Tag Archives: MBU

19 December 2025

APP expands peer support for women experiencing postpartum psychosis in Cheshire, Merseyside and North Wales

APP has been awarded a new NHS contract to provide peer support within the new Seren Lodge Mother and Baby Unit (MBU).

The new Seren Lodge MBU officially launched on 15^th December. It is a first of its kind cross-border perinatal mental health facility designed to support women from Cheshire, Merseyside and North Wales. The unit will work alongside the existing regional Community Perinatal Mental Health service who already care for thousands of women every year.

Jocelyn and Sally from Action on Postpartum Psychosis at the opening of Seren Lodge Mother and Baby Unit, Chester. December 2025

APP works with a number of MBUs around the country to provide peer support to women in hospital as well as in the community. The charity, recently acknowledged with a prestigious GSK Impact Award, also provides MBU support in Lancashire, Greater Manchester, Birmingham and Solihull as well as a huge network of in-person and virtual café groups across the UK including Northern Ireland.

Dr Jess Heron, CEO, Action on Postpartum Psychosis, said: “As an organisation founded on lived experience, we’re delighted to be able to reach and support more women and families around the UK via this new NHS partnership. Many women have told us that having someone to speak to who has experienced postpartum psychosis themselves and come through the other side brings hope and reduces fear, so we know this new service will be an invaluable addition to Seren Lodge.”

Dr Sally Wilson, National Training Coordinator, Action on Postpartum Psychosis, said: “APP has been working with partners and families with lived experience to campaign for more MBUs for many years now, so we’re really excited to see the much-needed Seren Lodge MBU take shape. We know through our own research that women being treated in MBUs rather than general psychiatric wards enjoy more positive outcomes, and being able to add value to this through the provision of peer support will be truly transformative.

Seren Lodge will provide a home from home for women and their babies and include a nursery, sensory room, and multiple lounges to support quiet time and family visits. Having access to outside spaces is central to the development with two garden areas and a walking pram loop, with families benefitting from close access to the Countess Country Park. Seren Lodge will also provide dedicated space and Welsh-language resources for women from North Wales who have previously struggled to access MBU beds.

Sarah Dearden, APP Storyteller said: "When I first became unwell with postpartum psychosis when my son was six days old I was admitted to a general psychiatric ward. There were no available MBU beds and being admitted to the wrong and very scary environment made the fear and confusion so much worse. That's why Seren Lodge is so wonderful and crucial. Mums and babies can stay together and stop the anguish of being separated."

Dr Heron added: “This new unit will ensure that new mothers with severe postnatal illness will be cared for appropriately and supported with parenting, without having to travel miles from their families or ending up in adult psychiatric wards and separated from their newborn. APP has been fortunate to work with the Seren Lodge team to ensure the voices of lived experience are heard throughout the development process, so we are confident that this new facility will be a much-needed addition to the UK’s perinatal mental health provision.”

Seren Lodge MBU is the result of a partnership between Cheshire and Wirral Partnership NHS Foundation Trust (CWP), Betsi Cadwaladr University Health Board (BCHUB), Mersey Care NHS Foundation Trust, NHS England and NHS Wales. It has been supported and informed by CWP’s Helix experts by experience group.

Could you become an APP peer supporter?

If you have lived experience of postpartum psychosis and live within the Seren Lodge catchment area (Cheshire / Merseyside / North Wales) APP would love to hear from you. The charity is currently recruiting for a Peer Support Facilitator and a Peer Support Worker and will be holding a training day in Chester on 31^st January 2026. Find out more here.

27 August 2025

Aimee’s story: I wish I could have spoken to someone else like me when I was in hospital

In the years since I gave birth I felt completely overwhelmed by shame and guilt – until I met someone else who had experienced postpartum psychosis (PP). Getting that peer support from APP helped me come to terms with what I had been through - and marked the first time I felt any degree of normality since giving birth.

I had been in hospital for almost a year after becoming unwell with PP. There were times when I honestly didn’t think I would get better. In fact, I think if I could have spoken to someone else who had been through it when I was in hospital I might have found hope and recovery sooner. But today, me and my son George have the absolute best bond, I’m back at work and I’m even managing George’s junior rugby team. There was a time when I never could have imagined this life.

My pregnancy was generally fine – up until the point that I was induced, got sepsis and had to have an emergency C-section. I was in hospital for about five days and I didn’t get much sleep. As a single mum, I lived with my mum at the time and, when I first brought George home, she noticed something was really wrong with how I was behaving. It was as though I went completely round the twist – believing that the girl from The Exorcist was living in my wardrobe and thinking that I was going to die or George was going to die. I also stopped my mum from touching George because I believed she was poisonous and that the poison would seep out of her blood and get into him. I wasn’t sleeping and I was excessively cleaning and panic buying things. I was also talking manically and was very hyperactive.

It was a strange situation because I didn’t think there was anything wrong with me, it was everyone around me, all my family members, who noticed that there was something very wrong.

I agreed to go back to the maternity unit for a check up and was assessed in hospital by psychiatrists. I was incredibly manic at the time and becoming really out of control. They gave me a lot of sedatives and put a section on me, which they then lifted. That was when I was admitted to a Mother and Baby Unit (MBU).

A couple of hours later the sedatives wore off and I completely flipped out. I was restrained and injected and, from that point on, I barely remember a thing. It was like I woke up in hospital and it was next year.

