Tag Archives: postpartum psychosis

Richard’s cycling challenge to raise awareness of postpartum psychosis and honour his late wife

At the end of May, Richard Baish and a team of friends will be completing an epic 475 mile bike ride over five days to raise money for APP in memory of his amazing wife Alex who tragically died last year.

The ride will start in Glasgow and head all the way down to Richard’s hometown of Witney in Oxfordshire, finishing on the 2nd June.

Richard’s challenge aims to raise awareness of postpartum psychosis, the severe postnatal mental illness that claimed the life of his wife Alex to in September.  With a toddler and a newborn baby to look after, as well as coping with the immense shock and grief of losing his partner, Richard gave himself a huge target of raising £50,000 for APP.

As he and his family had never heard of postpartum psychosis before they were affected by it, his aim is to ensure healthcare professionals and parents-to-be are made aware of the signs, symptoms and risks of the illness, in the hope that no other families will have to go through what they have.

So far Richard has raised an incredible £36,000 and his total is still going up every day. For our small charity, this is a huge amount of money, which will make such a difference to the work we can do to raise awareness, support families and save lives. We have already used some of the funds raised to begin an antenatal education campaign, including producing a toolkit for antenatal educators; and an online conference aimed at healthcare professionals is planned for the autumn.

Richard says:

I found out the hard way just how destructive PP can be. My advice for anyone who’s going through birth, either as a mum, dad, friend or family member, is to keep talking: whether it’s sharing good feelings or bad with each other or with professionals. Talking has helped me so much in my grieving process and it can help prevent the worst-case scenario. Postpartum psychosis is an awful illness but a treatable one. APP has supported me immensely in the last few months, and I know they share my passion to help save as many lives as possible through awareness of what to do and where to go for help.

Through his fundraising, Richard has also raised an enormous amount of awareness - using interviews, press and social media to reach people who would have never heard of postpartum psychosis otherwise. He brings kindness, honesty, passion, thoughtfulness and sensitivity to each interaction. It's difficult overstate the impact his fundraising has already had - tens of thousands of people have seen his campaign video (below), and nearly 1,500 individuals have given sponsorship, most of them previously unknown to him having been moved to support Richard after seeing a tweet or a Facebook post.

We can't imagine a better way to remember Alex and honour her memory. We're so grateful to Richard for the incredible, dedicated work he is doing for Action on Postpartum Psychosis, during the most difficult period of his life.

His story is truly inspirational but it can be a difficult one to read, so please take care visiting his fundraising page or watching the video below.

You can add your support to his campaign here: www.justgiving.com/fundraising/richardbaish

💜  If you have been affected by Richard's story, need any support, or want to meet others affected by postpartum psychosis, we're here for you. Find out more at www.app-network.org/get-help/peer-support-for-postpartum-psychosis/ or email us: app@app-network.org.

Richard has already done so much to raise awareness of PP with coverage on BBC Radio Oxford and in the Daily Record as well as via his social media feeds. You can follow his updates on Twitter and Instagram.  If you're a journalist interested in covering Richard's incredible story, please contact media@app-network.org

Double your donation

We're thrilled to be part of The Big Give's Kind2Mind campaign this Mental Health Awareness Week.

This means every single donation we receive on our Big Give campaign page between 12noon on Monday 15th May and 12noon on Monday 22nd May will be DOUBLED, at no additional cost to our donors.

Every donation we receive will have DOUBLE the impact – if you donate £5, Action on Postpartum Psychosis will receive £10, if you donate £25, we'll receive £50, and so on.

We have a target of £5,000 for the week which could help us significantly increase our offer of help and support for dads and co-parents in families affected by postpartum psychosis - a treatable medical emergency that affects 1-2 in every 1,000 new mums.

Will you donate today and get your donation doubled?

For many families, postpartum psychosis comes as a shock. Many dads and co-parents have never heard of this illness before, and the symptoms can be distressing.

At a time in their life when they were expecting to have the joy of a new baby, it can feel as if life has been turned completely upside down.

Simon and the APP team (pictured top) are here to help and support dads and co-parents through this traumatic experience.

