Kimberley Mace's Skydive for APP

 

 

 

 

 

 

A huge thank you to Kimberley Mace and her best friend who took part in a skydive on Saturday 11th September 2021 to raise awareness and money to support APP’s work.

Kimberley experienced postpartum psychosis (PP) in November 2015 after the birth of her son, and was initially treated on a general psychiatric ward at Ipswich hospital before being admitted to her local hospital at Wedgewood.

Kimberley said: “APP helps mothers and families who have experienced this severe illness and this wonderful charity helped me to understand what exactly I was diagnosed with. Whilst there’s more talk about PP now, it wasn’t an illness known to me when I was diagnosed in 2015.

I have since gone on to have my daughter with no recurrence of PP. APP’s forum helped me get through this by answering any questions I had.”

After the skydive Kimberley said: I am so proud and I really hope this money helps the charity. I am forever grateful for APP.”

Kimberley’s challenge has raised more than £590. We would like to thank Kimberley and her friend for supporting APP and all who have donated.

You can still visit and donate to her fundraising page here.

If you have been inspired by Kimberley, we would love to support any fundraising ideas you have. Get in touch here.

 

 

 

A day in the life of…a Peer Support Facilitator

Natalie Thompson has worked with APP since 2019 and is based in our Birmingham and Solihull peer support team. Having experienced PP twice herself in 2003 and 2007, and later being diagnosed with bipolar disorder in 2010, Natalie helps support women and families affected by PP (or other illnesses featuring manic or psychotic symptoms). After treatment in an acute psychiatric ward and fantastic care at the Birmingham Mother and Baby Unit (MBU), Natalie knows how challenging it can be to settle back into everyday life.

Here, she shares a typical day in the life of her role with APP.

09:00

I always start the day with a cup of tea (never coffee!) to wake me up. Steaming hot brew at the ready, I’ll open up my laptop, check my emails to see if there’s anything urgent I need to respond to, and then I’ll make a plan for the day. I also have a paper diary to cross reference with to make sure I don’t miss anything – I haven’t quite managed to go entirely paperless yet!

09:30

Armed with another cup of tea, I’ll call the women on my caseload to check in and see how things are. In normal times, this might be a face to face chat but during the pandemic we have tried to stay in touch by phone or zoom meetings. I know from personal experience that chatting to someone who has been through what you have is such a big help and makes you feel less alone in your recovery (which also helps to speed up recovery). From these calls I’ll write up my notes to make sure I am able to reflect on any areas I need to follow up on.

11:00

To end the morning, I might refresh my skills by taking part in training and shared learning. Sometimes this will be provided by the brilliant team at APP, but, as a partner of the local NHS Trust, we are also able to access NHS training and development too. It’s always good to keep learning and hearing best practice and I feel lucky that this is something APP is so supportive of.

12:30

Time for a lunch break. One of the perks of working from home during the pandemic is that my husband always makes our lunch which gives me more time to simply switch off for a break. He usually prepares nice healthy meals – but always tends to over do it with the mayo! (Not that I’m complaining!)

13:30

After lunch, I might attend an MDT meeting (multi disciplinary team meeting – one of the by-products of working in health is the number of acronyms you become accustomed to!). This might be attended by clinicians, nursery nurses etc.... and some of the issues we might address could include women on the high risk pathway and admissions to the MBU. Next up – it’s finally time for my one and only cup of coffee of the day! If I have any more than one I'd be bouncing off the walls!

14:30

Next I’ll make sure I get moving and get some fresh air by doing a socially distanced walk with one of the women on my caseload who is recovering from PP. These ‘walk and talk’ peer support meetings have been great during lockdown – especially for women who feel anxious leaving the house alone and those who don’t have a great social network. Getting out is difficult for new mums as it is, but even more so when you’re recovering from severe mental illness – and we know that exercise and fresh air both contribute to wellness so it’s a win-win.

15:30

Next, I might prepare for the APP café group – a session where several women get together to share their experiences or just to socialise with others who have been through similar experiences. When restrictions allow, these are all done in a physical space, so I’ll check out the venue, make sure they have good facilities and space, etc. Then, I’ll email participants a little reminder or, where outdoor café groups take place, check on the dreaded weather!