During that period I was moved between the MBU, a psychiatric intensive care unit and two other psychiatric hospitals. I wasn’t responding to medication, so it took a few months to find the right one and come round from the psychosis. But for some time I was basically like a zombie in a chair - dribbling, non-verbal, unkempt and putting on a lot of weight. During this time my mum looked after George but she also looked after me – advocating on my behalf at the hospital and asking for more support.

Being in hospital was traumatic. At one point I was on a mixed ward and I was punched in the face and sexually assaulted by a couple of the male patients there. In December of last year I started having really distressing nightmares about my experience there.

Luckily, the all-women hospital I was moved to was where things started to improve. The clozapine was working and the environment was much better – the staff were lovely and being among all women patients and having more homely areas and activities to take part in really helped. I started to get snapshots of memory back. They let me have more visitors as well, and at one point I was able to go home for a night at a time. They also used to help me shower and help me do my hair and make-up, bringing a degree of normality back into my life.

Saying that, my recovery has been quite slow. I was on clozapine for two and a half years after being discharged and my follow-up care wasn’t great – possibly because it was during the pandemic. I was never offered any therapy and I had put on ten stone while in hospital, so I was physically unfit as well.

I eventually came off the clozapine in 2022 and was put on antidepressants but I wasn’t sleeping and kept waking up with night terrors. Eventually, I found a private therapist who was fantastic and helped me talk through my trauma and work on my self esteem.

She helped me come to terms with what had happened and helped me to understand that it was an illness – it was nothing that I had done wrong.

It was around that time I found APP, too. I got in touch with Ellie from the peer support team and took part in my first zoom café group. I was then matched with Krystal as my one-to-one peer supporter who was also really great. It was the first time I had met anyone else who had experienced PP and who had been through a similar trauma. Talking to others who have been there really gives you hope and helps you feel less ashamed and alone.

I have since been diagnosed with bipolar but it hasn’t stopped me living my life. Speaking with others who can relate was a big turning point. And my mum has been a wonderful support and the therapy really helped me too. I think it’s important to reach out for that help because locking it away is the worst thing you can do. You need to process it and you need to find hope to help you recover more quickly.

I feel so lucky that me and George have such a great bond now – he’s such a mummy’s boy.

I was worried it might never happen because we were separated for such a long time and it took a little while but we got there.

I just want others to know that you can be in the absolute worst place ever, but it does get better. It’s hard work and it takes time but you can do it. You just need to learn to reach out and ask for help. If you feel like your meds aren’t right - say so. If you feel any warning signs creeping back in - go and get help. Plodding along and saying that everything’s OK when it isn’t is the worst thing to do. I never had that hope which is why I struggled so much and for so long. I genuinely believe that if I spoke to someone like me when I was at my worst it would have made a huge difference. Everyone needs to be able to see the light at the end of the tunnel.

5 August 2025

Rory’s story: It was supposed to be the best year of our lives but we ended up living apart for five months

2023 was supposed to be the best year of our lives, having our first child in Spring and getting married at Christmas time.

Within 12 weeks we went from the feeling of reassurance that the 20 week scan gave us, to living apart for nearly five months when Megan was admitted to a Mother and Baby Unit (MBU) following a mental health crisis.

I'd heard of the baby blues and postnatal depression but I'd never heard of postpartum psychosis (PP), which happens in around 1-2 in 1000 pregnancies. I also didn't know the most common cause of death of women within a year of having a child was suicide, a risk I didn't think we would be managing after becoming parents for the first time.

While PP most often occurs following birth, our case was slightly different and things started to go wrong while Megan was still pregnant. She became more and more anxious about the pregnancy, worrying that something awful was happening and that she couldn't feel any movement. We were visiting A&E regularly, being sent for yet another scan, waiting for hours to be told everything was fine and being asked if this was our first child. People suggesting we were worrying for no reason became our norm.

However, we were told she didn’t meet the threshold for perinatal mental health support when we finally got an assessment. This cycle went on for weeks with Megan's anxiety becoming worse by the day, and her severe sleep issues led to stronger delusional beliefs. It was only when Megan became suicidal that I feel like we were finally listened to.

At 32 weeks pregnant she was sectioned. It was awful for her and I will never forget the sadness in her eyes as I had to say goodbye. As difficult as that was I knew that her safety, and our unborn child were the priority. A few weeks later, our beautiful son was born prematurely and he spent some time in a Neonatal Intensive Care Unit, while I spent my days visiting him in one part of the hospital and Megan in the other. Three weeks later was the first sign of hope I had, as Oscar was discharged and able to move to the MBU to be with his mummy, and supported by the most wonderful nursery team who looked after my family outside of visiting hours and when I returned to work.

Coming back to an empty flat for the best part of five months broke my heart but mums and their babies need each other and that's one of the reasons MBUs exist. Sadly, there still isn't enough of them across the UK and none at all in Northern Ireland where we planned to have our children. I spent a lot of time researching postpartum psychosis and finding the stories on APP’s website and forum gave me hope - as did the MBU staff reassuring me that "she will get better".

A photo of a young boy with blonde hair and beige short-sleeved shirt — Rory and Megan's son, Oscar

When Megan and Oscar came home I told myself if I could get through those months, everything else would be a breeze. And whilst things slowly got better, my personal resilience was shot, just as I was finally feeling like a proper dad for the first time and not relying on hospital staff. In truth the last year and a half has not been easy as Megan continued to recover at home, and we have both had our mental health challenges.