Simon says:

Partner support is so vitally important, when your life feels like it's being torn apart and you may be feeling so isolated, even if you have family around you, to find the wealth of information APP provide and to be able to talk with other partners who have lived experience, that understand what it's like, "who get it", can provide the hope that things will get better. We see partners from every stage of the postpartum psychosis journey, be that in crisis, right through recovery and out of the other side. It doesn't matter when they come to APP.

'It’s hard for partners – and men generally – to admit there’s a problem that they just can’t fix themselves... Peer support makes you know you’re not alone.'

Alex - peer support beneficiary (pictured above left)

'I’ve been put in touch with another female couple and we’ve been in contact regularly, texting back and forth, and it’s been a lifeline. It’s just so good to have someone you can actually relate to.'

Nicola - peer support beneficiary (pictured above right)

Peer support really does make a difference. It can be life changing, and life saving.  A dad we supported told us:

"I don't think I would have been here if it wasn't for finding APP".

Donate today to have your gift doubled and help us support even more families affected by postpartum psychosis.

Look out for our posts on our social media pages - please share so we can reach more people.

Thank you for helping to support our campaign so we can be there for even more families.

APP has worked with the IHV on a new guide for health visitors

Action on Postpartum Psychosis (APP) has worked with the Institute of Health Visiting on a new guide for health visitors about identifying and supporting women with postpartum psychosis (PP).

The Good Practice Points set out what health visitors need to know about PP, including the symptoms, treatment and recovery as well as preconception care for at-risk women.

The guide has been written by Dr Judy Shakespeare, retired GP and Royal College of General Practitioners Clinical Champion in perinatal mental health in association with APP.

The Good Practice Points detail: how health visitors can work in partnership with individuals and their Specialist Perinatal Mental Health Service to create personalised wellbeing plans; how health visitors can support and bring hope to individuals who develop PP; and how they can help to strengthen the parent–infant relationship as well as providing crucial support to partners and older children in the family.

The resource has been designed for use by iHV members, but as part of Maternal Mental Health Awareness Week is freely available for a week here.

APP launches postpartum psychosis toolkit for antenatal education providers

To mark Maternal Mental Health Awareness Week (1 – 7 May 2023), Action on Postpartum Psychosis (APP), the national charity for women and families affected by postpartum psychosis, has launched a free online toolkit to support antenatal educators.

The toolkit has been designed to support educators in delivering basic, potentially life-saving information following YouGov research, commissioned by APP, that discovered only 6% of expectant parents had heard about postpartum psychosis during their antenatal class. Meanwhile, in another survey conducted by APP, 88% of antenatal educators said they believed that PP should be discussed in classes.

Respondents outlined the barriers they faced in terms of delivering information, and APP’s toolkit is a direct response to this, ensuring that educators feel equipped, knowledgeable and empowered to share this invaluable content.

Postpartum psychosis (PP) is a debilitating postnatal mental illness that can occur out of the blue after having a baby. New mums with postpartum psychosis may develop high or low mood, or fluctuate between them, alongside delusions, hallucinations or severe confusion. Many of these mothers have had no previous mental health diagnosis prior to onset – although women with bipolar disorder are at higher risk. It affects around 1,400 women and their families every year in the UK and is a medical emergency. However, it is eminently treatable, and women go on to make a full recovery with the right support.

Naomi Gilbert, Campaigns Coordinator and Peer Supporter, APP, said: Our antenatal awareness campaign is a response to the voices of lived experience – the pleas women, partners and their families have made. ‘If only I had known something…I would have been able to call for help sooner’ or ‘I wouldn’t have been so afraid of what was happening.'

“Just having some basic knowledge, including the fact that the illness is highly treatable, can help families to recognise the signs of PP, seek help sooner and feel less afraid knowing that there is hope of full recovery.”

Dr Jess Heron, CEO, Action on Postpartum Psychosis, added: “We know that antenatal educators have a lot to cover in an already packed schedule of classes, which is why we wanted to find out how to get this life-saving information out there in an easy to use and downloadable format. The government are aiming to halve maternal deaths by 2030, and in order to do this we need to address maternal mental health. Suicide is still the leading cause of maternal death – and we are not yet making progress.