16:30

Time to clock off. That’s the great thing about working for a charity that’s committed to mums and babies spending time together – they like to ensure your work doesn’t eat too much into your family time! So even when I work from home I’m pretty strict about clocking off at the end of my shift and joining my family for a relaxing evening.

To find out more about current APP peer support job vacancies, click here.

 

 

 

 

Hugo’s story: "Don’t be too proud to ask for help – both for your partner and for yourself".


Hugo White, formerly of The Maccabees, is a musician and, we’re proud to say, an APP Ambassador, alongside his wife, author Laura Dockrill, who experienced PP in 2018.

Here, Hugo shares his story...

'I’d known Laura since we were kids, and we’d always been close friends. But we didn’t actually get together until years later, aged 30, when the stars aligned and our worlds brought us back together.

So when Laura found out she was pregnant if felt like the most perfect thing. I knew there was nobody else I’d rather go on that journey with.

Of course, becoming a parent is rarely straight forward and, in our case, it was incredibly traumatic, resulting in Laura’s diagnosis of postpartum psychosis (PP).

The birth had been extremely traumatic – way beyond what our anxieties could have anticipated – and Laura had to have an emergency ceasarean. The problem was, as first time parents, we had no idea what was considered a normal response to the trauma. Sadly, because PP is still so misunderstood, the doctors didn’t spot it for some time either.

I was so relieved to hear our baby boy, Jet, screaming as, due to the complications we endured, we’d been told he was starving in the womb. From that moment it felt as though the trauma of the birth had been released from me, but it was an entirely different story for Laura.

Having been through so much trauma – physically, mentally and emotionally – Laura was completely exhausted. Even so, as a new mum, she had no respite, as Jet was so skinny and was needing to feed constantly. Laura and Jet stayed in hospital for five days so we were relieved when we were all able to be at home together as a new family. And I really believed at that point things would be OK.

Sadly, however, that wasn’t the case.

Laura kept telling me that something wasn’t right. There’s a blurred line when it comes to mental health after someone’s had a baby because you kind of expect there to be some upheaval, the baby blues etc. So that can get in the way of spotting something more serious like postnatal depression or postpartum psychosis. But Laura kept persisting, telling me that something was very wrong so we visited the doctor on several occasions but they kept reassuring us that everything was normal.

In between these visits, Laura developed extreme paranoia, delusions and hallucinations, which turned to suicidal thoughts. It kind of crept up on us but even though I could clearly see that Laura was delusional, no midwives or doctors were able to pinpoint what was going on.

Thankfully, Laura’s best friend, Adele, did some online research after we discussed the symptoms. She found some information on PP and Laura ticked every single box. As soon as I saw this I knew we needed emergency help so I called a psychiatric doctor – something I had to do privately as I couldn’t get an NHS appointment for several days and all the information I had been reading impressed upon me how urgent care was a necessity.

Laura was very quickly admitted to hospital.

The scariest time was being at home alone with Jet. I had my three week old baby sleeping in my bed, and Laura wasn’t with us. I had no idea if she could get well again or if she was even coming back at all.

Thankfully the doctor was really reassuring. He looked directly in both of our eyes and he told us that Laura would 100% recover. Being able to put my trust in him and knowing that she was in the right place really helped me hold onto that hope.

Finding recovery took a long time, and, although Laura was only in hospital for three weeks, it took much longer for her to reach full recovery. At that point it was my job to put everything else to one side and really focus on supporting Laura and Jet.

Laura worked really hard at her recovery and I felt lucky that she was so open about how she was feeling. Being able to talk about things honestly with each other was really important and Laura went through a lot of therapy as well, learning lots of new tools to support her recovery.

A year later, with Laura feeling fully recovered, I almost completely sank. I started experiencing anxiety and panic attacks – something I’d never experienced before. I think it was some sort of delayed reaction to the trauma we’d all been through as a family.

Being able to share what I was going through with Laura was so helpful. Having been through so much anxiety herself as part of the illness, Laura had learnt so much in terms of how to deal with panic. While I saw my GP who also helped me, I really credit Laura for coaching me through it and, after around a month, I felt much better.

In some ways, I feel that our relationship is even stronger now because of these experiences. We have a much better understanding of ourselves and of each other, and our bond as a family is as strong as ever.