Megan continued to engage in the professional services even when she didn’t want to. Her hard work, support from our family who visited regularly, our patience for each other and the love of the most amazing little human have got us to where we are now. Now we are looking forward and building memories as a family and have a lot be thankful for. Sadly not everyone makes it this far, but those who access the support we have are able to have a much better chance.

Seeing how far Megan has come in the last 6 months makes me proud. She kept a lot of her feelings and experiences inside as there is a lot of stigma associated with mental illness, but she has come through that and no longer feels shame. She has now shared her experiences openly with friends and family, many of whom had no idea what she went through, as well as social media, and that's what's inspired me to write this.

The work of APP is critical in raising awareness including their campaign to open Northern Ireland’s first MBU, and educating medical professionals in maternal mental health. For anyone reading this who is going through something similar, don’t lose hope as things really can get better.

Rory is running the London Marathon for APP in April 2026. Find out more and add your support for his run here.

3 June 2025

Urgent need for an NI Mother and Baby Unit under the Spotlight: APP says funding is urgent to save lives

Media release: 3rd June 2025
For immediate release

Today’s BBC Spotlight investigation into perinatal mental health care in Northern Ireland shows just how urgently a Mother and Baby Unit (MBU) is needed to save lives and prevent life-long trauma, national charity Action on Postpartum Psychosis (APP) says.

Northern Ireland is the only part of the UK without an MBU, a specialist inpatient mental health treatment centre where mothers can be admitted with their babies for care and treatment. Instead, mums are admitted to acute psychiatric wards for non-specialist treatment, separating them from their babies.

APP estimates that around 100 women a year will require hospital admission for severe mental illness in the year after birth, including about 35 with postpartum psychosis, a severe and life-threatening mental illness that can develop suddenly. Suicide is the leading cause of maternal death in Northern Ireland.

While APP welcomed the announcement more than six months ago that Belfast Trust will take forward plans for NI’s first MBU, we are concerned that we still haven’t seen ring-fenced funding, a firm timeline, and interim measures.

Dr Jess Heron, Chief Executive of Action on Postpartum Psychosis said:

“Tonight we heard from mums and their families who urgently need better mental health care. It’s a story APP hears all the time from the mums who attend our postpartum psychosis Northern Ireland peer support group who, like Shelley, have been separated from their babies and admitted to psychiatric inpatient wards for treatment.

“And too often we hear the stories of tragedy, with lives lost - a story we all heard tonight from Siobhan Graham about her daughter Orlaith Quinn.

“We’ve waited 16 years since Michelle O’Neil and the Stormont Health Committee agreed that Northern Ireland needs a Mother and Baby Unit, but only now are we seeing real plans for this to progress. And we keep waiting. We have a site chosen, but there still isn’t a business plan. The Minister has told the Assembly he hopes to greenlight it this calendar year, but we need a commitment that this will happen.

“We are concerned that in reality, it could be many years until an MBU opens. Years when women continue to be separated from their babies for treatment by non-specialists; where they don’t receive appropriate physical care in the weeks after giving birth; where they miss out on vital bonding with the baby; and where families struggle to provide care for babies. Years in which women continue to die by suicide because they aren’t getting the care and treatment they need.

“We’re cautious about calling for interim measures, as there is always a risk that what should be short-term solutions become long-term, or even permanent. But there needs to be a plan while we wait; we know there are women dying, and being needlessly traumatised in non-specialist units.

“Spotlight visited the Exeter MBU which is a great example not just of how an MBU supports recovery while keeping mum and baby together, but is also an example of how an interim unit has been just that – not ideal, but a safe and appropriate space where mums can be with their babies while they recover from severe postpartum mental illness while a permanent unit is built.”

For more information or to arrange an interview contact Liz Morrison on 07711 558 296, liz.morrison@me.com / Lucy Nichol on 07771 967 032, lucy@app-network.org

Anyone affected by postpartum psychosis, now or many years ago, can access support from APP, including an NI Peer Support Group for mothers who have experienced it at any time. Email app@app-network.org for more information. For more information on postpartum psychosis and support available go to www.app-network.org

Background

Northern Ireland is the only part of the United Kingdom that doesn’t have a Mother and Baby Unit (MBU), which provides specialist inpatient care for mums experiencing severe postnatal illness and their babies. Instead, mothers are admitted to general acute psychiatric wards for non-specialist treatment, separating them from babies.

An MBU provides specialist care for both mum and baby. Mental health teams with specialist training are able to provide the best care, for example: prescribing drugs that are suitable for use in the perinatal period; supporting the mother-infant relationship and the development of parenting skills; providing adequate postpartum physical care and appropriate facilities (such as nappy changing, milk fridges, play areas, safe places for older siblings to visit).

One in 5 women will experience mental health problems during pregnancy or after birth. Around 1000 women each year in Northern Ireland will develop a severe postnatal illness. This can include postpartum psychosis, severe depression and anxiety, and obsessive compulsive disorder. Between 84 and 122 will need admission to hospital. Suicide is the leading cause of maternal death, but with the right care is almost always preventable.

Postpartum mental health problems, in particular postpartum psychosis, can come on and escalate very quickly. This is not rare. The charity, Action on Postpartum Psychosis, who run a peer support group for women in NI who have experienced PP, estimates that 35 women in NI will develop the illness each year. While women with bipolar disorder are more likely to develop postpartum psychosis, 50% of cases are ‘out of the blue’, to women who have experienced no previous mental health problems.

