Tag Archives: MBUs

Lizzy’s story: My postpartum psychosis made me re-live my birth trauma

After a smooth pregnancy I experienced a long and traumatic labour. My baby was back-to-back which put pressure on my nerves, and I didn’t sleep once throughout the labour which lasted for days. When postpartum psychosis hit, those traumatic birthing experiences came flooding back…

Before postpartum psychosis I’d never suffered any mental health problems. There were things that I was naturally anxious about relating to the birth – because you read so much about what can go wrong – but generally the pregnancy went smoothly.

The labour, however, was incredibly difficult. Because my baby, Patrick, was born back-to-back (i.e. he was facing the wrong way) he was pushing on my nerves which gave me the sensation to push when my body wasn’t ready to. My waters were also broken by the midwife with no prior warning, which made me think for a split second that I’d haemorrhaged. So my labour lasted a long time and I didn’t get any sleep. In fact, I think I only managed about two to three hours in four or five days.

Patrick was delivered by forceps and I had a Grade 3 tear that needed stitches. He was also mistakenly taken for blood tests because they thought his kidneys weren’t working (a nurse had failed to record when he’d had a wee.) At one point in the postpartum ward I noticed Patrick choking on mucus next to me but I was unable to get to him because of the epidural. I rang the buzzer and shouted but it took ages for someone to respond. Combined with the sleep deprivation, all of this was making me feel extremely anxious.

It was around then that I started to become suspicious that the midwives were talking about me being a first-time neurotic mum and I discharged myself at 4am- an incredibly out of character move.

When my husband was driving us home, I started shouting at him to be careful of the runners in the road. This was my first hallucination – there were no runners in the road.

At first, we kind of laughed it off and put it down to sleep deprivation and the tramadol I was taking. We didn’t realise it was a sign of what was to come.

When we got home, I was convinced that the house was on fire because I could see smoke. Again, we put it down to lack of sleep and painkillers, but my mum moved in to help us out anyway as everyone was starting to get worried about me.

The first evening I spent at home I remember being in agony because of the tear that I had suffered. I was terrified that the stitches were going to burst. That’s when I ran to our car with no shoes on wearing only maternity knickers and a shirt, begging Adam to take me back to hospital. I was seen in triage and sadly none of the professionals who saw me noticed the red flags of psychosis that were quickly developing. My physical health was checked and I was sent home.

I reverted to very childlike and vulnerable behaviour. I also began speaking very quickly and not making much sense. I kept forgetting Patrick’s name.  A midwife visited me for the two-day check-up and I remember thinking I wished our regular midwife could be there because I knew I wasn’t myself and she would have noticed that.

At that point I was still wearing my hospital band and I hadn’t showered or brushed my hair in days. I felt like a voice in my head was almost screaming please get me help to those around me but I couldn’t actually say it out loud. My mum actually did ask the midwife for mental health support but the midwife said there was no need – she said I just needed a good night’s sleep and a walk around the block.

But my increasingly strange behaviour continued. I was rubbing my stomach a lot despite Patrick not being in there anymore. I was constantly pacing, and my mum described me as doing everything and nothing. Patrick was crying and I was zoned out and couldn’t even hear him. My mum would say maybe he needs his nappy changed but I couldn’t work out how to do it – I couldn’t even make a cup of tea. I was so confused.

I didn’t eat. I kept saying I was going for a shower but not going. I was flitting through lots of thoughts and feelings - one minute feeling positive, the next teary. That’s when I started using my notes app on my phone to keep track of my thoughts.

I could not sleep. No matter how hard I tried or how tired I felt.

My brain was wired, my thoughts going at 100mph. I was googling about postpartum insomnia, trying to understand why I couldn’t sleep.

On the morning that I was sectioned, things get hazy. I still hadn’t slept or eaten. I remember feeling a primal urge to scream. My mum tells me that I ran and attempted to throw myself at the window. I thought I had died in childbirth and I started screaming that I was in hell and reeling off goodbyes to people. Then I started believing my mum had died, and that Patrick had died. At one point I was terrified that I had killed Patrick myself. I have little to no memories of this episode, it was an out of body experience.

My mum then shouted Adam to call 999 as she thought I might have psychosis. She spent her career in social care so was vaguely familiar with it. She’d also watched Stacey’s story in EastEnders and recognised what may be happening. Meanwhile I lay on the floor in the living room, shouting and screaming. Eventually the police and an ambulance came and I was taken to hospital, terrified. When I got to A&E I was covered in my own urine because part of my psychotic episode involved pushing, as if I was still giving birth, and I thought the urine was me haemorrhaging. I was also having terrible hallucinations of Patrick choking because of my experience in the postpartum ward.

Eventually, I was sectioned and transported to Derby Mother and Baby Unit (MBU) as there was no room in the Leeds MBU nearby.

When I got there I was immediately given olanzapine. I was still psychotic for a while, eventually convincing myself I was pregnant with twins and thinking I still had to give birth to one baby (this stems from my husband being a twin). During one episode I even burst my stitches too. I couldn’t feel pain - it was an out of body experience.

Eventually, after a few days, the antipsychotics started to kick in and I very quickly returned to myself. I remember feeling really embarrassed then. I asked my parents to show the MBU staff photos of me on my wedding day and to tell them I’m a teacher because I couldn’t believe what they saw me doing.

But after all that time thinking that I was in hell, I started to realise that I was in a good place. The MBU wasn’t hell, it was more like heaven. It saved me.