Of the women and families we spoke to in our network, almost all said they would have greatly benefitted from having just some basic awareness of PP. They also suggested that a quick 3–5-minute conversation could be all it takes to make the difference.

“For expectant parents, just having a bit of knowledge that these unusual symptoms can occur, and knowing where to get help is incredibly important. Antenatal educators who would like to learn more about postpartum psychosis can access our specialist webinars and our training for healthcare professionals which is popular across a range of disciplines – from midwives and perinatal mental health teams to first responders more broadly.”

To access Talking About Postpartum Psychosis – A Toolkit for Antenatal Educators – click here

APP April Newsletter - Maternal Mental Health Awareness Week special

Maternal Mental Health Awareness Week

Maternal Mental Health Awareness Week (MMHAW) runs from Monday 1st to Sunday 7th May. We would love to get as many people involved as possible.

We want more people talking about postpartum psychosis (PP) - the signs and symptoms to look for, and what’s needed to support recovery. We want to ensure that no-one affected by PP feels alone and everyone knows where they can turn to for help and support. We’ll be sharing personal stories, signposting to support, information and advice, and raising awareness of PP.

In addition to #MaternalMentalHealthAwarenessWeek, organised by the Perinatal Mental Health Partnership, there will be a focused World Maternal Mental Health Day (Wed 3rd) and Pregnancy & Postpartum Psychosis #PPPAwareness Day (Fri 5th). The theme for the full week is 'Together In A Changing World'.

For updates follow @ActionOnPP on FacebookInstagramTwitter and LinkedIn. Read on for details of the special events we’ve organised in support of the week.

Events for Maternal Mental Health Awareness Week

Creative Writing - A Lived Experience Workshop with Laura Dockrill, Monday 1st May 12.30 – 1.30pm

If you have personal experience of PP, join this free and fun lunchtime creative writing workshop on zoom with Author and APP Ambassador, Laura Dockrill. In a warm, gentle, no-pressure environment, Laura will explore writing for you and your wellbeing. All you need is something to write with and on.

Join APP’s network and book your place here.

The session is free – donations are welcome.

If you have experience of postpartum psychosis, I HIGHLY recommend joining this soul nourishing session. Whether you are a poet, writer, or have never written a jot before, Laura will nurture your creative side in a low stress, fun environment. Dr Jess Heron

Free webinar: 'Postpartum Psychosis: From research to recovery' – Thursday 4th May 12-1pm

Join APP and the National Centre for Mental Health (NCMH) to hear about the latest postpartum psychosis research and find out how you can help.

You’ll hear from researchers and those with Lived Experience, including: Director of the National Centre for Mental Health Cardiff, Professor Ian Jones; APP Chief Executive, Dr Jess Heron (University of Birmingham); Dr Sally Wilson (APP Research & Training Coordinator); and Laura Dockrill (APP Ambassador) as well as from researchers from: the National Centre for Mental Health; University of East Anglia; and University of Birmingham’s Institute of Mental Health about a range of new studies.

Find out more and book here.

Pregnancy and Postpartum Psychosis Awareness Day – Friday 5th May

The importance of Peer Support for PP

Join APP and US charities Cherished Mom and Postpartum Support International for one of three global virtual meet-ups for women with experience of PP as part of Pregnancy & Postpartum Psychosis Awareness Day 2023 (1am, 10.30am and 5pm BST).

The APP peer support team will co-facilitate the 10.30am and 5pm sessions (UK time).

If you would like to meet others and find out more about PP around the world, book your free place on Eventbrite here.

New postpartum psychosis toolkit for antenatal educators

During Maternal Mental Health Awareness Week, we will launch a free online toolkit to support midwives and antenatal educators.

The toolkit will help antenatal educators deliver brief, but potentially life-saving, information about postpartum psychosis (PP) to parents-to-be in antenatal classes.

We’ve worked with families affected by PP and antenatal education providers to produce the toolkit.

A YouGov Survey in 2021 found that only 6% of expectant parents were given information about PP at their antenatal classes, but a survey carried out by APP in 2022 found that 88% of antenatal providers felt it should be included.