The risk was highlighted at the 2022 inquest into the tragic death of Orlaith Quinn, who took her own life on a maternity ward while experiencing postpartum psychosis. The Coroner called for an MBU in NI.

According to the Confidential Enquiry into Maternal Deaths, suicide was the leading cause of maternal death in the first year after birth in the UK.

Facts about postpartum psychosis

Episodes of severe mental illness, such as mania or psychosis, follow 1-2 in 1,000 deliveries.
In Northern Ireland, around 35 women a year experience postpartum psychosis.
An average-sized maternity unit would see 8-10 cases of rapid-onset psychosis following childbirth in a year. Around 1,400 cases occur each year in the UK.
Postpartum Psychosis is a devastating illness for mothers and families.
It strikes at a time when families are full of expectation. Mothers feel loss, guilt, and responsibility for missing out on the early months of motherhood. Fathers become responsible for a newborn or are separated from their families. They do not know if their partners will fully recover.
Postpartum Psychosis can occur in women from all social classes, occupations, and educational backgrounds. Often, it occurs 'out of the blue' to women without any previous psychiatric history.
The stakes are high if the illness is not identified sufficiently early, or is poorly managed, both in terms of maternal outcome (including risk of suicide) and child outcome (including rare and tragic cases of infanticide).
According to The Confidential Enquiries into Maternal and Child Health (MBRRACE-UK https://www.npeu.ox.ac.uk/mbrrace-uk), suicide is the leading cause of maternal deaths. Half of these suicides occur in mothers suffering the acute onset of psychotic illness. Completed suicides are the tip of the iceberg in terms of ‘near miss’ events occurring to women who develop Postpartum Psychosis.
Postpartum Psychosis is eminently treatable, but services must respond quickly and appropriately to these psychiatric emergencies. Episodes have a rapid onset, usually within days of delivery, and may escalate to full-blown psychosis quickly - within hours or days.
Although episodes of Postpartum Psychosis are among the most severe illnesses seen in clinical practice, Postpartum Psychosis also has one of the best prognoses.
Acute symptoms are similar to those of bipolar disorder and may include: extreme elation or euphoria, rapid mood changes, or depressed mood; the rapid onset of unusual beliefs; visual and auditory hallucinations; extreme confusion; and behaviour can be very bizarre. Episodes can be very frightening for women and their families.
The causes of Postpartum Psychosis are unknown, but the dramatic hormonal and biological changes that occur at childbirth are thought to be involved. There is some evidence of a genetic component to the illness and of a link with bipolar disorder. One in 4 women with a history of bipolar disorder experience Postpartum Psychosis following childbirth.
The majority of women are substantially recovered within a few months, but full recovery and coming to terms with the illness may take 12 months or longer.
Recovery is a difficult and lengthy process. Factors that contribute to these difficulties include: limited availability of information about Postpartum Psychosis and recovery; isolation caused by lack of visible others who have experienced the illness; poor awareness in the general public and media; the stigma associated with experiencing mental illness - particularly at this time when women have high hopes of new motherhood; difficulties coming to terms with behaviour during the illness; limited availability of specialist psychological and practical support following admission to facilitate coming to terms with the episode, looking after a baby, rebuilding relationships, and mothering confidence.
Misguided portrayals in the media can contribute to mothers' feelings of isolation and to difficulties in discussing their experiences with other mothers. Often, when women or their partners search the internet for information about their illness, alarmist stories about mothers harming their babies are the first they encounter.
Postpartum Psychosis is not simply a more severe form of postnatal depression. In fact, many mothers with Postpartum Psychosis do not experience any symptoms of depression at all; rather, they experience extreme elation, spirituality, confusion, and quickly lose contact with reality. The majority of women, therefore, are unable to seek help for themselves, and others must obtain help for them.

1 May 2025

Nurse makes miles matter for maternal mental health

Laura Davies, a Mental Health Nurse at Betsi Cadwaladr’s Perinatal Mental Health Service, is running almost 70 miles from Ysbyty Gwynedd’s Maternity Unit to the site of the new specialist mental health Mother and Baby Unit at the Countess of Chester Hospital to raise money for APP and Awyr Las: The North Wales NHS Charity’s Perinatal Mental Health fund.

In Winter 2025 the all-new Seren Lodge Mother and Baby Unit will be opened at the Countess of Chester Hospital following a unique collaboration between Cheshire and Wirral Partnership NHS Foundation Trust, Mersey Care NHS Foundation Trust, Betsi Cadwaladr University Health Board, NHS England and NHS Wales.

For the past few months, Laura has been training hard for her incredible challenge whilst raising almost £1,400 for her chosen charities.

Talking about her challenge, Laura said: “We know that admission to a mental health unit can be a scary and stressful time for many of our families and we want to be able to offer additional support that goes over and above what the NHS can fund to anyone who may need it during this time.

“This is why during the first week of May, to coincide with Maternal Mental Health Awareness Week, I have decided to embark on this big challenge in order to raise funds for our service and Action on Postpartum Psychosis.”

Once open, Seren Lodge will become a specialist eight bedded mental health unit to support perinatal mothers, babies and their families from across North Wales, Cheshire and Merseyside.

The unit will provide a safe and therapeutic space for women to receive care and treatment and will enable mothers to remain with their babies whilst they recover, whilst also supporting partners and families during this time.