I was so relieved to be over the psychosis, but then depression hit me like a ton of bricks. I adored Patrick but couldn’t show it and I struggled to be near him. I withdrew from everyone and didn’t want to leave my room. I wouldn’t wish depression like that on my worst enemy. The doctors upped my sertraline and things gradually did get better but it took a while and a lot of care from the staff.

I left the MBU at the end of January having been there since the end of November. My mum and dad got an Airbnb close by to help settle me back in and the good days started outweighing the bad. Patrick becoming more smiley and interactive healed me a lot and I started going to baby groups and opening up to people about what I’d been through.

My mum found APP. She was supported by a grandmother peer supporter, and found great comfort in this. I then reached out and met Ellie, one of the peer supporters, in York. It helped me so much speaking to someone else who has been through what I had. When you’re coming to terms with what happened to you, you think to yourself, surely that’s a unique experience. But actually there’s a huge community of people with a lot in common.

Now I’m determined to spread awareness.

I’d never had any mental health issues in the past, so postpartum psychosis hit me completely out of the blue. It really can happen to anybody, so I want to be open with people about my experience.

I would say to anyone going through postpartum psychosis that, as scary as it feels, there is a community of people waiting for you when you’re better. You feel so alone when you’re in the midst of it, but you are not, I promise. And you can, and will, recover.

Another football season kicks off for Chris!

For the last couple of years, APP volunteer Chris has made it his mission to raise awareness of postpartum psychosis.

Not only is he doing talks, appearing in magazines and academic journals, he's also taken on a personal challenge to try and watch a match at the nearest football ground to every Mother and Baby Unit (MBU) in the country, wearing his special APP footie top, and getting a mention in as many matchday programmes as he can, as well as visiting the local MBU where possible.  Read about all his adventures so far here.

He's already been to his first fixture of his third season as part of this challenge. Here's his latest match report...
'Season 3 of my postpartum psychosis football awareness tour... HERE WE GO!
So far I have been to 10 football matches around 9 MBUs. And on Saturday 2nd August 2025, I kicked off my 3rd season by seeing my 11th match at Colchester United!
I went to this match with my dear friend Katie, and her son and nephew. It was Katie's nephew's first ever live match.  My home form woes looked set to continue - until an 87th minute Colchester equaliser! Phew!
Colchester put a lovely entry in their digital matchday programme about my challenge, postpartum psychosis and the MBUs.

But the standout moment was definitely being featured on the big screen in my MBU/APP football shirt, with the stadium announcer giving me a shout-out and sharing my challenge with everyone in attendance—both before the match and during halftime!

This was such an incredibly unique and emotional moment for me. I knew that I was going to be featured on the big screen, which was incredible itself, but to hear the stadium announcer share my challenge to the almost 6000 fans in attendance was just amazing. 
The JobServe Community stadium is less than 30miles from the Rainbow Unit MBU in Chelmsford.  And I actually got to visit this MBU on this trip.  It had a room with the handprints of mums and babies who had stayed there with positive affirmations which was just beautiful to see.
I am so incredibly proud of this challenge. And I am loving every moment of it!'
Next stop on Chris's tour was Notts County on 15th November, where he managed to get his name up in lights!

Billboard at a football match reading 'Welcome to Meadow Lane Chris Wasley - raising awareness of postpartum psychosis and mother and baby units''Myself and two good friends went to see the world's oldest professional football club - Notts County - draw 1-1 with Harrogate at Meadow Lane.

There is no doubt about it now...I am officially a home team curse! But regardless of the result, it was a great weekend with great company!

I’ve been so lucky with the support from clubs so far on this challenge, and Notts County FC once again helped me spread the word by giving me a shout out before kick off and at half time and sharing a few words about postpartum psychosis and the MBUs on the scoreboards!

 

Meadow Lane stadium is less than 5 miles from the Margaret Oates MBU. And I actually got to visit them on this trip!  It was so lovely to meet the Deputy Ward Manager Pip and Nursery Nurse Sam, and to talk about their incredible work in helping new mums with their mental health. Margaret Oates is such a lovely MBU! The whole place is filled with uplifting, positive affirmations, and I was particularly impressed with their post-discharge debrief meetings and the support they provide for partners.

 

This match marked the official halfway point of my challenge — I’ve now been to 12 football matches at 11 of the 22 Mother and Baby Units across the UK!  It’s been an intense but incredible two weeks of raising awareness, and I’m so grateful for all the support so far.

 

If you need support, or want to talk about postpartum psychosis, please reach out to APP - they offer incredible support for the whole family.  Please remember that you’re not alone 💜'

Follow Chris's progress on Instagram: @wasley_postpartumpsychosis

Frankie’s story: I was lucky to get a bed on an MBU – every woman with PP should have access to one

By Frankie Roe

My friend said I’m the world’s worst patient and she is absolutely right. My brain doesn’t cope well with being told what to do or being stuck indoors, so I keep it happy by being active and spending lots of time outside. So, if I’m being honest, I absolutely loathed being stuck in an MBU. But I don’t know where I’d be today without the high standard of care that I received in there.

It was after giving birth to my firstborn that I became unwell, although, when I look back on it, I was struggling with anxiety for a long time before I even got pregnant. I found the pandemic really tough - not the fear of being ill, but the fear of being confined. I was also struggling with anxiety around the pregnancy, as I miscarried the first time which was really traumatic. Due to covid restrictions my partner waited in the corridor while I sat on my own waiting for our scan to confirm the pregnancy had ended. He was briefly allowed in before being sent back outside.  We weren’t offered any counselling or support.

I got pregnant a few months after the miscarriage and hated every second of the pregnancy. Even after the 12-week scan when they told me my baby was well and wriggling around, I couldn’t relax. I became convinced the baby had stopped moving and was going to die.

