, sports team training or work coffee room? Do you have relatives overseas you could ask to vote (votes from abroad still count!). We need more votes and everyone voting is someone who may find out about PP who had never heard of it before – and that can only be a good thing.

Thank you, thank you, thank you to all who are working so hard to achieve all we can before the 29th!

National Lottery Awards Update – Weds 8th July

Two weeks down – three to go

Work has continued apace to get the word out about the National Lottery Awards – and to get people voting! We’ve added another 500 likes on our Facebook voting page (and are now at 2400) and added 100 new likes on our Action on Postpartum Psychosis main Facebook page. Writer Jodi Picoult retweeted to 111 000 followers, and we had a retweet and support from Norman Lamb. We’ve had support from the South West Strategic Clinical Network and Postpartum Support International. We were mentioned in an article in the Telegraph online yesterday highlighting the need for better mental health services for women in pregnancy and after birth. We’ve also managed a huge mailout to 450 members, sending them our guides, information about our services and a letter about our lottery nomination, with voting information. Special thanks to volunteers who spent a very hot couple of days in the APP office stuffing envelopes.

Thank you to all the individuals working so hard – too many to name here – let’s keep on going.

National Lottery Awards Update - Weds 1st July

One week down – four weeks to go!

We’ve made an amazing start to the opportunity given to us by the National Lottery Awards by being nominated to become Health Project of the Year. In the first week of voting we’ve had 1.9 thousand Facebook likes registered on our National Lottery voting page, and been mentioned on Twitter by Ruby Wax, Fern Britton, Denise Welch and Marian Keys. We’ve had support from organisations such as The Marce Society, Bipolar UK, Time To Change, and the Royal College of Midwives. Organisations have tweeted directly to around 187,500 followers, and there are nearly 44,000 followers of organisations who have retweeted our tweets. And in the middle of a very busy week we had a wonderful Family Fun Day where families and friends got together to enjoy a fabulous picnic, play games, chat, raise money for APP and meet others to share experiences of and interests in postpartum psychosis. Oh and of course to vote!

Well done and thank you everyone for a tremendous start – let’s keep up this momentum over the next four weeks.

Make a difference in mental health - vote for Action on Postpartum Psychosis in the National Lottery Awards! http://bit.ly/voteforapp

Exploring PP through art

PicMonkey CollageA group of 13 women with experience of PP travelled to the beautiful area of Dittisham in Devon as guests of Lara Lloyd, the owner of Coombe Farm studios, in May 2015. The object of the weekend was to explore, through art, the experience of Postpartum Psychosis. 

Many women who have had experience of PP do not feel they have a voice. Such is the burden of guilt, of confusion, of isolation and traumatic memories of PP. Feelings that are largely due to years of needless stigma of maternal mental illness. Thus to meet up with other women (perhaps the only time that some will have met another woman who has suffered an episode of PP) was of immense value. The feelings of acceptance, ease and support throughout the weekend is hard to put in to words, but it was a truly incredible bond shared between the amazing participants we had on the workshop.

"The opportunity to talk to others has been incredible, such a powerful healing opportunity."

"The experience of talking with other women was very profound and moving. It was a really safe place – I made some amazing connections. There was huge connection between all of us."

"The pride I have for this group of women cannot be measured."

Julia VaughanArtists Julia Vaughan and Li Appleby proved superb in leading our art workshop. They sensitively gave everyone expert guidance, quickly gained the trust of participants, and clearly understood what was needed to enable women to interpret their experiences of PP in graphic forms. Julia shared with the group some of her own beautiful images around the theme of harbour, which then inspired one of the activities carried out on the Saturday. Li shared her expertise in lino cutting. This was a really exciting and uplifting activity and lead to some great prints being produced.

The warm, embracing environment of Coombe Farm, the care taken by Lara and the healthy, delicious meals prepared by Lauren sealed what was a magical weekend. In addition, we were joined by external speakers Dr Jo Black, perinatal psychiatrist, and Dr Heather O’Mahen, clinical psychologist to speak at our exhibition on the Saturday night. They spoke with such emotion, honesty and integrity that many of the participants were moved to tears. We were very grateful to have such amazing speakers join us for an evening of celebration of the beautiful artwork which had been created.

"The venue was a beautiful, comfortable, welcoming oasis"

"I feel so privileged to have been there and it is an experience that I will treasure forever. The words spoken by Jo Black the perinatal psychiatrist were the most profound words I’ve ever heard in relation to PP and women who have experienced life changing illness. Words I will never ever forget."