A spokesperson for Awyr Las: The North Wales NHS Charity said: “Laura is taking on an incredible challenge by running almost 70 miles from Ysbyty Gwynedd to the Countess of Chester Hospital to raise funds for Perinatal Mental Health at Betsi Cadwaladr, and also to raise awareness for maternal mental health as we enter Maternal Mental Health Awareness Week. The money Laura raises will go towards funding over and above support for women and their families during challenging times. Good luck, Laura!”

As the UK’s national charity dedicated to supporting women and families affected by postpartum psychosis – for which admission to a Mother and Baby Unit, like Seren Lodge, is paramount - APP is delighted to be included in this impressive fundraising challenge.

Felicity Lambert, National Fundraising Coordinator, APP, said: “We’re wishing Laura the best of luck for her incredible ultra marathon this weekend. We’re all in awe of her taking on this massive challenge to raise funds and awareness of APP and for Seren Lodge Mother and Baby Unit. The funds she raises for APP will help us support even more women and families affected by postpartum psychosis – a severe but highly treatable maternal mental illness. Thank you, Laura!”

To support Laura’s fundraising challenge, you can donate to both Awyr Las: The North Wales NHS Charity and APP here: Team fundraising for Awyr Las and APP is fundraising for APP

7 November 2024

Jenni’s story: Having my baby by my side is something I’ll always be grateful for

Being able to wake up every morning with my baby daughter by my side was amazing. As sick as I was, I really held onto that and it definitely helped me in my recovery. Mother and Baby Units (MBUs) are so important for that reason. We were a long way from home, and it was devastating being sectioned, but having Isla with me throughout is something I’ll always be grateful for.

Jenni Semple at family at Disneyland, standing in front of the magical castle

Being a first time mum who was lucky enough to have an uncomplicated, happy pregnancy, I really wasn’t prepared for what followed.

The birth itself was really traumatic, resulting in a forceps delivery. But after that, I was strangely elated. I knew I would probably feel really happy because I’d just given birth to our beautiful baby girl. But, in hindsight, this was a whole different level of happiness. I couldn’t switch off. And I couldn’t sleep either.

I went home from hospital within a couple of days of giving birth and one of the first things I remember is that taking my pain relief was problematic. I couldn’t remember how to do it, and I kept writing down different dates, times and doses, but I still had no idea if I was taking too much or too little and it really scared me. On top of that, I was hit with a fear that they were going to take Isla away from me. My midwife would visit and spend several hours trying to reassure me, but no matter what she said, she couldn’t put my mind at rest.

Then I started worrying about more things and no matter what anyone said, I couldn’t stop obsessing. For example, I was convinced I was feeding Isla incorrectly and went as far as to hire a private lactation consultant. But even when she reassured me that I was doing OK, I just didn’t believe her.

I had a sense that something wasn’t right, and, because I also hadn’t slept, I wondered if I had some kind of baby blues or something. But when my mother in law came to visit and voiced her concerns, I got really angry and told her to leave. Still, I went to see the doctor with my husband genuinely believing they’d be able to give me a tablet, send me home and all would be well.

When I got there, however, I was completely unable to communicate with my GP. I couldn’t understand what she was saying, it all sounded muddled and scary. She immediately diagnosed me with PP and contacted the perinatal mental health team.

We waited in a separate consultation room but the perinatal team didn’t call back so we were sent home. It was a Tuesday, and that night was the worst. That night was when the hallucinations, the voices, started. And it felt like it went on for hours.

By Wednesday morning my husband chased the GP who chased the mental health team and a psychiatrist came to the house with a nurse and another doctor. I was immediately sectioned.

Just before they came, my behaviour became really scary for my husband. I was trying to kill myself. I remember my husband trying to hold me back from going out of the door. And when I look back on this I just feel overwhelmed with guilt that while all of this was happening, I simply wasn’t looking after Isla.

So that night I was taken by ambulance to Bournemouth MBU where I spent three weeks as an inpatient. It was an equally harrowing and scary experience because my illness convinced me that I was in prison and that I was never getting out.

At the same time, as it was early in 2020, the pandemic was just happening. So that all added to my paranoia – particularly around the belief that I wasn’t really in a hospital and it was all a set up.

Looking back though, during my three weeks in the MBU, the staff really were amazing. Not only did it mean I could recover with Isla by my side, but there were lots of activities to take part in – cooking, gardening, etc. And I bonded quite well with the other patients. It was a tough time, however, because the MBU was so far from home. We lived in Oxford at the time and our nearest MBU would have been Winchester but they didn’t have any beds so I ended up in Bournemouth. My husband literally drove 4,000 miles in three weeks in order to visit us!

After three weeks they decided I could go home, but the day I got released was the day we went into full lockdown - which did my paranoia no good! I was still very peculiar for a few weeks - I couldn’t listen to the radio or focus on the telly for a while. And I had to stay on medication.

Everything was kind of OK for a few weeks, and then depression hit. It took a really long time to come out the other end of the depression but I got there eventually.

Now, we’ve moved back to Norfolk to be near my family. I’ve changed jobs too and we’ve just got a puppy – so family life is really good.

I also have really good peer support through APP.

Jocelyn has been amazing – if ever I have a dip, she’s right there. She helped me through the acute phase but it’s so nice to know that there’s somebody else who has been through what I have who is always available to chat. Being able to share what you’ve been through with someone who just gets it is so important. I would encourage anyone going through PP to reach out for peer support.

9 October 2024

MBU nurses run for APP!

Three perinatal mental health nurses are taking on the Manchester Half Marathon for APP this weekend.