I told myself that when the baby arrived I’d be able to relax, but my daughter wasn’t gaining weight and seemed so vulnerable. And so after the birth my fears about dead babies intensified.

I wasn’t sleeping, I was having to drive to the other side of the city for health appointments because of the pandemic and I was exhausted. But I kept powering through. When I couldn’t sleep at night I was cooking or painting furniture at 4am, and I was putting my daughter in her baby sling and going for four-mile walks across the moors. Because I’m such an active person these things didn’t stand out too much, but in retrospect they were definitely extreme - even for me.

I saw my GP and was diagnosed with postnatal depression and given antidepressants – and things rapidly deteriorated.

After starting antidepressants, I was cycling through rapid mood swings – being absolutely manic one minute and telling my partner I felt like jumping off a bridge the next. Plus, my sleep at this point was pretty non-existent and I became convinced that it was because of the colour of my bed sheets. I was terrified that I might never sleep again and the lack of sleep would kill me. I became increasingly possessive over my baby and refused to let my partner take on his share. I was hearing babies crying when I did manage to step away from her for a shower or to rest but would come downstairs in a panic to find her sleeping peacefully.

About ten weeks post-birth I mentally hit a cliff edge, the crisis team was called, and I was admitted to a Mother and Baby Unit (MBU).

I already knew what an MBU was because they came up in my Google searches when I was trying to find out what was wrong with me. I knew something wasn’t right - I just didn’t know what - so I agreed to go in voluntarily. My partner later told me that had I not agreed, I would likely have been sectioned the following day.

It was a weird experience because it was during the pandemic, and I had to stay in 24-hour isolation upon arrival, but it was good for me because I was given lorazepam and finally slept.

They immediately took me off my antidepressants and started me on antipsychotics and the psychosis improved really quickly. Still, I didn’t enjoy being in there. I know people need MBUs and hospital care, but I resented being inside and feeing like my life was controlled – and all the pandemic restrictions on top of that were tough, too. But I knew it was the best place for me.

Although the psychosis subsided quite quickly, I had really bad anxiety and my sleep patterns were all over the place. Even after discharge, I had recurrent periods of insomnia and I lost a lot of confidence. I found myself deferring to my partner when I’m naturally independent and stubborn.

I was back at work 10 months after giving birth and, although in hindsight I probably wasn’t fully ready for it, my manager was great and I felt really supported.

After having PP, I didn’t think I’d have another baby. But after a few years I felt ready to try.

I became pregnant really quickly and have been lucky that the second time around I didn’t become mentally unwell – but I also knew I had lots of NHS professionals on the case if I did.

I feel so grateful that, when I needed it, that specialist care on an MBU was there for me – because the idea of being separated from your baby on a general psychiatric ward is inhumane. I was told there were only eight beds for Yorkshire and the Humber so I was incredibly lucky to get a place when I needed it – and that’s why we need more MBU beds available for anyone who needs them. You hope you won’t need one but if you do become seriously ill, it’s definitely the best place for you. It will probably be hard but what would be a damn sight harder is sitting at home and letting it get worse and worse.

That’s why I think, if you get the choice to go voluntarily, you should absolutely take it. You might feel as though you’re losing your freedom at first, but you’ll get your freedom back so much sooner if you accept all the specialist help on offer. And when you look back on it, you’ll feel good about making that choice and accepting that help. I know that being on a mental health unit doesn’t make me a crap parent – and that accepting the help was the best thing to do for me and my baby.

Iqra's story - I kept pushing myself like I had a superpower

When a mental health professional told me that I was really poorly - but that I could be treated - I stopped running away from it. I finally knew that there was something wrong with me, that it wasn’t my fault and, with the right help I could get better. It was the most reassuring thing anyone had said to me since I gave birth to my twins.

It was 2023 when I became unwell with postpartum psychosis (PP). I didn’t actually realise I was unwell at the time, but now I can reflect on it, I can pinpoint when it all started. And I believe I started to become unwell almost straight after giving birth.

I already had three children when I was pregnant with twins. My husband and I were both really excited. We’d recently moved house and had it renovated, and I was due a c-section, so everything felt a bit more planned. But we certainly didn’t plan for me becoming so unwell. In fact, neither me nor my husband had ever heard of PP before it affected us.

After giving birth, I didn’t really feel a connection to my new babies. My husband was obviously busy trying to look after our other three children, one of who has special needs, and I just felt a bit overwhelmed. I was struggling to feed the twins and I was really low on iron, which meant I found it hard to stay awake and I kept losing consciousness.

I just couldn’t admit that I needed help and I needed to slow down.

After having a blood transfusion I was able to go home to be with my family. I was excited to be back at home but I found it really difficult. I’d be up in the night with my newborns, and my husband would be up in the night with our son who is autistic. The workload of running a home and looking after five children just became too much – but every day I kept telling myself that I was fine – I could handle it. I just couldn’t admit that I needed help and I needed to slow down.

As exhaustion started to get the better of me, I started to believe some strange and supernatural ideas. The house we live in is my husband’s late grandad’s, and I started to believe that his spirit was around me and that I could hear his voice. I didn’t feel scared at first – in fact I felt quite positive about the experience. But as time went on, I started becoming agitated as well, snapping at everyone and yet I still refused to admit that I was struggling and needed help.

I set myself really high standards, trying to breastfeed both my twins and trying not to give them dummies which was really tough. Then, when they were eight weeks old, I broke down, feeling defeated. I gave them dummies and felt really disappointed in myself.

I was losing control of my own mind.

