Postpartum Psychosis & Menopause on BBC Radio 4 Woman's Hour

p0440gttProfessor Ian Jones and Val from APP discuss PP and menopausal relapse with Jenni Murray on today's Woman's Hour on BBC Radio 4. Listen again here on iPlayer.

The long-term outlook after an episode of PP tends to be very good and women recover fully. However, some women who have had PP will have further episodes of illness unrelated to childbirth.

Just over half of women with Postpartum Psychosis will experience an episode of depression, bipolar disorder or related illness at some point in their lifetime. (This estimate includes women with and without experience of mental illness before their PP episode, and so the risk may be lower for women whose PP episode was ‘out of the blue’.) For more information see our research on recurrence rates or view to our survey of recovery in APP members.

It has been suggested that some women who experience PP may be vulnerable to relapse at times of major hormonal fluctuation, such as during the perimenopause (the time from the onset of menopausal symptoms, such as hot flushes and irregular periods, until the menopause itself).  

A case series review of post-menopausal women with a history of PP, found that 30% reported an episode of illness (including depression or mania/psychosis) during the perimenopause. Strikingly, most women who relapsed during the perimenopause had been well during the years in between childbirth and the menopause. Further studies are needed to explore this potential risk period more fully and identify which women might be at risk of perimenopausal relapse. Women, their partners and families should be vigilant for signs of relapse during the perimenopause and seek help from their GP or mental health team should symptoms develop. For more information about relapse planning, see page 14 of our Insider Guide on Recovery after PP

APP is here to support women and families who suffer illness episodes following their PP, no matter how many years have elapsed since the PP episode. If you would like to talk to others with similar experiences and concerns, please visit our peer support forum or request email support. We are campaigning and conducting research to improve understanding of this illness. If you would like to help us, or to find out more about current studies, please get in touch. 

 

Triathletes Take On Xmas Mincepie Cycle

img_0547On Sunday 18th December Meynell Valley Hunters Triathlon Club (MVH) organised a Xmas Mincepie Cycle for charity and APP was the lucky recipient of a share of the proceeds, £160.00 in total. 

Warm thanks go to Robin Barber (pictured in his arresting Xmas jumper!) and a wonderful group of Tri Club members who made cakes and mince pies and helped to serve out teas during an extremely successful morning. Robin managed to whip up some amazing support from neighbouring Tri clubs and Heather Heron organised an APP information desk.

Warm thanks from us all at APP go to a truly charitable club who have already supported APP in a number of events this past year - including their Annual Xmas Dinner Raffle which raised another £150! - and especially to Robin who has initiated such a willing charity drive for APP within the club. 

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Hannah attends #HopeDec09 for APP

czry6snxeaaicarIt was amazing to be at the House of Commons last week for the #HopeDec09 event, organised by obstetrician, Raja Gangopadhay, and attended by around 150 others with an interest, passion or professional role in perinatal mental health.

APP’s Chair, Giles Berrisford, opened proceedings in his role of Associate National Clinical Director PMH, reporting that things do seem to be changing and there is more awareness and profile than ever before, but of course, there is so much more to do.

It is always inspiring to hear Alain Gregoire of the MMHA speak and his words about maternal mental health and its far-reaching consequences being “the most important issue for humanity today” was really great to hear. 

I wish there had been more time to talk about APP and the amazing peer support it offers, together with our pilot Regional Reps work to spread awareness of the organisation and that PP can affect anyone, as it did me. This slide said a lot for me: "Full Recovery is Possible. Please seek help early. No-one is immune." 

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The event focused on the importance of addressing mental health conditions during pregnancy and beyond and we heard from a diverse range of those with “lived experience” – it is so important to share these stories. PP and schizophrenia were powerfully presented by artist, Sanchita Islam and PND movingly by Lindsay Robinson of haveyouseenthatgirl.com and Mark Williams of Fathers Reaching Out Wales.

Antoinette Sandbach MP also had a number of people in tears as she spoke emotively about her experience of bereavement and the effect that this can have on women and families. The heads that nodded along (including my own), as if to say “me too” at various times during all of the speeches was really amazing to see.