A big thank you everyone who has been involved so far. Special thanks go to Richard Baish, his friends and family for supporting the development of this toolkit.

Follow @ActionOnPP across social media channels to hear when the toolkit is launched and please help us share the news.

During the week, you can listen to APP’s Dr Sally Wilson and Naomi Gilbert talking to PMHP’s Eve Canavan about the research behind the campaign and read Zebi's blog in collaboration with pregnancy charity, Tommy’s showing the importance of hearing about PP before it happens.

Signs and Symptoms posters available

Our Signs and Symptoms graphic has been updated and is now also available as an A4 printed or downloadable poster.

If you could display one in your maternity hospital, GP surgery, mother and baby group, Mother and Baby Unit, or perinatal mental health clinic, please get in touch.

We can send you up to 10 posters free but if you feel you could support us to cover the cost of postage you can donate here.

Northern Ireland (NI) Mother and Baby Unit campaign

We’re continuing to work with NI charity Maternal Advocacy and Support and 40 other organisations to campaign for a Mother and Baby Unit (MBU) in Northern Ireland.

Watch the video of our petition hand in here.

The government scoping report into a NI MBU due out in March has been delayed until the end of May. We look forward to reviewing plans, timeframes and interim solutions for families with PP in NI whilst we await a NI MBU.

If you’re in NI, join our peer support group to meet others, give and receive peer support, and help with campaigning. You could also join #TeamAPP at the Hillsborough Castle & Gardens Running Festival on 30th July this year. Email fundraising@app-network.org for more info or to reserve your place.

APP café groups during Maternal Mental Health Awareness Week

Our regional peer support café groups for women and families affected by PP meet monthly and are a mixture of virtual sessions and face to face meet-ups. You can attend whether you are newly recovering or recovered many years ago. They are a social place to chat, support each other, as well as to share ideas about improving the future for others affected by PP.

Our Black Country and Wales café groups are meeting in Maternal Mental Health Awareness Week. If you are interested in joining these or any of the other APP café groups – in Sussex & Hampshire, Scotland, Northern Ireland, Yorkshire, North East, Lancashire & Cumbria, and London - please fill out this form or email app@app-network.org. New members are always welcome.

We also run a virtual peer group for dads and co-parents on the third Wednesday of every month for people who have supported a partner through PP. The next meeting is on 17th May. Our grandparents group meets approximately six times a year, with the next meeting on 11th May. If you would like to be on the mailing list for either of these groups, please email app@app-network.org.

You can find the dates of the next meet ups for all our café groups here.

Health Professional Training

A new date for APP online Health Professional training in postpartum psychosis has been released.

Book for the 15th November course here.

Onsite training days can also be commissioned by individual NHS Trusts or other workplaces for their teams. To find out more, get in touch: training@app-network.org

Plan your Big Bake for APP

Could you organise a Big Bake this May and help raise funds for APP?

Host an informal afternoon tea, have a coffee break together or organise a bake-off competition with friends, family or colleagues. It’s a lovely way to start a conversation about mental health and PP and raise funds for APP at the same time.

If you pay it in between 15th-22nd May using the following link, the amount you raise will be DOUBLED with match funding from The Big Give Kind²Mind 2023 campaign.

For more info and a Big Bake fundraising pack, email fundraising@app-network.org

Miles for Mums and Babies

A huge thank you to everyone who has signed up to be part of our Miles for Mums and Babies challenge this year – we’ve got more people than ever before involved –  individuals and teams all over the UK running, walking, swimming, cycling and toddling hundreds of miles to raise awareness and funds.

Well done to Rob Rowe (pictures above, left hand side) and Natalie Varley (pictures above, right hand side) who have both completed marathons for APP this month - Rob running in Brighton and Natalie in Manchester - between them they raised over £3,000 for APP! An amazing achievement - both were first time marathon runners!

We’ll be posting a round-up of everyone taking part in Miles for Mums and Babies soon so keep an eye on our social media pages and add your support if you can – and it’s definitely not too late to join in if you’d like to – email fundraising@app-network.org.