From that point on I wasn’t sleeping at night, even when the twins were asleep and I had that time and space to myself. I remember that I would look at their faces and feel scared. My mind was playing tricks on me and, when I looked at them, their faces looked disfigured. I was losing control of my own mind.

I definitely still had some kind of grasp on reality, however, because I knew that if I said out loud what I believed and what I was thinking people would assume I was crazy. So I kept everything to myself.

My delusions and hallucinations started becoming more intense at this point. I created some kind of male figure in my mind who was telling me that I wasn’t attractive and that my hands and my hair were awful. I became obsessed with these thoughts, spending all night brushing my hair and washing my hands over and over. Then the delusion started to spiral out of control, telling me to take my own life, and that my family would be better off without me.

As a Muslim woman in the Asian community, I’d heard people talking about black magic and I started wondering if somebody had performed black magic on me. I had no understanding of maternal mental health problems, and I’d certainly never heard of PP. I was so burnt out and exhausted by this point that I did eventually take an overdose to try to end it all.

My husband found me after I fainted and called an ambulance. The paramedics took me to hospital, but I was so out of it I kept trying to run away, to run back home. Eventually, someone from the mental health team came to speak to me and that was the big turning point for me.

That’s when they told me I was unwell, that I needed help, and that I could get better. Because I had tried to take my own life, I was admitted to an MBU (Mother and Baby Unit) but at this point nobody knew about my hallucinations and delusions as I kept it all to myself – so nobody knew I had PP.

After admitting to the hallucinations and delusions and getting the antipsychotic medication the psychosis started to recede really quickly.

As soon as I was admitted I was given sleeping pills and they worked wonders. However, they certainly didn’t cure me and it wasn’t until I finally admitted to the staff about my psychotic symptoms that I was given the right medication to get me on the road to recovery.

Still, it took a while to get fully better. I took so many medications, at one point I was taking 14 pills every day! My anxiety was sky high and I felt really overwhelmed and panicky and was unable to control the amount of oxygen I needed so I kept passing out.

But after admitting to the hallucinations and delusions and getting the antipsychotic medication the psychosis started to recede really quickly.

You hold back because you think your children will be taken away or you’ll be locked up forever, but for me, being honest was the turning point. Letting the health professionals in on what was really going on was the only way to get me well.

Now I’m recovered I want to share my story because I know how reassuring it is to meet others who have been through what you have. Motherhood is really hard anyway, but adding maternal mental illness into the mix makes things incredibly difficult. One thing I have learnt, however, is that your mind is really important and, if it needs rest, you need to let it rest. Plus, if you are becoming mentally unwell, the only real way out is by being honest about it and asking for help.

Before I was able to open up, I didn’t really socialise in the MBU, where I would stay for three months in total. But when I started speaking to the other mums in there and realising I wasn’t alone and I certainly wasn’t crazy, I started to feel so much better – speaking to others definitely helped me in my recovery. Now, I hope I can play a part in helping other women and families too.

 

 

Juliette’s story: I’m a midwife, but I wasn’t prepared for postpartum psychosis

It’s so odd to go completely mad. It’s such a weird experience. I remember quite a lot of it and how vivid and visceral those feelings were and, even though I’d experienced mental health problems in the past, nothing quite prepared me for postpartum psychosis.

I’m a midwife, and I’ve supported other women with perinatal mental illness. I’ve even suspected PP in others so I have some awareness of it. But even with that knowledge and experience, I never considered it was something that might happen to me.

My pregnancy went smoothly and I really enjoyed it. I didn’t feel particularly worried or anxious about anything. I was hoping for a home birth but I was open minded so when I ended up in hospital it wasn’t an issue for me. Being a midwife, there were some things that played on my mind, like the risk of stillbirth, for example, because these are things we have to deal with, and I had some concerns about postnatal depression because I’d suffered with depression before. But I felt so well in pregnancy that I didn’t feel the need for any additional support or referrals

I went into labour and had a beautiful few days at home but after the second day of labour I wasn’t progressing well so I was transferred into hospital. I had quite a lot of gas and air which I felt messed with my head a bit and, because my waters had broken three days earlier and I wasn’t progressing, they suggested I have a C Section.

I agreed but remember having a panic attack in theatre. I couldn’t cope with the feel of it and I think it also triggered some past trauma as well. However, not long after I was holding my baby boy and feeling delighted.

We went home and I remember being quite happy but crying a lot. I struggled with sleep because I kept having nightmares, so I tried not to sleep and just watched my baby. Obviously the midwives that visited knew something wasn’t quite right because they suggested I speak to the mental health midwife. She suggested sleeping pills but they just weren’t touching the sides – I remained wide awake.

I started to notice strange things, too. I’d believe that the films we were watching were about me. Even films like The Aristocats!

I also became completely obsessed with snooker. My partner, Ross, taught me the rules and we watched it on TV and I thought I was really clever learning such complicated rules after giving birth. I’d even tell the midwives all about it.

Then, one morning, I was retching and needing to throw up but I couldn’t. In my mind I thought I was maybe like a baby that needed burping so I lay down on the floor and was crawling around. Then I crawled to see Ross and told him that I’d unlocked one of the biggest secrets of the universe – that when you give birth you have an experience where you become like the baby which helps you learn how to look after a baby. I phoned my mum and told her this as well.

Both Ross and my mum agreed I needed to go back to hospital at this point!