Amy, Megan and Sophie all work supporting new mums being treated at Ribblemere Mother and Baby Unit (MBU) in Lancashire. Over the last few months they've been training so hard for the half marathon and they're now looking forward to taking their places on the start line in Manchester this Sunday. They've been posting updates on their training on TikTok - and you can follow them @therunningmhnurses

All three say they wanted to do this for APP because in their work they see the impact that postpartum psychosis has on mums and families:

We wanted to run for APP because we see daily the impact that a life changing diagnosis has on our ladies. It's heartbreaking and can be such a lonely time for ladies and families. APP supports them during this time and it really can be life saving support.

We see the resilience and strength our ladies and families have when it comes to postpartum psychosis and we just wanted to do something small in support of all our ladies who have experienced/are experiencing postpartum psychosis.

We see them, we are here for them and we are so proud of them. We have the best job in the world.

APP Peer Support Facilitator Jocelyn Ellams works with Amy, Megan and Sophie as part of our service providing support and information to families at Ribblemere. Jocelyn says: 'I’ve seen the impact Amy, Meg and Sophie have. They are kind, caring and empathetic and an amazing source of support for the mums on the ward. This understanding is only highlighted by the fact they are fundraising for us!'

The nurses have already raised an incredible amount but they would love any more support to help them get to the finish line on the big day. You can add your support here.

Good luck to our Ribblemere runners!
We hope you have a fantastic day. Thank you so much for your support.

2 October 2024

Sam & Adam share their story

This Sunday, dad of two Adam is taking on an epic challenge - the Suffolk Whole Hog muddy obstacle course - made up of 30 obstacles round a very muddy five mile course.

Adam has chosen to do this to raise funds for and awareness of APP because his wife Sam was diagnosed with PP after the birth of their first son back in 2017.

Here, Sam shares her experience of her illness in her own words:

'I quickly became severely unwell, experiencing hallucinations, paranoia and terrifying intrusive thoughts. Just 15 days after giving birth I was sectioned under the mental health act and alongside my newborn I was placed in a Mother and Baby Unit 65 miles away from our home. During this time I was looked after by some amazing people and now have a rainbow tattoo on my ankle in honour of the people that saved me.

At the MBU I finally felt safe. Although still so unwell I was slowly able to recover with the help of some wonderful people who I will never forget.

I have since gone on to have our second son in 2020, thankfully with no repercussions. To anyone who is experiencing PP please believe you will get there. You may be a different version of yourself from before but that's OK. Put your trust in those that are helping you get better and allow yourself time. It is a traumatic experience that will never leave you but it doesn't have to define you.'

Thank you Sam for sharing your story with us, and thank you Adam for taking on the Whole Hog challenge for APP. We're looking forward to seeing the photos!

If you'd like to support Adam's fundraising, you can visit his JustGiving page here.

13 August 2024

Leanne’s story: Reading other people’s recovery stories has allowed me to process what happened to me

I have always been a worrier, but I felt pregnancy was a particularly long and very anxious time in my life. I only really began to relax towards the end and then suddenly here she was!

She was actually ten days overdue when we toddled to hospital for induction in May 2022. Labour was long, and it ended in a forceps delivery which was difficult.

Post delivery, though, I began perking up. I was in theatre, and, because we love Grey's Anatomy, it was kind of exciting to be there. Plus, I finally got some pain relief. But looking back, it's hard to determine if those feelings were actually the start of my symptoms of postpartum psychosis (PP).

Immediately after the birth, my husband and I burst into tears of happiness. I was on cloud nine, and for a fair stretch of time I rarely came back down. Just over a week after giving birth, I was diagnosed with PP and our world stopped turning.

We had been discharged two days after the birth and were at home for six days. Whilst at home I was struggling to breastfeed and found being a new mum challenging. However, I was in awe of our newborn and could not process the sheer amount of joy and stimulation she had brought to our lives. The first memories of her meeting friends and family were magical and I didn't want to miss a thing. So I didn't. Within the first six days I literally only slept a handful of hours which really took its toll. It's difficult to know if the lack of sleep triggered PP or if the lack of sleep was a symptom of PP. I'm sure this must be a common conundrum amongst other survivors.

It started off gradually but things became rapidly worse.

My behaviour became really out of character, and my husband described me as a different person. I had the energy of a Duracell bunny, talking erratically and making less and less sense as things progressed. My moods were very up and down but, because we were first time parents and had been told about baby blues and hormones, it took us a week to call for help as we thought it must be normal. But I progressively got worse and fluctuated between euphoric highs and tearful lows. I began gathering items for a tool kit in a strange manner which concerned everyone.

When we eventually called NHS 24 they recommended that I should go straight to A&E. From there, I was admitted to the Mother & Baby Unit (MBU) where I stayed with my daughter for the next five weeks, at first voluntarily and then under section.

After entering hospital I declined even further and it was clear that I was extremely unwell. Despite mainly being on a high and euphoric, I was also confused and angry at the situation and responded slowly to medication, leading to the decision to receive Electroconvulsive Therapy (ECT), which was a turning point in my recovery. I began to improve almost immediately - within just two sessions. The effects allowed me to slow down and rest and in turn begin to process things at a more suitable speed.

After both myself and my daughter tested positive for Covid the decision was taken that we would best recover at home. We were close to beginning the transition to home visits and I received great support from the MBU and the Acute Care and Support Team. At the time I was desperate to get home and begin our life as a family of three, however this was just the beginning in accepting what had happened.