The Big Give

We’re delighted to have been successful again in applying for match funding from the Big Give – this means all donations we receive via our Big Give Kind²Mind 2023 campaign page between 12pm on the 15th May and 12pm on 22nd May will be DOUBLED! We’ll send another reminder nearer the time but do share our social media posts if you spot them – this year our campaign is focused on support for dads and co-parents.

Thank you so much to everyone who is fundraising for APP at the moment – we are so grateful to all of you and your supporters. Every donation makes a real difference.

Dates for your diary

APP Black Country face to face café group meet up at Walsall Arboretum, Wednesday 3rd May: APP regional café groups webpage

World Maternal Mental Health Day, Wednesday 3rd May: www.wmmhday.postpartum.net

APP Wales virtual café group meet up, Thursday 4th May: APP regional café groups webpage

International Day Of The Midwife, Friday 5th May: www.internationalmidwives.org/icm-events/international-day-of-the-midwife-2023.html

APP Lancashire and south Cumbria virtual café group meet up, Monday 8th May: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Lancaster, Wednesday 10th May: APP regional café groups webpage

APP Grandparents virtual café group meet up, Thursday 11th May: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackpool, Friday 12th May: APP regional café groups webpage

Mental Health Awareness Week, 15th-21st May: www.mentalhealth.org.uk/our-work/public-engagement/mental-health-awareness-week

The Big Give match funding campaign, 15th-22nd May: Big Give Kind²Mind 2023

APP Dads and co-parents virtual café group meet up, Wednesday 17th May: APP regional café groups webpage

APP London virtual café group meet up, Thursday 18th May: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Preston, Friday 19th May: APP regional café groups webpage

APP Northern Ireland virtual café group meet up, Monday 22nd May: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackburn, Tuesday 23rd May: APP regional café groups webpage

APP Sussex and Hampshire virtual café group meet up, Wednesday 24th May: APP regional café groups webpage

Volunteers' Week, 1st-7th June: www.volunteersweek.org

APP Sussex and Hampshire virtual café group meet up, Thursday 8th June: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackpool, Friday 9th June: APP regional café groups webpage

APP Lancashire and south Cumbria virtual café group meet up, Monday 12th June: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Lancaster, Wednesday 14th June: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Preston, Friday 16th June: APP regional café groups webpage

A focus on fundraisers in Northern Ireland

Claire's half marathon in memory of her friend, Orlaith

Claire Tennyson is taking on the Hillsborough Castle & Gardens Half Marathon this July, in memory of her dear friend Orlaith Quinn.

Claire says:

This October will mark five years since Orlaith left us. Orlaith was charismatic, compassionate, fiercely loyal, full of sass and an absolute stunner. There are people in life you instantly connect with, and for me, she was one of them.

Orlaith’s passing was found by a court to be 'foreseeable and preventable' and at the time of the hearing the coroner also called for a Mother and Baby Unit (MBU) to be established in Northern Ireland.In the absence of a functioning Executive, the possibility of this being developed in the near future is very slim but APP are continuing to do all they can to push for reform.

In that context, I want to raise money in the interim for this very worthwhile charity to assist in the support they give mothers, mothers-to-be and mothers yet to come.

It is the biggest honour of my life to be a mother and for that privilege to have been so cruelly cut short for Orlaith, and her children, is heart breaking.

So please donate if you can, share to raise awareness, and most importantly of all spare a thought for Orlaith.  She is missed.

You can support Claire here.

Also taking part in the Hillsborough Castle and Gardens Running Festival is APP volunteer Lucy who will be challenging herself to complete the 10K event on the day. Find out more and add your support for Lucy here.

Miles for Mums and Babies in Northern Ireland

We have two teams taking on our #MilesforMumsandBabies Challenge in Northern Ireland this year.

On the 13th May, Justine Lewis and a team of friends will be attempting to climb Cavehill - a challenging 1,207ft peak just outside Belfast.

Justine was diagnosed with PP after the birth of her baby in 2019, and due to the lack of MBU in NI, she was separated from her newborn for 12 days. She is undertaking this challenge to raise awareness of the need for an MBU in the area.

You can add your support for Justine here.

Then, later in the month, Shelley Browne and a group of friends will be running 5k at Stormont to highlight the fact that 1 in 5 women will experience some form of mental health issue in the postnatal period.