I was stressed and anxious as we climbed into the Uber to go to the hospital. I was rambling and became more and more frustrated that nobody seemed to be listening to me. At the hospital I asked for a laptop and ended up frantically writing a 5,000 word essay to explain my feelings. I stayed there for five days, crying, screaming, thinking I was dying and believing all sorts of strange things – including that my colleagues were forcing me to reenact my caesarean and that my baby had died. They tried giving me different meds to help me sleep but nothing was working. It was hard and confusing being on the ward where I worked with my colleagues looking after me.. My beliefs about different films being about me worsened during this time and I also became obsessed with my phone, sending hundreds of messages to lots of different people, including colleagues and big group chats. It feels embarrassing looking back but everyone’s been so understanding. At that point I was sectioned and taken to the Mother and Baby Unit (MBU) in Bournemouth – quite a trek from my home town of Brighton.

It was a traumatic journey because I didn’t want to go – I just wanted to go home so I was rambling and shouting. I believed the faster I spoke the faster the ambulance would go. I was absolutely petrified because I didn’t really understand what an MBU was at that point – I thought it was something to do with social services.

When I arrived at the MBU, I thought I was dying of an opioid overdose. I think my breathing was slowing, and I felt I was a bit catatonic. After a day or so Ross and my baby came in and we settled into this pattern of Ross coming in all day, me having my baby, and the baby going to the nursery at night

A lady in a patterned short sleeved shirt with short hair and sunglasses on her head, sitting on a bead next to her daughter, who is lying down with her small baby next to her.
Juliette's mum visiting her in the MBU

I was on the MBU for about four weeks, but for the last week I was allowed home on leave to Brighton.

Once my psychosis had passed I was discharged to go home properly, but I fell into a very deep depression. I had so much grief about everything that happened, what I’d missed out on, how embarrassing it all was. Luckily Ross was off work for four months – something we’d planned because I was worried about having depression before I gave birth – but when he eventually went back to work I just had no confidence with how to look after our baby.

Unfortunately, I became suicidal and had to go back to a different MBU to treat the depression a few months later. I started on lithium at this point. I was quite scared of that drug because of the blood tests you have to have to monitor things and it sounds quite intense and scary but it did seem to work and I’ve started to feel much better – although the whole experience still feels incredibly sad and unfair.

My baby is so much more interactive now so that’s really nice, but I was always so excited for that tiny newborn phase and I’m heartbroken that I missed out on so much of it. But we are having nicer times as a family now which I’m enjoying.

I honestly can’t thank my friends and family enough for all their support during my illness and recovery, and I’ve had great help from APP’s peer supporters too.

That’s why a group of us are fundraising for APP by taking part in a 10k run in April.

A woman with her hair tied back, glasses and a smile on her face, holding a tray with half eaten cinnamon buns and a purple t-shirt that says APP on the front
Enjoying cinnamon buns after a run

I’d honestly say to anyone experiencing PP that people are generally more understanding than you might think they’ll be. It’s invaluable for you and your partner to have that extra support so do reach out for help and remember, there’s no shame in having PP. It’s not your fault.

To find out more about Juliette’s fundraiser and donate click here

Natalie’s story: When I joined an APP café group it was so reassuring to know I wasn’t alone

 Nobody in my family had heard of postpartum psychosis before, and even some of the doctors who were first treating me didn’t know what it was. But getting admitted to an MBU and finding the APP peer support community has been an amazing help.

It was 2019 when I had my first baby. Our son was born after a relatively straightforward pregnancy and a really good birth. I’d taken a hypno-birthing course, practiced relaxations and visualisations, and, on the day itself, I enjoyed a very quick labour with no need for pain intervention. I felt so lucky and it’s a nice moment to look back on because, not long after leaving hospital, things went downhill very quickly indeed.

As a first-time mum I was really anxious.

You don’t get handed a manual and every child is different, so I was always worrying about whether or not I was doing things right. I also felt as though I got a lot of mixed messages from the different midwives and health visitors, so I found everything confusing.

I started writing lots of lists and obsessing over things like the number of dirty nappies he should have, and I struggled with breastfeeding too. Add to that a total lack of sleep (I think I must have got around eight hours in total during the first week at home after birth) and not eating well and my anxiety was through the roof.

The problem is, when you’re a first-time parent, you expect big changes, so we didn’t know if all this was normal or not. However, after being at home for a week there was a turning point when things got really bad.

I remember getting a shower and hearing my baby crying. I told my husband but, in reality, we knew that I couldn’t really hear him crying because he was too far away. I think that might have been my first hallucination.

After that, my moods became really up and down.

I had low mood and tears one minute, the next I’d be normal, and the next I’d be really high, hyper and giggly. It became really obvious to my husband that something was wrong, but he had no idea what it could be.

During an evening meal, around a week after the birth of my son, I was holding my baby and could see him turning blue and choking before my eyes. I was hysterical, I truly believed my baby boy was dying in my arms. Of course, he wasn’t turning blue or choking – this was another hallucination.

Soon after the hallucination that my son was dying in my arms, we went to my mother-in-law’s for a night. On the way to her house all I could hear was the baby crying, it was so distressing. Talking to my husband more recently, he told me I was deadly silent during the journey. Once we were at my mother in law’s I actually slept really well. But the next morning things got worse. I was convinced my baby had died – and that the baby I was holding was somebody else’s.

My husband talked me into going to A&E – saying we should get our son checked over. In reality, he wanted to get me seen by a doctor as he knew that I was the one who was unwell.

During that first visit to A&E I was really delusional and paranoid. I was admitted to hospital that night – to a geriatric ward (which was really inappropriate) – but I was so desperate to go home I did everything I could to convince them there was nothing wrong with me, that it was just a case of sleep deprivation. My husband said I was quite convincing at that point and I think that’s why, after being transferred to an MBU the following day, my initial admission was so short. I was there for three and a half weeks. Of course, when I went home, having convinced everyone I was well and stable, things gradually worsened.