It was fantastic that the whole of the UK and beyond was represented in the room, with people standing up to talk about changes in Scotland and the ongoing campaign for a Mother & Baby Unit in Wales. Lindsay had also spoken of changes she is working towards in Northern Ireland. As a proud Yorkshire lass, I enjoyed meeting up with others from the north – it is sometimes easy for us to be forgotten in the blur of all things perinatal and activity that naturally often centres on London and the other big cities. I had great conversations with another peer support organisation Raindrops to Rainbows, who are based in the north-east and supporting women and families affected by PND, so there may be ways for us to link in in the future. Our chats continued on the train north at the end of a long, exciting and inspirational day.

Words from representatives of the Royal Colleges of GPs and Midwives together with a former Royal Obstetrician and a response from the Duchess of Cornwall which was read to the room showed that the event had a really high profile. Together with those from the media and a range of organisations I hope that this really gave the event some clout to effect real change. I hear that it trended on Twitter throughout the day – surely the mark of success!

Hannah Bissett is APP's Assistant Peer Support Coordinator

Making a Difference to Local Services

elliehannahsbuCongratulations to APP Peer Support Coordinator, Ellie Ware, who has been appointed to the Executive Group of the Sussex Perinatal Mental Health Clinical Network.

Sussex is one of 20 areas across the country which will benefit from funding to improve care for pregnant women and new mums experiencing, or at risk of experiencing, mental health difficulties.

The Executive Group is intended to be the "driving vehicle for the perinatal mental health programme of work" and oversee delivery of outcomes. In other words, make sure that change happens and services improve. Ellie says:

"It's really exciting and a real privilege to be asked to be part of the Executive Group that will be developing the Sussex perinatal mental health service, which is my local service.
 
I hope to bring not only my own personal experience of PP -- what was good about my care and what could have been better -- but all the stories and voices of the women and families APP support."  
 
Sussex Partnership currently offers a Specialist Community Perinatal Service in Brighton & Hove and in East Sussex. The new funding will allow the team to expand and to provide specialist support to women, their families and their babies across the whole county – for the first time in West Sussex – and at East Surrey Hospital. 
 
Photo shows Peer Support Coordinators Ellie Ware (left) and Hannah Bissett (right) representing APP at London South Bank University Perinatal Mental Health for Healthcare Professionals conference in September 2017. 

APP at Downing Street Reception for Small Charities

img_4110Fantastic recognition for the good work APP does!

APP Director, Dr Jess Heron, was invited to 10 Downing Street to attend a reception of small charities across the UK that make a big difference to people's lives.

The government recognises that the economic climate is hard for small charities and has pledged to find ways to help small charities doing good work become sustainable.

Dr Heron said "It's fantastic for our work and the amazing dedication of our volunteers to be recognised in this way. We know that we save lives and that we have caused a sea-change in public interest and understanding of PP, but it's great when it's recognised by others"

Sue & Iain's 50th Birthday Fundraising

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Iain with baby Alex

We are so grateful to Iain and Sue McKendrick who set up a fundraising page for APP on the occasion of their 50th birthdays. Iain told us,

"We were delighted when we discovered what APP was doing, because 16 years ago, when Sue was ill, there was so little advice and information available.  We were incredibly lucky that various friends rallied round to help me, that my mum was able to come and stay for a month or so, and that the local Social Work department was willing to assign some help once Sue was home and I needed to go back to work... but it could all have been so different."

Iain's birthday was in July and Sue's is in December so they threw a big party in between and included the link to the fundraising page on the invitations asking for donations rather than presents. They managed to raise over £700 for APP, so a very big thank you to Sue and Iain!

Sue, as a 50th birthday objective, has collated a collection of her poetry and is having it published.  There is a section in the book where she talks about PP, and some of the poems are about that period in our lives, and in reference to her experience, she has called the book 'Method in my Madness'. Read more about Sue's story including some of her powerful poems here.

 

Bethlem Royal Hospital Mother and Baby Unit Fundraising For APP

cake sale for Action on Postpartum PsychosisA big thank you to the staff from the Mother and Baby unit at the Bethlem Royal Hospital who are in training for the Hampton Court half marathon in February 2017 and raising money for APP. They say:

"Working on a Mother and Baby unit, we are all very aware of the illness postpartum psychosis, as well as many other illnesses relating to women during pregnancy and after giving birth. We want to raise money for the amazing charity APP and support their work as well as raise awareness around mental health during pregnancy and after having a baby."