Shelley had PP in 2021 and really wants to raise awareness of the need for an MBU in NI. She says: 'I truly believe with this facility, my treatment would of been less traumatic and I would have not have needed to be separated from my baby so early on.'

Support Shelley and her team here.

Not only are our NI APP volunteers getting out and about fundraising for us this year, they're also helping to raise awareness of PP:

Tara helps to raise awareness in Garvargh

On Wednesday 22nd March, one of our Northern Ireland based APP volunteers arranged for an awareness-raising session at a local Women’s Group she attends. She didn’t want to talk about her own experiences with PP herself, as not everyone is comfortable or finds it helpful to do that, which is fine. So, working with APP's events and fundraising staff, she invited along another local APP volunteer who very bravely talked to the group about her experiences of PP.

Staff from APP HQ also zoomed in to the session to explain more generally about PP, the work of APP and the need for an MBU in Northern Ireland. The Women’s Group, which included both local women and health & social care professionals, were very interested and moved to hear the first-hand account of a real women’s experience of PP, as many were previously unaware of the condition.

Very positive feedback was received from the group:

“…she is a brave young woman, speaking out to help others. Thank you.”

“Very brave lady to be able to talk about everything she has been through. Can’t have been easy to do that”

“…she was lovely and very good at speaking about her experience.”

“…she definitely was very good and spoke well, and we got a lot of knowledge about this condition.”

“…it’s such a hard thing to talk about. It’s helped me understand a lot better and what to keep an eye out for.”

“…she is amazing and to be able to come and speak about her experiences so honestly will truly help women as there is still stigma around mental health.”

The local health visitor and social worker were invited to the session and already are asking if further sessions can be put on around the area for other teams of professionals and women around Northern Ireland.

****

If you'd like to find out more about raising awareness or fundraising in Northern Ireland, or accessing our peer support group, please contact app@app-network.org 

Miles for Mums and Babies 2023!

A big shout out to everyone who has signed up for our Miles for Mums and Babies challenge so far! We’ve got more people than ever before ready to run, walk, swim and cycle hundreds of miles to raise awareness of PP and funds for APP.

Fundraisers all over the UK are taking part – here’s just a little taste of what’s going on during May…

In ScotlandAlice in Dundee (pictured right) will be swimming 71km in 28 days, and Hazel in Perthshire will be cycling 65 miles in a single day later this month.

In Wales the BCUHB perinatal mental health team in North Wales who have a team of 18 aiming to cover 154 miles during May; Laura in Cardiff who is planning to walk 50 miles over the month; and Heidi, a perinatal mental health nurse in Monmouthshire who is taking on a huge 1400 miles by the end of 2023 to represent the number of women who experience PP each year.

We’re delighted to have lots going on in Northern Ireland too, with Justine and Shelley getting friends and family on board to take part in their hiking and running challenges.

And across England there are individuals and teams taking part in all sorts of different ways, including…

Jennifer Dawson who’s taking on TWO challenges – one walking 26 miles with her husband Lee and another with her Rattle and Rhyme group – who'll be getting together to toddle 5k!

Jenny and Lee aren’t the only husband and wife team working together to reach a Miles for Mums and Babies target though, we also have Hannah and Ryan in Leeds planning to walk and run 156 miles - 120 miles for the distance their family travelled to the MBU and 36 miles for each day Hannah was in the unit; and Georgina and Chris who are aiming for 108 miles - the distance to and from their nearest MBU.

Most of those taking part have chosen a number of miles that has a meaning to them - Natalie (pictured right) has chosen to walk 60 miles as that represents the distance to and from her home and the MBU she spent time in - the journey her husband had to make to be able to come and see her and their baby.

Rebecca (pictured top) is planning a mammoth 43 mile walk in a single day, with the aim of raising £2400 - the number of mums who will have been diagnosed with PP in the two years since she herself was diagnosed. And she's very close to her huge target goal already!

We’re also really delighted to have the Blue Minds and BleepKind network involved this year, taking on an epic 318 mile challenge, which is already underway!