My confidence was shot and I was full of anxiety and kept experiencing dips in mood. I struggled to go anywhere alone and became paranoid about bad things happening to my baby, so I found it really difficult to do things like taking him swimming. The intrusive thoughts were just awful.

Around this time I started going to baby groups and meeting up with other mums and family friends. I also had support in the community from the perinatal service and we eventually tapered me off my meds. Unfortunately, it was all too soon and then Covid hit – which was also a big trigger for me.

So, nine months after having my baby, I was admitted to an MBU once again. And, once again, I tried to convince them I was well and after a few short weeks I was actually discharged for a week, but I ended up being re-admitted.

By this point I think I became resigned to the fact that I was ill, and I was no longer able to convince everyone otherwise. I started engaging with the activities and therapies in the MBU – baking, painting my nails, having psychotherapy. I was also finally on the right medication.

When I came out of the MBU after the third admission, I was much more confident. I was happier to do things with my son, happier to socialise. I went back to work which was really difficult, but since then I changed jobs and my new team and management have been so supportive.

I have now been diagnosed with bipolar which would account for the first relapse when my son was nine months old, but I’ve had my daughter since and we had no problems or relapses, so, with the right help, things can be managed.

The experience of PP, although horrible and traumatic, has also given me some positives. I think I feel more confident and able to stand up for myself these days. I know I don’t want to become unwell again so I am much more able to identify when I need to practice some self-care.

Now, things are really good for us. My husband and I have been doing lots of fundraisers for APP which have been great fun to do, and we have also joined the charity’s peer support community. I attend café groups and it’s made such a difference. Meeting people who have had what you have – especially when you’d never previously heard of it – is so powerful. My husband also goes to the partner peer support groups and my mother-in-law is also involved in APP’s peer support. We also take an annual trip to Bournemouth MBU around my son’s birthday which is such a positive thing for us, the staff love seeing us and we look forward to the trip every year.

If anyone reading this is going through PP or in the early stages of recovery my advice would be to listen to the professionals and accept all the help you can. I truly believe I would have recovered a lot sooner if I was able to accept that I was unwell. I’d also say do everything you possibly can to get as much sleep as you can, whether that’s asking the MBU staff to have the baby overnight or asking a family member to help so you can get a cat nap during the day. But perhaps most importantly, I’d like them to know that, although it’s a really tough time, you should never blame yourself. It’s not your fault and there’s nothing you did wrong.

And you can recover – I am proof of that.

Chris kicks off a new season of awareness raising

Chris and his dad inside the stadiumAPP super supporter Chris is back for another season of raising awareness of APP through attending football matches across the UK.

Since 2023, Chris has been going to football matches at grounds around and closest to the 22 Mother and Baby Units (MBUs) in the UK. He has a specially made purple APP football shirt that he wears for every match and does his best to get a mention in the matchday programme each time.

This season he's kicked off with a match at Crystal Palace FC. Chris reports back for us here:

'Match #6 complete! Football season is officially back! 
On Saturday 14th September 2024 I attended my 6th match of my football awareness tour with my dad Gary!  We went to see Crystal Palace draw 2-2 at home against Leicester at Selhurst Park. 
After a disappointing first half, The Eagles recovered from two nil down to secure a draw. The exciting second half and passionate home crowd, celebrating 100 years at Selhurst Park, made for a brilliant experience! 
I have to say a special thank you to my fellow PP dad who helped get us these tickets. I am so so grateful! This was a surprise fixture at this stage of my awareness tour, and a day neither my dad or I will forget. 
Despite very high demand I was able to get an entry about my challenge, postpartum psychosis and the MBUs in the match day programme!
Unfortunately, I wasn't able to visit the local South London and Maudsley MBU in person on this occasion. But I did manage to speak to the Ward Manager and another member of staff before my trip, to thank them for all the amazing work they do.'

UPDATE 26th October 2024

Chris's latest trip was to Bolton last weekend, another successful day - he's reported back on it for us here:

Chris in his purple APP football top outside Bolton Wanderers Stadium'Match #7 complete!

 

Yesterday, Saturday 26th October 2024, I attended my 7th match of my football awareness tour with my good friend Ross.  We went to see Bolton beat Peterborough 1-0 at home thanks to a dramatic stoppage time winner.

 

I have to be honest and say we were hoping for a goal fest given the two clubs form, but it was certainly an entertaining finish!

 

Bolton put an amazing entry in their matchday programme about my challenge, postpartum psychosis and the MBUs. It was lovely!

 

Technically I have already attended a football match close to the Chorley Ribblemere MBU, seeing Accrington Stanley last October (2023), and also visiting the MBU in person this March (2024).

 

But Bolton is less than 10 miles away from the MBU. And I know Ross has been eagerly waiting to join in on this tour and help me in raising awareness for this cause. So it was a great day out!

 

Before the game we were lucky enough to meet up with Kieran Anders from Dad Matters.  It was great to be able to meet Kieran in person, fresh with a new trim having just chopped off his hair for The Little Princess Trust and Home-Start HOST!

 

In a rare turn of events for this awareness tour, the home team won! So Kieran said I am welcome to come back again!'


UPDATE 12th November 2024

Next stop on Chris's tour took him to Derby:

Chris standing pitchside with members of the Derby team.'On Saturday 9th November 2024 I attended my 8th match of my football awareness tour with my good friend Ed!

We went to see Derby draw 1-1 against Plymouth Argyle at home at Pride Park.

The highlights of the game had to be the opening goal, a bicycle kick from Derby, and an outrageous Derby strike from the halfway line that the Plymouth goalie just clawed away.