Feeling too proud to ask for help as the partner of someone who has been through such a serious mental illness actually only makes things harder for everyone involved.

Of course its going to have an impact on you and, the sooner you acknowledge that and get support, the better it is for everyone.

When it comes to PP, there are so many others who have been through what you have – both in terms of the women diagnosed and the partners or close family members who support them through it. You shouldn’t feel ashamed of the impact that it can have on you. It really is traumatic. But there is help out there – from your doctor, from APP’s partner peer support network and from all the information that is available online.

It’s reassuring to know there are others out there when you feel so alone so don’t hesitate to reach out – to get help for your partner, but also for yourself.'

Laura presents a BBC Radio 4 Appeal for APP, broadcasting on 24th March 2024.

 

Gails poem: Don’t You Remember.

 

Don’t you remember?

Im sorry, I can’t!

That’s how it begins

But it ends in a rant

 

A rant about tablets

A rant about hope

A rant about weight gain, this body, the bloat

 

But it’s made you all better

You’re finally free

I see that, I’m thankful

I just can’t see me

 

I wish I could tell you

“I’m better, life’s great!”

But sometimes I wonder

If the madness was fate

 

They say it takes time

But what time do I have

A babe under two

You’re having a laugh

 

The days do seem better

Now I have a routine

But some days it feels

Like I’m still in a dream

 

A big fog to wade through

A bleary eyed mess

But then nap time comes

And you lay on my chest

 

My troubles forgotten

The smell of your hair

These things I’ll remember

For now there’s no fear

 

No fear that I’ll break you

No fear you’re not loved

Just look at you growing

For now, that’s enough

 

Gail Whitehouse

PP warrior 2020

 

Emma’s story: "I suffered panic attacks so bad that my heart raced until I passed out".

I’d never heard of postpartum psychosis (PP) until I was diagnosed with it. Even then, nobody really explained to me what was going on. It was the most terrified I’d ever been.

My first pregnancy was fairly straightforward and I was really excited about becoming a mum. I had a natural birth, however, it was fairly traumatic and I suffered a severe tear, resulting in surgery after the labour.

From the moment I gave birth it was like somebody had flicked a switch in my head.

I no longer felt like me, in fact, I felt as though my body had been possessed. But this was just the start of a frightening journey that caused me to experience hallucinations, delusions, acute anxiety attacks and debilitating depression.

Worst of all, because the illness wasn’t broadly understood by the health professionals who were treating me, it took over two weeks for my exhaustion, agitation, change in mood, lack of sleep and extreme restlessness to be properly diagnosed as PP and treated accordingly. Up until then, I was left in a hospital bed, fed sleeping pills to make me sleep and told that what I was going through was normal for a new mum.

But it was far from normal.

My memories of the first three nights in hospital are a complete blur, and what followed was a terrifying rollercoaster ride. My mind was racing with so many worrying, intrusive, dark and scary thoughts and my behaviour was so erratic and out of character that my family knew there was something very, very wrong.

I became extremely paranoid and suspicious, thinking that everyone wanted to have me locked up because of a conspiracy theory that I knew about. Yet despite all of this, I was sent home with my baby. Because my behaviour was so erratic, my mum came to stay while my then partner took our little boy to his mum’s house with him.

One evening, I woke up at 4am and was convinced someone was trying to break into the house. I barricaded the bedroom door and became completely hysterical, calling the police and telling them we were going to die because somebody was out to get us.

That night, I was sectioned and sent straight to a psychiatric ward by ambulance.

It was only at this point that a doctor told me I had ‘puerperal psychosis’ (another name for postpartum psychosis) but nobody explained to me what that meant. Eventually, however, they found a place for me on a Mother and Baby Unit at Wythenshawe Hospital where I was reunited with my baby.

Having the specialist care and support that being in an MBU brings, I began to steadily recover. I had the right medication, the right expertise and lots of support that enabled me to keep my little boy by my side – something which I discovered was so important to the rate of my recovery.

My speech began to slow back down to a normal pace, and the delusional thoughts were becoming less and less. My anxiety, however, was through the roof, and I suffered panic attacks so bad that my heart raced until I passed out.