The weekend overall was incredible. It is difficult to put into words the immense feelings from the weekend. To be in a stunning setting in Devon, surrounded by such strong and inspiring women, producing the most beautiful art work, was at times truly overwhelming. The weekend will be remembered by all for being a hugely healing, wonderful experience with bonds being made that will last forever.

"This gave me the opportunity to meet other women to reflect, learn and mend my soul."

"I just want to say thank you so much for this experience. It was the most profound, moving experience – something I think I will treasure and remember for all my life"

Read a participant’s account of attending the workshop»

A collection of some of the artwork pieces created at the workshop

Big Lottery

We owe a great dose of gratitude to the Big Lottery for their support of the APP Art Workshop weekend. And thank you to all the inspiring, incredible women who came to share their stories, art and love in the little haven in Devon.

Personal experience of attending the APP art workshop

My Personal Experience of Attending the Art Workshop

Written by Jane

In spring this year I was lucky enough to attend the APP art workshop at Coombe farm near Dittisham in Devon. Having suffered from PP after the birth of my son 4 1/2 years ago and having spent my career in the visual arts the event seemed tailor-made for me, on paper at least, but I must admit to having been apprehensive in case the experience awakened upsetting memories. In the event, I needn't have worried. Never having met anyone who had experienced PP before, I suddenly found myself one of 13 women at different stages in their recoveries, ranging from some whose episodes had taken place as little as 12 months previously, to others who had experienced the illness more than thirty years before. The shared experience meant that immediate bonds were formed between the women and the choice of location was inspired. This beautiful, fecund corner of Devon was guaranteed to foster a sense of well-being and to help us--the survivors of this horrible illness-- to relax, open up, access memories that were indeed troubling and more usually suppressed, but in an atmosphere of support, understanding, acceptance and laughter.

Collaborative pieceThe first group activity we undertook was called 'My Island'. It was collaborative piece in which the participants added images and motifs using a wide mix of media to a very large, roughly drawn out, generic island. The images were intended to be reminiscent of happy times with our families and each participant was moved around the large table at approximately five or ten minute intervals to work on a different area--either adding a new imaginative element (boats, fish and chip shops, piers) or modifying someone else's work. This exercise is apparently more usually used for icebreaking  or team-building but it was noted that, even before this first official session as a group, we had already bonded to such a degree as to make that part of the original intention somewhat superfluous!  Rather than restricting ourselves to drawing and painting our way politely around a narrow coastal strip, which is apparently how these things normally go, I have distinct memories of participants climbing onto the table so as to add inland forests, mountain ranges and ski-jumps!

Although neither Julia nor Anneliese was acting as an art therapist at this event, I think it is true to say that being asked questions as challenging as "What does PP look like?" required each of us to approach our memories of this traumatic illness from very unaccustomed directions and encouraged us to express feelings through direct visual means rather than via the more well-worn therapeutic routes of verbal explanation. The activity of making images, even just manipulating media whilst mentally engaged with this difficult material, provides an unspoken means of processing, perhaps going some small way towards resolving, what were traumatic experiences and extreme emotions. There comes a point when words are simply not enough. As a group we had access to a variety of media, but many found the easily manipulable chalk pastels pleasant to experiment with and the sessions with printmaker Anneliese Appleby introduced the deeply immersive technique of linocut to the group. I suspect that many of the women will continue to pursue these deeply therapeutic activities and make some time for themselves at home.

After the very difficult session that dealt directly with our experiences of PP, 'What does PP look like?', we turned to exercises that expressed our relationships with our children in the present. As a part of this, we were privileged to have a look through a selection of Julia Vaughan's work, which has been concerned with notions of harbouring for some time. Beyond images of the literal 'harbour', the protective arms of the harbour walls suggest a more nurturing containment, such as the woman's body during pregnancy and the protection she continues to offer her children. Many of the women brought photographs and precious objects from home for this session, using collage techniques and framing images in relation to one another.

Julia's session about harbouring, and the safe harbour, resonated with me a great deal that weekend. Coombe Farm itself, with its abundance of fresh produce, caught in a sheltering cleft between two verdant hills, felt very safe and very nurturing. It promoted frank, cathartic discussion (which is not nearly as po-faced as it sounds) and, having met such strong, vibrant, funny women at different stages of recovery, moving on with their lives, I for one returned home with a spring in my step and a new cautious optimism.

Worthing 10K run for APP

RunningJo, who is an enthusiastic supporter of APP, is running the Worthing 10K in June and raising funds for APP.

"I hope that mothers, partners & families everywhere will sponsor me in order to enable APP to address the ignorance, stigma & lack of provision which it has already done so much to address."

Running 10k will not be easy for Jo (is it ever?) so please spur her on by sponsoring her if you can. Let us try together to exceed her target!