On this occasion I wasn't able to get an entry in the matchday programme...it appears Derby don't do public notifications in their programmes... But I do have to say a massive thank you to the club! They were really interested in our experience and my awareness tour, and arranged for us to have pitch side photographs with five Derby players before the match.

I knew that we were going to have pre-match photographs, but I didn't know that we would be walking down the tunnel and having the photographs with the players! So, this was another incredible and unexpected experience on this journey!

The Pride Park stadium is less than 5 miles from the Beeches MBU. And we actually got to visit this MBU on this trip. It was really nice to be able to meet the wonderful Jo and Becky and other members of staff at the Beeches MBU on this trip, to talk about our experience and the important work they do and to see how another MBU differs.  And it is really promising to hear that there is work being done for, and more consideration being given to, our experiences as partners as well.'


UPDATE 8th January 2025

For his first match of the new year, Chris headed to Watford on the 4th January.

Chris and his dad standing outside Vicarage Road Stadium

'I have been to my 9th match of my tour today with my dad Gary. We went to see Watford lose 2-1 against promotion chasing Sheffield United at home at Vicarage Road. 
The match marked the eighth anniversary of club legend Graham Taylor's passing with the 'Graham Taylor Matchday'.
I have to say this was the coldest match I have been to on this challenge so far! It was very cold! 
And I really do seem to be a curse to the home teams!
Watford put a really nice entry in their matchday programme about my challenge, Postpartum Psychosis and the MBUs. They even included my Instagram account in the entry to help spread awareness.
I did call the local Hertfordshire Thumbswood MBU before my trip, but unfortunately didn't get to visit in person on this occasion. '

 You can follow Chris's awareness raising adventures via his Instagram here.

If you're a dad or co-parent that would like to meet and talk with others whose partners have experienced PP, join our virtual Dads and Co-parents peer support social / cafe group - 8-9pm, every 3rd Wednesday of the month.  Zoom joining link: bit.ly/PARTNERMEET. Or, email Simon: simon@app-network.org

Shaheda’s story: A foot spa on the MBU turned into a really powerful peer support session

While I was unwell and under the care of a Mother and Baby Unit (MBU), I accepted the offer of a foot spa from a lady on the ward. I thought it was just a pampering session to help me feel better but meeting her was to prove far more powerful than that.

Mental health isn’t talked about enough in the Bangladeshi community. I for one had no prior mental health problems and had never heard of postpartum psychosis (PP) until I was diagnosed with it in 2018. It came like a bolt out of the blue and, while my faith and spirituality has always got me through the tough times, I realised I needed more support than ever during that period.

My journey to giving birth wasn’t easy. I had two back-to-back miscarriages and was referred for investigations in 2017. However, the doctor advised us to keep trying, and I fell pregnant again at the start of 2018.

I felt really anxious about it, but Birmingham Women’s Hospital were great, really looking after me and the pregnancy seemed to progress really well. After the first trimester, I started to relax into it.

 

Photo of Shaheda looking out to sea with her pram

 

However, as the birth approached, things didn’t quite go as planned. Three days before my induction date they found signs of preeclampsia, and I was kept in for monitoring. I spent two nights on a labour ward and wasn’t able to sleep due to everything that was going on around me. Once the induction was started it did not progress well, so I ended up having a Caesarean and then my beautiful baby girl finally arrived.

By this point I hadn’t slept in over six days and, looking back, this is when I started to become unwell.

I remember the first morning in hospital after the birth the noises around me felt piercingly loud – cleaning, banging, bins clattering, mops and buckets. My senses were heightened and I couldn’t wait to get home. I was exhausted and completely overwhelmed with emotions.

I thought being at home would make everything OK, but I was still extremely emotional. I was unable to sleep, I struggled with breastfeeding and I felt like a failure.

One night in bed, my husband gave me a piece of Indian sweet that I usually love, but when I put it in my mouth it felt like superglue. I started thinking somebody was trying to poison me and I became really anxious and felt like I couldn’t breathe.

I don’t remember too much about what happened next but my family came round, and they were frantically checking my pulse, my blood pressure and my sugar levels. They then called an ambulance because I was acting so out of character and was in so much distress.

The first time the paramedics came out I was behaving quite normally again – this can happen with PP, where you have these episodes but your behaviours can seemingly return to normal in between. However, I must have got much worse after they left that first time because the next thing I remember is waking up in an ambulance as I was taken to A&E.

I remember feeling like I couldn’t trust anyone - I didn’t even trust my family with my baby and I believed the doctors were all fake.

At that point I was just sent home with medication, but things got much worse over the following days. I became obsessed with cleanliness, obsessed with prayer. I began feeling paranoid, thinking that someone was out to get me, and then I started thinking that my daughter was special and that I had the secret to the universe in my head.

So many things were going round and round in my mind, I felt scared all the time to the point I couldn’t go to the bathroom alone. I couldn’t eat because of weird tastes in my mouth. I kept trying to connect dots and draw special meanings from everything around me. I felt like my brain was firing on all cylinders; that I had a higher knowledge and special abilities.

I ended up going back to the GP but this time it was because my daughter had some gastric problems. But while I was there, I had another episode, throwing a cup of water on the floor and demanding to see a different GP.  The doctor realised I was really unwell and referred me to mental health services.

By the Monday, when my midwife and health visitor came, they found me dancing around, falling on the floor and trying to hide under the sofa. It was this episode that sparked the emergency admission to a general psych ward. It was awful – my thoughts were racing and it felt like the end of the world. I thought I was going to be locked away forever.