They have recently had a very successful cake sale to help towards reaching their fundraising target and have emailed us an update on their endeavours:

"Just wanted to share some photos with you from our cake sale. The fundraising is going well, so far we have raised nearly £500! We are planning to do a raffle for Christmas and of course sharing our JustGiving page for people to sponsor us for the half marathon."

You can support this wonderful team of people at their JustGiving fundraising page here.

 

cake sale for Action on Postpartum Psychosis
cake sale for Action on Postpartum Psychosis

Sue's poems: Method in my madness

Sue Mckendrick
Sue and baby Alex in 2000

Sue experienced PP after the birth of her son Alex in 2000. On the occasion of their 50th birthdays in 2016, Sue and husband Iain asked friends and family to donate to APP, instead of giving them gifts. They raised an incredible sum, over £700! We are so grateful to Sue and Iain and their generous donors.  When we got in touch to thank them, Sue sent us a copy of her book, “Method in my Madness” – the title of which came to her during her episode of PP 16 years ago. Here we share three of her wonderful poems.

Sue reflects, “In the year 2000,  my world was turned upside-down. I had Postpartum Psychosis, a severe episode of mental illness which begins suddenly in the days following childbirth. During my mania, I was mad about poetry and I promised to write a book called “Method in my Madness”.  Clearly, such an idea was ridiculous, because at the time, I could not focus to write a single coherent sentence!  It took me about 7 years before I could face writing a poem as it brought back such painful memories.

These poems are a personal reflection on this difficult period in my life.  This experience has changed my attitude towards mental illness.  As a result, I don’t take my own mental health for granted and try to find time to unwind.”

Out the Sun Roof

Natural birth cancelled and birth plan
abandoned; the baby didn’t come on cue.
Wired up, monitored more than
I wish; should the details be taboo?
Surgeon poised with his knife.
Is this the best day of my life?

They top up the epidural
I can feel poking and prodding.
Midwife and surgeon in conferral;
head stuck, pushing and pulling.
Implements and gowns all sterile.
Iain is watching and holding
my hand; overwhelmed, is it joy?
Huge relief: a baby boy!

One week later, I was in the Royal Edinburgh Hospital.  Mental health provisions for mother and baby were inadequate and I was separated from my new baby. 

Just a New Mum

Just a new mum: all nervous and tense.
No strength to move about,
cut off from baby, no self–confidence.
Feeling I need to punch out
at doctors who irritate and annoy.
My abilities, I have come to doubt:
one moment sad, one moment happy
and no idea how to change a nappy!

Overwhelmed, I feel overcome.
The ward is abuzz.
Crying because I want my mum;
can’t sleep; my head’s a fuzz;
painkillers make me dazed and numb.
I write lists, joke and sing because
lost my judgement, lost my mind,
memories seem misaligned.

Is this a nervous breakdown?
Pyschosis is diagnosed, agreed;
all day in my dressing gown.
Eyesight distorted, can’t read.
I’m just a new mum – all slowed down.
Expressing milk but can’t feed.
How can I be in such a state,
scared of what will be my fate?

Method in my Madness

With glistening eyes oozing sadness,
he is stressed and tense.
“I think there’s method in my madness!”

He listens and gives me a look,
not wishing to cause offense,
his glistening eyes oozing sadness.

“That’ll be the title of my book.”
It will be full of common sense.
Good title: Method in my Madness!

“Do you like it?”  I burble.
He is sitting on the fence,
his glistening eyes oozing sadness.

Baby Alex gurgles.
If only I could write a single sentence.
There must be some method in my madness.

I start to tell a joke about Agnes
and Ayli next door, but lose my focus,
my glistening eyes oozing sadness.
Some day you’ll find method in my madness!

Dr Jessica Heron speaks on BBC Radio Wiltshire

Dr Jessica HeronOn 30th Nov Dr Jess Heron, Director of APP was asked to speak on Radio Wiltshire's Breakfast programme. She was asked to respond to the news that Wiltshire mum, Holly York, said that the NHS let her down after she gave birth and was suffering from extreme Postpartum Psychosis.

Jess took the opportunity to explain more about Postpartum Psychosis and to comment on its current status within the field of perinatal mental health. In addition she made an appeal for continued support of APP charity as a consequence upon the ending of major funding by The Big Lottery.