Click here to sponsor Jo>


 

Golden wedding couple donate to APP

Golden weddingGolden wedding fundraiserOn Friday, 3rd April Sandra and Bob Chapman of Rosliston celebrated their golden wedding at Hoon Ridge in Derbyshire by kind invitation of Alex & Heather Heron.  An afternoon tea party was enjoyed by a very lively group. Sandra is a member of the local "Breakaways" choir who, in between scones and strawberries sang well into the evening .  Adrian Blamire entertained the party during the afternoon and Heather spoke about the valuable work of APP. Instead of presents Sandra & Bob asked for a donation to be sent to APP. We thank the happy couple for thinking of APP as they tripped down memory lane with their friends and family. A great sum of £192 was raised. Well done everyone! ...And what a great team of caterers!

Jenny's poem: 'Time for another'

Time for Another By Jenny

It must be time for another,
You can't have just one son.
He'll have no one to play with, be all alone,
And that would be no fun.

It must be time for another,
Sticking at one's not fair.
He'll be spoilt and selfish, demanding and rude
And won't know how to share.

It must be time for another,
Do you not love being a mother?
You should think about him and not about you,
He'd adore a sister or brother.

It must be time for another,
How old is he, nearly three?
Time's ticking on, your chance will be gone,
You'll really regret it, you'll see.

But another might drive me to madness,
Another could tear us apart.
We are three now not two, what would happen to you
If my mind broke? The thought breaks my heart.

This time you'd know, you'd be ready,
This time you'd plan, we'd be here.
But the horror of it all, the spiralling fall,
The hell of it, you've no idea.

Yet the thought of another is tempting,
That it might all be well, all be fine.
It could heal what has passed, lay the ghosts down at last,
The decision to try is all mine.

I'll get there, but the choice isn't simple,
The answer not easy to find.
I just hope if we do decide to have two
It doesn't mean losing my mind.

Kathryn's poem: Illness, recovery and parenthood.

ILLNESS, RECOVERY AND PARENTHOOD 

by Kathryn Grant

 

Psycho world
The world is spinning away from me.
I hear voices I recognise, see faces I know,
But the harder I look, the more intently I hear,
The further and further they go.
The world is spinning away from me.
I've lost my grip on everything.
All that I know, all that I ever knew,
Has disappeared into a box marked
"Nothing".
The world is spinning away from me.
The fear takes control of my head,
If I open my mouth, or reach out my hand,
I'll know for sure I am dead.
The world is spinning away from me.
The safest place to be is inside my head.
The best I dare hope for, the best case scenario,
Is that this is Hell and Earth continues on in my stead.
But slowly, so slowly...
The world begins to come back for me
The drugs gradually do their work.
Allowing my mind to realise
This was life after all,
A hellish, dark, tortuous pit,
But specific to me and my worst fears,
And - thank goodness - not the end of life as we know it.

Survival

strong-tree

Nothing and no one can touch me now.
I've been to the back of beyond
The bottom of the pit
The arse-end of society.
I lost my dignity, my humanity.
But - guess what?
Life is not a one-shot game
You are allowed to fail.
Allowed to go back to the beginning
And start again.
The confidence that comes,
When you've reached the bottom
And survived.
Is unbeatable.
The knowledge that this gives,
The peace that comes from knowing
How futile keeping-up-appearances can be.
Is unshakeable.
Who can touch me now?
I'd like to see them try.
Come at me with words, deeds, targets, tests...
All of it matters less
Than the beauty of
Survival.

holding-baby-hands

Parenthood
It's not about who you become
How life changes
What it teaches us.
It's about the new person
You have introduced
Into the mix of life.
It's not about you any more
Your hopes and dreams fade
Into your tiny bundle of EVERYTHING.
It's about all of them
From their most basic need
To their most incredible dream.
It's everything for them,
Your unspoken word and
Your every waking thought.
It's parenthood, you see,
The circle of life if you like -
And you won't mind one bit.
swirl2
Kathryn's blog: Bumps and Grind
Images courtesy of Jetsandzepplins, Marleah Cole & Bridget Coila via Flikr

Artwork raises funds for APP

Oil on CanvasA unique and evocative piece donated by the exciting artist Dale vN Marshall was auctioned in December. After much anticipation and some fierce bidding, we were very pleased the final figure reached £594.

We would like to thank Dale and his supporters for this incredible chance to raise money to support, campaign, research, publish, inform and connect to build a better future for all those effected by Postpartum Psychosis. I’d like to add my own personal thanks for creating a remarkable body of work that transcends words and moved me so deeply.

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