After 28 days, the length of my Section, it was decided that I still wasn’t quite ready to go home and, to be honest, I knew the doctor was right in making that decision because I didn’t feel ready either. It was around this time that the depression really ramped up. I also found out that my nanna had passed away which was another devastating blow.

While the psychosis had diminished, the depression and anxiety became chronic, and I was on medication for more than three years to manage it.

During that time, we decided to try for another baby. We knew that I was at high risk of developing PP again, so it was a difficult decision, but we wanted a brother or sister for our little boy. In 2015, I gave birth to my daughter, and once again, I experienced PP.

Unfortunately, this time, there was no space at the MBU close to home, so I was sent to a unit nearly two hours away, where I spent Christmas away from my partner and our little boy. However, I was pleased to be able to begin my road to recovery with my baby daughter by my side. I was so relieved that we were able to stay together and develop that special bond, with my treatment beginning almost as soon as the symptoms manifested this time around – because we knew straight away what was happening.

I was too ill to return home for Christmas Day, so my then partner and son brought all the presents for us to open together and we made the most of it, playing music and games and enjoying a buffet in the evening. The staff were just brilliant, doing all they could to make our day as special and as normal as possible.

After five weeks, I was transferred to a nearby MBU closer to home to start home leave. After another six weeks, I was able to return home and begin rebuilding my life with my family complete.

Having PP gives you a really different outlook on life - it really changes how you think. But one thing I want other women to know is that they really will recover and go on to live a healthy and happy life. We just need to ensure that women are able to access the right treatment as soon as possible as it can be such a devastating and life-changing illness if left.

BACK TO STORIES

Wales Mother and Baby Unit Pamper Packs

 

 

 

 

 

 

 

 

 

A huge thank you to APP Volunteer Gemma for organising pamper packs to be delivered to the new Uned Gobaith (‘Unit of Hope’) Mother and Baby Unit (MBU) in Wales by our South Wales Team, Ines Beare, Danielle Thomas and Barbara Cunningham.

The packs included make-up items from Boots UK and Soap & Glory to help mums feel special and leaflets about APP’s peer support for mothers and families. Gemma organised the packs as a way of giving mums a little bit of “me time” to help their recovery, alongside the invaluable help and treatment that MBUs provide.

Gemma has been a volunteer with APP since 2018, and her husband Stephen ran a Virtual Marathon for APP in May 2021.  She previously organised pamper packs to be delivered to all MBUs before Christmas in 2020. You can read an article about this here.

Gemma says “I suffered with postpartum psychosis in 2017.  Through this I gained an understanding of severe anxiety and depression and wanted to train as a peer supporter in 2018 in order to support others through their recovery journey. I also support the Birmingham project through attending the cafe group and really enjoy making a positive impact on others’ recovery. In Christmas 2019 I returned to my own MBU in Stafford and was able to thank staff and provide a small number of pamper packs. I feel this is such an important step for mums not only to promote relaxation and self-care, but more importantly to raise awareness of APP, the support available and the ways in which they can get in touch.”

Danielle Thomas, APP’s Assistant South Wales Coordinator said ‘Ines, Barbara and I had the pleasure of dropping off some pamper packs for the mothers who are staying in the new Uned Gobaith. We are very grateful to be able to deliver these on behalf of APP and our Volunteer Gemma. They contained lots of self-care goodies to help lift the women's spirits and we have already received a message from one of the  mothers to say how lovely they were! Sending lots of love and good wishes to them, from us, and all at APP’.

Thank you Gemma, for all your hard work in organising the packs, and also to our South Wales Team Ines, Danielle and Barbara for delivering them to the Wales MBU.

NHS partnership increases peer support across Black Country for mothers experiencing postpartum psychosis

Black Country Healthcare NHS Foundation Trust is partnering with national charity Action on Postpartum Psychosis (APP) to expand specialist peer support services across the region.

Recruitment is currently underway for a dedicated peer support facilitator to work with mothers based in the Black Country who have experienced postpartum psychosis – a severe postnatal mental illness. The service will be managed by APP in conjunction with the Trust, to support women on their road to recovery.