After two nights on the ward I was referred to a Mother and Baby Unit (MBU). It was Christmas Eve when I was admitted and most of the patients had gone home. This made my beliefs about the nurses and doctors not being real even more intense.

But slowly, I started to have this realisation that being in hospital was indeed real and just what I needed. I picked up a leaflet in the corridor that explained what PP was and I started googling it and reading about it on my phone. It was all starting to make sense.

At the MBU I was reunited with my daughter and my husband was able to come and help too. Although I was reluctant to interact with other patients, I bonded with some of the staff. I started journaling, noting down dates and times, setting things out chronologically. I started following a routine and this helped me to stay calm. Simple actions like waking up and showering, making breakfast, and keeping to a set pattern really helped my recovery.

Something truly wonderful also happened while I was staying on the MBU.

The lady who was there giving manicures and pedicures to patients treated me to a foot spa, and it was while we were chatting that she told me she also had experience of PP. This was the first time I heard somebody else talking about going through exactly what I had. I was blown away by how much we had in common. She was Greek so we shared some of our cultural experiences about mental health awareness in our communities too. Just talking about those paranoias and fears that went through my head was so helpful.

By the February, after a few days at home, I was discharged into the community team. By the September I went back to work. I was more or less fully recovered. I gave up my psychology sessions because I felt well enough but I do regret not talking about it more.

Thankfully, the lady I met on the MBU sent me some leaflets about APP and the support on offer. I didn’t reach out right away, but when I did, I met Natalie and had some great peer support sessions over a coffee. It was a while after that when APP’s CEO, Jess, asked me if I’d like to get involved in the charity’s diverse communities programme and I haven’t looked back.

I’m now a peer support worker helping other women and hosting the Muslim women’s café group, as well as raising more awareness of PP in Black and Asian communities. I really want to get people talking about PP. I, for one, believe if I had known about PP I could have got help sooner.

I think speaking to others is really important because you realise that you’re not alone. My husband and my family have been brilliant, especially my husband who bore the brunt of everything. I can’t thank him enough for all the support he gave me. But it’s also good to talk to someone who has been there. I urge anyone who has been through PP or is recovering from it to reach out for support. Don’t struggle on alone.

Miles for Mums and Babies 2024

APP's 2024 Miles for Mums and Babies challenge kicks off today, 1st May, World Maternal Mental Health Day.

With more people than ever before already signed up, we're so excited to see and hear how everyone gets on with their challenges.

There are whole teams on board from many MBUs and perinatal mental health teams including the Margaret Oates MBU in Nottingham, The Beeches MBU in Derby, the Andersen Ward in Manchester, the BCUHB team in North Wales, the Suffolk Perinatal Mental Health team and the Humber Perinatal Mental Health Liaison team.  The teams will be covering thousands of miles between them - walking, running, cycling, swimming and more - we're really looking forward to all your updates!

Lots of individuals are taking part across the UK too - including Lisa who will be completing a five hour walk with a group of friends, Hannah - aiming to run 50k in May, Kate who's planning 100 miles in a month and Carly, who along with friends, is going to cover 5k a day in May.  These are just a few of our amazing fundraisers getting involved this month - we'll be celebrating all of them throughout this month so keep an eye on our website and social media for updates.

Thank you to everyone who has already signed up, and to all those supporting them. You really are making a difference.

And it's definitely not too late to get involved if you'd still like to join our amazing team of Miles for Mums and Babies fundraisers - you can get going with a challenge any time you like - we focus our challenge in May as part of Maternal Mental Health Awareness week, but you're welcome to pick any time that suits you.

Find out more, and receive your free Miles for Mums and Babies pack by emailing fundraising@app-network.org or completing this short form.

Chris's awareness raising football tour continues...

Last year, dad and APP volunteer, Chris Wasley decided to take on an epic tour of football grounds around the UK, aiming to raise awareness of postpartum psychosis and APP.

You can read more about his grand plans and the first few stops on his tour here.

The first point of call for Chris in 2024 was Stoke City FC on 20th January.  Here he reports back on his latest match:

'I went to see Stoke City unfortunately lose 2-1 to Birmingham City.  It wasn't the result Stoke's performance deserved, they played some really lovely football but just couldn't score the goals! But the result maintains Birmingham's unbeaten run under their new manager.
This was another significant ground to visit for my challenge. My wife and I actually met whilst studying at Staffordshire University several years ago and have been together ever since!  And my good friend Ed, who I also met at University and is godfather to my son Dean, still lives locally. 

Stoke City FC is only 17 miles from the Stafford MBU. Ed and some of his very welcoming friends and family came with us to the game. Shout out to the Cheeseboarders!

 

I have to say amazing thanks to Stoke City and Head of Supporter Experience, Anthony.

 

Anthony was really interested to hear of our story and experience of postpartum psychosis, and to help me in raising awareness, arranged for us to have photographs on the pitch which will be used in a subsequent matchday programme! What an experience!

 

Being a weekend I wasn't able to visit the staff at the Staffordshire MBU, but I did have a lovely phone call with them to thank them for all the wonderful work they do.

 

Up next is Newcastle United in March... I really hope I am not a curse for the home teams on this challenge!'

Photo of the match day programme article about Chris's tour

Here's the fantastic piece featuring Chris in Stoke City's matchday programme.
We can't wait to hear about your next match!

If you're a dad or co-parent that would like to meet and talk with others whose partners have experienced PP, join our virtual Dads and Co-parents peer support social / cafe group - 8-9pm, every 3rd Wednesday of the month.
Zoom joining link: bit.ly/PARTNERMEET. Or, email Simon: simon@app-network.org