You can listen again here.

2016 International Marcé Society Conference - Melbourne, Australia

The Marce Society was founded in 1980 by Professor Ian Brockington (also founder of APP’s research network). The Society promotes research into the mental health of women, their infants, and partners around the time of childbirth, and the Marce Society’s biennial conference plays host to the most cutting edge international research in Perinatal Mental Health. Dr Sue Smith, Consultant Perinatal Psychiatrist, Cardiff, first attended the Conference in 1996. She reports for APP on the differences she has noticed between then and now.

Marce Conference - Action on Postpartum PsychosisOn returning from the Marcé biennial meeting in Melbourne in September I was keen to consolidate the copious notes I had made and summarise what I had learnt. Digging around in my office I found that I had done a similar exercise after attending my first Marcé meeting in London in 1996. I was struck by the similarities between what was presented and discussed then and what was still on the agenda 20 years later.

However what has changed is the number of people who are talking about perinatal mental health, the increased multidisciplinary aspect of the membership of the Marcé, the input from women with lived experience and the ‘women power’ represented by the number of recent female presidents!

It is probably fair to say that in 1996 perinatal mental health services were regarded as something of a luxury. Twenty years on despite still trying to understand the biological underpinnings of peripartum mood disorder (and I left scratching my head after some of these talks!) the absence of a service is now more of a talking point than the presence of one. In the UK the tireless work of the Maternal Mental Health Alliance has highlighted the areas where services are lacking - and the hope is that its launch globally, announced at the conference by Alain Gregoire, will achieve similar things on a worldwide scale.

Accepting that for many countries services are limited and that those attending Marcé are likely to be people from places where services are developing or have developed, it is still impressive that I heard many inspirational talks from various parts of the world including  Australia, New Zealand, Canada, USA, Portugal, Scandinavia, France, Malaysia, Bangalore and of course the UK.

A major theme throughout the conference was the importance of pregnancy and within this  a particularly fascinating talk was given by Rachel Yehuda from the USA. Her work on holocaust survivors may have demonstrated that psychological difficulties in their offspring could be related to preconception effects of trauma, passed on at conception and further developed during pregnancy.

Marce conference - Action on Postpartum PsychosisThe concept "It takes a village to raise a child" was a lovely way of introducing a number of talks about how in western societies the role of the family and wider social networks in supporting women in the postnatal period has largely been lost. The challenge is how to replicate this sensitively within the networks of professionals women now encounter in the perinatal period.

There were a number of presentations about fathers and the importance of acknowledging their part in it all. It was interesting to hear about a service where dads were texted daily to ask how they were. It also reminded them to complement their wives/ partners who appreciated this even though they knew they had needed prompting to do it! It was great to see Mark Williams from Wales talk passionately about his experience when his wife suffered severe postnatal depression - though I think his "by 'ere" may have confused some people!

On the theme of decision making about and within pregnancy, it was great to hear Claire Dolman talking about the dilemmas of pregnancy in bipolar disorder and the recent BJPsych open article she did with Ian Jones and Louise Howard.

Simone Vigod from Toronto talked about a decision aid they are developing regards taking antidepressants during pregnancy. Initial results did not demonstrate a great reduction in decisional conflict but with some refinement this could be a very useful tool.

It is very unusual to see a drug company representative at a perinatal meeting but Sage Therapeutics from the USA bucked this trend by presenting their very early but potentially exciting research using allopregnanolone, a metabolite of progesterone, for postnatal depression. It is early days but initial results were promising so watch this space!

Marce Conference - Action on Postpartum PsychosisIt wasn’t all hard work - the Gala Dinner was followed by us being taught how to do Bollywood dancing in advance of the next meeting in Bangalore - some of you may recognise who is getting into the swing of it all!

 

My take home messages were
-  pregnancy is a very important time
-  more research is still needed regards the biological underpinnings of peripartum mood disorders as every answer we get provokes another question
-  remember the dads
-  a lot of people care about this field including those with the power to do something about it i.e those with the purse strings - so we have to keep nagging!
- roll on Bangalore 2018

Marce Conference - Action on Postpartum Psychosis
APP Trustees Dr Ian Jones and Clare Dolman with MMHA's Alain Gregoire and Emily Slater

 

Marce conference - Action on Postpartum Psychosis
Dr Sue Smith