Postpartum psychosis is a debilitating postnatal mental illness that can occur out of the blue. New mums with postpartum psychosis may develop high or low mood, or fluctuate between them, alongside delusions, hallucinations or severe confusion. Many of these mothers have had no previous mental health diagnosis prior to onset – although women with bipolar disorder are at higher risk. It affects around 1400 women and their families every year in the UK and is always a medical emergency. However, it is eminently treatable and most women go on to make a full recovery with the right support.

Dr Jess Heron, CEO, Action on Postpartum Psychosis, said: “We currently run a number of successful peer support services across the country commissioned by the NHS, including one in partnership with nearby Birmingham and Solihull Mental Health Trust. In combining this type of peer support with the necessary clinical care required we can ensure that women receive a truly holistic, sustained and specialist treatment. It can be daunting leaving hospital after experiencing something as confusing and frightening as postpartum psychosis, so making this additional support available within the community is invaluable for ongoing recovery. Being able to support women and families at this critical stage is key to reducing the trauma, giving hope, and helping women and families feel less alone as they navigate the recovery process.”

Hannah Bissett, National Co-ordinator (NHS Contracts & Regional Projects), Action on Postpartum Psychosis, said: “As a woman who has personally experienced postpartum psychosis I know how isolating and afraid it can make you feel. Peer support is a vital piece of the recovery jigsaw and we now have over 2,800 lived experience users sharing their stories and receiving support from trained volunteers as part of our national peer support forum.

“Having somebody there for you who knows exactly what you’re going through and who can inspire hope will undoubtedly bring a sense of relief and reassurance to women in the region who may find themselves experiencing postpartum psychosis. We’re delighted to be partnering with Black Country Healthcare on this project and I’m looking forward to hearing from applicants with lived experience interested in the peer support role.”

APP already delivers successful and award-winning peer support services working in partnership with NHS Trusts around the UK, as well as managing a thriving online national peer support forum. The charity also provides peer support for partners of women who are experiencing or have experienced postpartum psychosis.

To find out more about the Peer Supporter role, visit www.www.app-network.org/jobs

 

 

Simon's story: "I didn't really know what was usual or unusual after birth".

For International Fathers Mental Health Day (21 June 2021), Simon, Partner Peer Support Facilitator for Action on Postpartum Psychosis (APP), shares a little of his own experience of supporting someone with postpartum psychosis and the effect it can have across the family.

Spotlight on postpartum psychosis

Postpartum psychosis (PP) - never even heard of it? Neither had I but it would shortly become one of the biggest learning experiences I’d ever endured and really tested my mental well-being.

In the first couple of weeks after my wife gave birth, I had noticed subtle changes in her mood, but, as a first-time father, I didn’t really know what was ‘usual’ or ‘unusual’ after birth. A few weeks later and these changes took a sudden and dramatic turn for the worse, things became very scary, very quickly.

Over the next few days, she woke in the early hours ‘ghost like’, her mood had plummeted, she was anxious, confused, pacing around the house, having delusions and hallucinations, ultimately it all ended in a 999 call.  I found myself in complete turmoil and throughout our journey with PP, had times where I went through every emotion possible - from being terrified, to feeling isolated, worried about the future and even feeling guilt-ridden for decisions I’d had to take; with little sleep, the pressure I felt was enormous, however, the support we received from family, friends and eventually specialist health professionals treating my wife was vital.

Now working as the Partner Peer Support Facilitator for Action on Postpartum Psychosis (APP), the leading national charity for women, partners and families affected by PP, we know how difficult PP can be and how it affects not only the women who directly experience it, but also the partners and families who watch their loved ones go through it. This trauma can have a lasting effect on the wider family’s mental health, if not supported appropriately.

Father’s mental health

For partners, seeing the symptoms of PP first-hand can be a truly traumatic experience. The following are just a couple of the many quotes from partners:

“She just stood there and screamed.”

“Somehow she had changed the world and she was watching the news, in the belief that she would see herself on it and they would report on what she had done.”

During the initial crisis, many partners describe feeling like their world has been turned upside down, with little or no control over the situation. They often talk of not knowing what was happening, feeling alone and scared; desperate to find information and to help their partner.

Postpartum psychosis as a father or partner, feels very much like a journey with a number of possible stages, from the initial crisis, potential admission to hospital, returning home and recovery - all of which bring different feelings and concerns to the fore. Just holding it together, having to keep strong for your wife or family members can sometimes see you not considering or letting on how worried you are, which in turn can lead to fathers suffering with their own mental ill-health.