I have since struggled a lot with the stigma of having mental health issues which is why I became so interested in raising awareness around the topic and sharing my story. When I was ill I became obsessed with music and the playlist I had prepared for labour. Sadly, we were never able to use it during the birth but, because I have always loved music, I have since found it therapeutic to listen to during my recovery. I have also enjoyed reading memoirs written by survivors as well as other books focusing on perinatal mental health. Reading different recovery stories has been the most helpful thing to process what happened to me in peace and feel like my story and feelings are valid. Despite the challenging symptoms and experiences that I would not wish on anyone, reading that I was not alone and that others had experienced similar things was the biggest help in terms of finding acceptance.

On the ward I regularly put my checkered Vans on (I thought of them as my ‘getaway shoes’) and tried to make a break for it, but in the time that has passed since leaving hospital there have been many days when I would be grateful to go back to the MBU for a break from my head. I wish it was known that if you require admission and some help at this vulnerable time, that its not something to fear - the care and support on an MBU is incredible, in my experience. I will be eternally grateful to the nurses and psychiatric team who looked after my tiny bundle and me - and also supported my husband and immediate family through a critical period. Having no diagnosed history of mental health issues in the past, my experience came as a big shock for us all as we managed new expectations and grieved the newborn period we had hoped for.

I had no idea such vital and important work was going on every day in a hospital, a few minutes away.

Upon my discharge from the MBU, I received leaflets from the charity Action on Postpartum Psychosis (APP). I have since benefited from their online forum, informative website, one to one support, cafe zoom groups and the continual updates on fundraising and positive recovery stories. Speaking to others who have also experienced PP has been really helpful to me, finding a community and others who can relate to my story makes me feel less alone.

We are now thrilled to be raising money for this incredible charity by walking in the Edinburgh Kiltwalk on Sunday 15th September. The walk is a unique way to raise funds for a charity you care about.

And hopefully, our now two-year-old little red head will meet us at the finish line.

To find out more about Leanne’s Kiltwalk fundraiser and to donate, click here.

30 July 2024

Kayleigh’s story: I was so unwell I was completely catatonic and unresponsive. But now I feel like we have the perfect family

When I suffered with postpartum psychosis after having my first daughter Daisy in 2014, me and my family had never heard of this illness. I had never suffered from any mental illness in the past but I was lucky that my family and my midwife knew that something wasn't quite right and I got the help I needed very quickly.

My labour with Daisy was long, painful and complicated which ended in me having an emergency c section. When she finally arrived I was so grateful she was here safe and healthy. I was totally in love with her, it felt like I was in a little bubble. The baby who we had waited so long for was here and life was perfect.

A picture of the author, Kayleigh, holding her newborn baby daughter, Daisy who is wearing a white and red sleep suit and red and black hat. — Kayleigh holding her newborn daughter Daisy

When it was time for us to leave the hospital I suddenly felt a huge wave of fear.

This tiny little baby was my responsibility to keep safe. What if I couldn't do it? What if I forgot something? How could I keep her safe from everything? I remember getting her ready to leave the hospital panicking if I had enough layers of clothes on her, would she be warm enough or would she be too hot, had I put her in the car seat right, was her head supported enough....

When we got home things started to get worse. I couldn't sleep at night thinking about all the things I needed to do and worrying I wouldn't have time to do it. I would have bursts of energy feeling like I was able to do everything at once then I would have times when I couldn't even feed Daisy feeling like I would do it wrong. I started making lists in case I forgot to do things like feed her and change her. I was frightened to bath her in case I did it wrong.

I became very suspicious of my midwife and health visitor thinking that they were coming to take my baby away from me and that they had been planning this my whole pregnancy thinking I was a bad mam. When watching telly I thought I was getting messages warning me that bad things were going to happen, that our family dog would attack the baby.

On advice from my midwife I was taken back to the maternity ward where things got frighteningly worse. I suddenly lost sight of reality and thought I had died during childbirth and that I was going to hell for something bad I had done. I remember screaming out to my husband to help me as I didn't know what to do. I was assessed by the mental health crisis team and the decision was made to section me as by this time I wasn't communicating. I had gone into a catatonic state and I couldn't move my body. I remember being put into a wheelchair and I didn't know where I was going. I felt like I was in a dream and that I needed to fall or jump to wake myself up.

A bed became available for me and Daisy at St George's Mother and Baby Unit in Morpeth so I was transferred there by ambulance. I could see my family around me but they didn't seem like the people I knew and loved - they felt like intruders or actors. I was very suspicious of them thinking they were going to hurt me.

A photo of the author, Kayleigh, holding her baby girl and brushing her hair while sitting on a bed in the Mother and Baby Unit with a pink blanket — Kayleigh and daughter Daisy in the MBU

When I arrived at the Mother and Baby Unit I thought I was being taken to hell and that I would be locked in a dark room forever and that horrible and unimaginable things were going to happen to me. I was still catatonic so in my mind I was dead and that's why I couldn't move or speak. I was given medication to help me get out of the psychosis but I was still unresponsive so I was then taken to another hospital for a brain scan to see if there was anything else going on. I remember being in the ambulance but I felt like it was all fake like they were trying to trick me into thinking it was all real. At this point I still wasn't aware of what was happening to me and I still hadn't spoken for hours. I remember being put into the machine for the brain scan and thinking I was going to be abducted by aliens. I jumped up and this was the first time I had spoken or moved in hours. The catatonia was over but my thoughts were still spiralling out of control.