And having whole teams getting on board is just wonderful - including the Leicester Partnership Trust Perinatal Mental Health Team who are doing a mix of walking, running and swimming; and the Margaret Oates MBU in Nottingham who will be walking, pushing buggies, toddling, running, cycling and even getting their four legged furry friends involved to reach 318 miles (which is the distance from the most westerly MBU in the UK to the most easterly).

And this isn't even everyone who has planned to get involved - we'll keep posting updates throughout the month.  A HUGE thank you to everyone who has signed up so far and to everyone who has supported them already.

It's never too late to get involved in you'd still like to, just email fundraising@app-network.org and we'll send you a free Miles for Mums and Babies pack.

In memory of Margaret Oates

Here at APP we have all been deeply saddened to hear of the death of the hugely inspirational Dr Margaret Oates.

A Consultant Perinatal Psychiatrist at Queen’s Medical College, Nottingham, Dr Oates made significant strides in perinatal mental health care, positively impacting many women and families in the UK and beyond. Indeed, so significant is her legacy that there are two MBUs named after her - one in Nottingham and one in East London.

Dr Giles Berrisford, APP Trustee said:

“Dr Margaret Oates OBE has been an enormous inspiration to many throughout her life. She dedicated her working life to improving the lives of women and families affected by perinatal mental illnesses. She recognised the importance of the obstetric pathway and the psychiatric pathway working together, so that no women are left behind. She led to the opening of the Mother and Baby unit in Nottingham which is now one of two eponymously named MBUs in England – the other being in Homerton, East London

Dr Oates worked tirelessly to influence national policy– changing and shaping maternal mental health forever. She was the 1st Chair of the Clinical Reference Group for perinatal mental health for NHS Specialised Commissioning, advising on how MBUs should be commissioned.

The expansion of services around the UK since 2016 is a direct legacy of Dr Oates’s inspirational work. She has inspired many to pursue careers and to develop services in perinatal mental health. We have a lot to be very thankful to Dr Margaret Oates for and she will be greatly missed.”

Dr Oates was the pioneer behind the sub specialty of perinatal psychiatry and set up the specialist faculty within the Royal College of Psychiatrists. She was also responsible for developing the work of the Confidential Enquiry into Maternal Deaths in relation to mental health, identifying the impact of mental illness on the mortality of women during pregnancy and into the postpartum period.

She also established a series of ‘red flag’ warning signs to enable healthcare professionals to identify women at risk of perinatal mental illness, and established the Perinatal Quality Network as part of the College Centre for Quality Improvement, embedding lived experience at the heart of the system.

Dr Jess Heron, APP CEO said:

“Dr Oates worked with the same zeal and dogged determination whether she was addressing care inadequacies for an individual woman or putting systems in place which would improve the care of all women with severe postnatal mental illness.

She worked hard to ensure that perinatal mental illness and suicide were included in the confidential enquiries into maternal deaths, giving us a clearer picture as to the devastating impact of PP - and other serious mental health problems - on the lives of women and families nationally.

Her advocacy and truly anarchic approach has undoubtedly saved lives, and we her legacy will live on for generations to come”.

Members of our volunteer community who have been personally supported by Dr Oates have also shared their words and memories, including Cheryl McAulay-Wainwright who said:

“I first met Margaret in 2004 when I was suffering with postpartum psychosis. Margaret was my consultant at the time and I will be forever be deeply grateful for the care that she provided me. Her smile was warming and made me feel safe and at home. It was during a time where I had lost myself - and she helped me find me again.
I went on to work within the Hopewood Mother and Baby Unit when it was first opened and was named after Margaret Oates. I was lucky enough to spend time working alongside her colleagues who would often talk about what a presence Margaret was and the huge developments she made for National Perinatal services and the care that women received.
I wouldn't be where I am today without the care that Margaret and her team gave to me.
Dr Margaret Oates OBE is a true inspiration and will be missed by the women and children she cared for and of course many more.”

Our thoughts are with Dr Oates’ family. We will never forget all that she has done in the field of perinatal psychiatry and beyond.

Nicola’s story: "I had to leave my dream job to look after our baby."