What is postpartum psychosis?

Postpartum psychosis (PP) is a severe but treatable form of mental illness. It usually starts within the first couple of days to weeks after childbirth. Some develop symptoms very quickly whereas for others, symptoms can be more gradual or come and go.  50% of women experience postpartum psychosis “out of the blue” with no previous history of mental health problems.

What are the signs and symptoms?

Symptoms often include:

• Confusion or racing thoughts

• Feeling unusually high or elated

• Being unable to or not needing to sleep

• Beliefs that are unusual or concerning to others

• Seeing, hearing or sensing things that others can’t

• Anxiety

Getting help for your partner

It is important that PP is always treated as a medical emergency, which requires rapid intervention and is best treated in a specialised Mother and Baby Unit (MBU). With the right treatment and support, women with PP do make a full recovery and families are able to move on with their lives together.

• If your partner is under the care of a mental health team, contact them or your Crisis Team

• If your partner hasn’t been in mental health services before:

o See your GP urgently (the same day) or contact NHS 111

o If you cannot see your GP, go to your local A&E department

• If you think there is imminent danger (e.g. that your partner may hurt herself) call 999 and ask for an ambulance

Getting help for you

• Talk with your wife/partner’s medical team

• See your own GP

• Confide in a trusted family member or friend

• Speak to APP, see below and our website, for all our possible support options too

What’s the outlook for a family that has experienced PP?

Extremely good, with the right treatment the majority of women go on to make a full recovery and return to their normal selves, embracing motherhood and enjoying family life. While recovery can often be a long journey, there is hope and all of our storytellers and volunteers at APP, both women and their partners, are proof that people can and do recover.

Support at APP

We know that partners contact us at many different stages throughout their journey – whether in the early days of the crisis, partway through the journey or, in some instances, even years later.

APP are here to support you along the journey, no matter when you feel you need it. Our website has lots of information, guides and links to getting help:

Action on Postpartum Psychosis | National charity supporting women and families

• 1:1 chat support via email, call or video

• Resources for Partners - https://www.app-network.org/partners

• PP Insider Guides – includes a partner guide - https://www.app-network.org/what-is-pp/app-guides

• APP Partners Group on Facebook - https://www.facebook.com/groups/APPpartnersgroup

• Partner virtual café

Please do get in touch if we can help you, see our website or email app@www.app-network.org

More on Action for Postpartum Psychosis

APP is the leading charity supporting women, partners and families affected by PP. It’s a collaborative project run by people who have lived experience of PP, specialist health professionals and academic experts from Birmingham & Cardiff universities; our aims include:

• To provide up to date information to women and their families who have experienced PP

• To facilitate a peer support network for women and their families

• To increase awareness of PP, its symptoms, management and impact among health professionals and the general public

• To facilitate research into all aspects of PP

• To advocate for improved services for women and their families

Charity Wax Melt – SPERO (HOPE)

Thank you to Dom Bamber who is helping to raise money for APP by selling a charity wax melt called SPERO, which means hope in Latin.

Dom is selling the wax melt via his website Stumps & Nostrils and is donating 50p from the sale of each one to APP. You can watch a video of the wax melt here.

Dom is a big supporter of APP and has a sister who was affected by the illness so the charity is close to his heart. Dom has held several fundraisers for us over the last few years including a Skydive in 2019 and TikTok live stream event in January 2021. He is also taking part in our Miles for Mums and Babies Challenge which you can sign up for here, and you can donate to Dom’s challenge here.

Thank you Dom for your continued support of APP.

If you have been inspired by Dom, we would love to support any fundraising ideas you have! Get in touch here. We would love to support any event you choose.

Lobeh’s story: "It wasn’t until I had my fourth child that I experienced postpartum psychosis".

 My first experience of psychosis was back in 2009. I was in my last year of university and really struggling with the pressure of studying, my placement and writing up my dissertation. I stopped sleeping for several consecutive days and I just couldn’t shut my brain down.

I was talking really quickly, and became quite aggressive and reactive, shouting in the workplace because I believed people – and even at one stage a cloud – were following me. It wasn’t long before I was sectioned.