I was taken back to the Mother and Baby Unit and as I walked down the corridor I could see all my family waiting for me. I could see white doors at the end of the corridor, which were actually fire exit doors, but in my mind they were the doors to heaven and I was walking there to say my goodbyes to my family.

I don’t remember much after that but the medication must have been taking effect as it helped me to sleep for the first time in days. When I finally woke, I realised I wasn't actually dead and everyone in my family was ok, my baby was ok. I felt like I had won the lottery. The feeling was unreal and I explained to my family what I had felt and thought. It was as if all the craziness had lifted from my mind and I was me again. I was so happy to be alive.

Unfortunately, that feeling didn't last long and I was hit with a wave of crippling depression which consumed my mind. I felt like I had lost my bond with Daisy and I didn't really want to see any of my family apart from my husband Dave.

I thought I would never get better and was going to spend the rest of my life in hospital.

As the days and weeks passed, I was allowed to try an overnight home visit, thinking back at the time I don't feel I was ready for this. The Mother and Baby Unit had now become my safe place. I knew I could look after Daisy there as I had the help of the nurses. But at home it was all on me and I didn't think I could do it. I was right, as soon as I got home the rooms seemed smaller, the fear, the anxiety, the depression it all came flooding back. Then I hit rock bottom, I felt like I didn't want to be here anymore, I wanted to just curl up in a ball on the floor and die. I needed a way out of this. I couldn't see myself getting any better. I couldn't live like this. I thought Dave, Daisy and my family would all be better off without me. I thought of ways to end my life. This was the lowest I had ever felt.

I had relapsed and couldn't make it through the night at home. I broke down and the only option my family had was to take me back to the Mother and Baby Unit.

Over the next few weeks I was helped by the nursing staff and psychologists to put things in place so that I could return home and I did, this time only for a few hours but it was lovely, totally different from my last home visit. I felt like I was where I should be at home with my beautiful little family.

Home visits became more regular and I was now spending a week at home. Everything was starting to click into place and it felt amazing. I finally believed I could be the mam that I had always wanted to be. I was discharged from the Mother and Baby Unit after six weeks and could finally start enjoying normal life again as a family. I was to continue with my medication for 12 months and be supported by a community mental health nurse who would visit me at home. I continued to recover from the illness but did relapse a year later, again out of the blue, but this time I could be supported at home and did not need to be admitted.

In 2017 we decided that we would try for another baby. We knew the risks and that there was a 50/50 chance that I would become poorly again but I was determined to put things in place this time to ensure it didn't happen. I was placed under a consultant who I would see regularly and I stopped my medication. We were lucky enough to fall pregnant quite quickly and plans were put in place for me to try to prevent another episode of postpartum psychosis. I was given the option to return to my medication soon after having the baby. I would also stay on the maternity ward for five days after the birth so I could be monitored, and a bed was even held for me at the same Mother and Baby Unit in case I needed it.

Author Kayleigh in a close up photo with her family of four all smiling at the camera with a blue sky background. Left to right Jasmine, Daisy, Kayleigh and husband Dave — Kayleigh’s family: Left to right Jasmine, Daisy, Kayleigh and husband Dave

On 1st August 2018 after the most perfect labour our second daughter Jasmine was born and our little family was now complete. I agreed to stay on the maternity ward for five days after birth as that's when my psychosis happened with Daisy and I was advised if it was to happen again it would be the same time frame. Everything was perfect. I didn't have any of the anxiety or depression that I had experienced previously and we could go home and enjoy life as a family of four.

Eight lovely months passed and we were the perfect family. Then one day the hallucinations came back and I started to see and hear things that weren't there. Having felt like this previously I told my husband Dave that I thought my psychosis was happening again. My family contacted the crisis team and by the time they came to assess me I was catatonic again. I was sectioned and admitted for the second time to the same Mother and Baby Unit. I have been told by my family that this psychosis was way worse than the first and I'm thankful that I actually don't remember a lot of it. I think my mind somehow blocked all the bad stuff out. It took longer for the medication to work this time and after a while my family were concerned that I didn't seem to be getting any better.

It was agreed by my family that I would have electroconvulsive therapy (ECT) which is a treatment that involves sending an electric current through your brain. This causes a brief surge of electrical activity within your brain and helps to relieve severe symptoms of mental health problems. The treatment seemed to work, and I was again allowed home visits starting off with a few hours, then progressing to an overnight stay. Eventually, I was going home for a full week’s home leave.

As with my previous episode of psychosis, I was discharged from the Mother and Baby Unit six weeks after being sectioned. To this day I continue with my medication as I know this is a huge preventative measure to stop me having psychosis in the future.

Author Kayleigh on the right taking a selfie of her with her husband Dave, wearing a purple APP t-shirt during their fundraising walk. — Dave and Kayleigh on their fundraising walk from Sunderland to the Morpeth MBU

It’s now been over five years since my last psychosis and for the first time I’ve felt ready to share my story and raise awareness of this heartbreaking illness. Me and my husband Dave completed a 27 mile charity walk in May for which we walked from our house in Sunderland to St George’s MBU in Morpeth to raise funds for Action on Postpartum Psychosis. We left our home at 5:40am and arrived at St George’s at 4:10pm, 27 miles and 10 and a half hours later, greeted at the end by our lovely daughters Daisy and Jasmine which was a very special moment.

We have the perfect family with our two beautiful daughters and because of what we have been through together it makes me even more grateful for what we have. The whole experience has definitely brought us closer together.

Cookies