It turned out I had experienced a psychotic episode and I was eventually diagnosed with bipolar disorder. I had treatment and psychotherapy and, for many years, I was fit and well.

I met my husband in 2012 after I’d qualified in my profession. Everything was going really well, we married had our first child, then our second, and I was still really well.

When I had my third child there were some indications that my mood was changing and that I was going through some hormone imbalances, but I didn’t experience another psychotic episode until after I had my fourth child in 2018 – nine years after my previous episode of psychosis.

Because of my bipolar disorder, I always knew I was high risk for postpartum psychosis. However, having had three children with no problems, I really wasn’t expecting it to happen. Sadly, though, there were lots of complications and trauma around the birth of my fourth child and I ended up having an elective c-section.

When my baby daughter was born she wasn’t breathing and needed resuscitation which meant that we had no body contact as she was immediately rushed off to intensive care. I was fit and well at the time so was officially discharged but I didn’t want to leave my baby so they allowed me to stay. Within two weeks we were discharged together.

The problems didn’t end there, however, and after a few days at home I experienced fits and, as these were markers for an infection, I was rushed back to hospital where I had to undergo more surgery. They found that some of my placenta had been left inside which had caused the problems.

Once the physical risks had subsided I returned home. This is when the symptoms of postpartum psychosis hit me.

Three days after coming home I started erratically gathering items from the home to sell at a car boot sale – I felt compelled to do it, even though I had just come home with my baby. My attention was so often diverted away from my baby and, as a result, I wasn’t caring for her properly. Sadly, I had lost all sense of reality and I didn’t really understand what was happening or what I was supposed to be doing.

I believed that people were trying to take my baby away, I was driving around disorientated for hours with no idea why and constantly collecting these items to sell. Every day it was as though I woke up on a mission, it was as though something else had control of my mind. I was completely confused, lost all inhibitions, was over thinking and over talking. I would find myself in places or doing things with no idea how I had got there.

My husband tried to support me and he sought medical help and spoke with other members of the family. But the problem was, it’s hard to detect postpartum psychosis because how can you know what is normal behaviour after having a baby? It’s only when it becomes really erratic that it becomes more apparent – and at that stage you always need emergency care.

Eventually, having travelled out of my area and being filed as a missing person I was found in an apartment and sectioned.

Why MBUs are so important

I was brought straight to a hospital, however, there weren’t enough beds in nearby Mother and Baby Units (MBU) so I ended up on a general psychiatric ward and separated from my baby. Unfortunately, when you’re separated from your child this can really trigger more paranoia and make things worse.

I was also really scared on the ward which I don’t feel was managed very well and I had a particularly difficult time there. I had just had two major surgeries and some of the women on the ward were incredibly unwell. I got into a disagreement and I remember being kicked and punched. I was found unconscious and sent to A&E.

After I had been on the ward for a month a bed in a Mother and Baby Unit came up, but it was so many miles away from my home and family. MBUs are imperative for the safety and welfare of women who have just had children, and if I had been offered a place closer to home I would have accepted. But as this was so far away I petitioned through a tribunal to instead be discharged.

When you’re separated from your child this can really trigger more paranoia and make things worse

How I found recovery

Every woman has a different experience when it comes to treatment and recovery. In my case, I received antipsychotic medication to alleviate some of the psychosis and then, as I started to come round from the confusion, I started talking therapy to explore how I felt and what had happened. It enabled me to talk about the trauma of the birth which had obviously affected me greatly.

Because I wasn’t with my baby I missed out on some of the bonding time during my recovery so lost my confidence as a mother which was really hard. I also fell into a depression which was really challenging too. Recovery is gradual, and having the therapy and my family and friends around me helped a lot – as did my faith.

I also found lots of help through APP. When I first Googled postpartum psychosis and APP came up in the search, I felt as though I was the only woman in the world going through this. But when I was introduced to the peer support forum I realised that there were many women who had experienced this illness. I joined the monthly meet ups and it was fantastic being able to support and be supported by other women. I am especially pleased that APP is proactively encouraging engagement from BAME communities because mental health is such a taboo subject in some of our communities, so having more knowledge, awareness and engagement is key.

And that’s why I’m sharing my story today. I hope it inspires other women to feel confident in coming forward and asking for help.