My partner, Arina, was only in the MBU for a couple of months when she was discharged. It wasn’t that she was well enough to come home, it was because they said she wasn’t making any progress. Our baby had already been discharged, and I had taken time off work to be a full-time parent. But then when Arina came home as well, I realised that there was no more support available to us and I had to leave my job as an ambulance care assistant – something I had worked so hard for.

It was December when Arina gave birth to our daughter. I hadn’t realised that there was anything wrong at first. Our baby cried a lot, and we were told she had reflux so Arina was naturally anxious and, because I’ve got three older children, I just put it down to it being early days.

Arina had struggled with mental health problems prior to giving birth, and she had been diagnosed with BPD (borderline personality disorder) which is a serious mental health issue that can cause overwhelming, distressing and changeable emotions.

When I was due to return to work after our baby daughter was born, Arina mentioned that she was feeling really anxious. It was New Year’s Day and, because I was expected in work on the 2nd, I contacted Arina’s sister who lived a couple of hours’ drive away to ask if she’d come and stay, which she did. However, she contacted me at work saying she was concerned about Arina who was really struggling and distressed, and she suggested she could take the baby for a couple of nights so that we could get Arina some help.

I reluctantly agreed, and we contacted the crisis team, who came out to see Arina but they weren’t very helpful – simply suggesting that she take a bath, have a cup of tea and get some sleep. But the problem was she couldn’t sleep. And I could see that she was incredibly vulnerable.

We were due a visit from our health visitor so I collected our daughter from Arina’s sister and brought her home. I was at work on the day of the visit, but they called me and said I needed to come home otherwise they would need to remove our daughter. They felt that it was unsafe to leave Arina and the baby alone as they suspected Arina had postpartum psychosis. I went straight home as they tried to find an MBU to get the care Arina clearly needed. However, it was a real struggle because the crisis team maintained that she didn’t need help.

Eventually, we managed to get Arina in to see the GP – she was incredibly anxious by this point. The GP agreed that Arina needed help and, the following day, we finally got the call saying that she could be admitted to the MBU.

Because of Covid, I literally had to drop Arina and my daughter at the MBU door, which was heartbreaking. Leaving your partner and daughter, not knowing how they might settle in or where they were going to sleep, was really difficult. I had also developed a really strong bond with our baby so it was difficult being separated from her as well having previously spent 24 hours a day with her.

The MBU was about a 45 minute drive away from our home as well, so I was having to work full time and travel every day for the one hour a day visit, and it was emotionally and physically draining.

After about a month, I was shocked when the MBU suggested our daughter should come home with me. Arina had mentioned that the MBU staff were still carrying out most of our daughter’s care, and they suggested that Arina needed some time on her own. I was worried because I needed to work to bring the money in, and also because I thought Arina should have the opportunity to bond with our daughter.

I arranged time off work, thinking it was just for a few days but, as time went on, nothing was mentioned about any plans for our daughter to return to the MBU. I was taking her back and forth every day to see Arina and then looking after her the rest of the time on my own.

I had been working with the Ambulance Trust and had only just started the job in the October, so I was devastated at having to take so much time off. Eventually, I was told by the MBU that Arina needed to be referred to an adult psychiatric ward for further treatment but that they couldn’t find a bed, so she would need to come home. We were told at that point that we would get some childcare support to enable me to go back to work part time but nothing materialised.

So, after two months in the MBU, Arina was also home, and I left my job and had to claim benefits to keep us going. Arina applied for PIP (Personal Independence Payment) but that was eight months ago and we still haven’t got it so we are relying on basic benefits – other than £5 a week for baby class. We just feel as though we have been left completely on our own.

It’s quite difficult, as a same sex couple, to access support because everything for partners seemed to be targeted at ‘dads’ or ‘fathers’. I couldn’t see anything that felt it might include me. However, during a conversation with an old friend who I discovered had herself been in an MBU, she told me that she’d seen a story on the APP website about a same-sex couple so I had a look straight away and reached out to Ellie from the peer support team.

Since meeting Ellie, I’ve been put in touch with another female couple and we’ve been in contact regularly, texting back and forth, and it’s been a lifeline. It’s just so good to have someone you can actually relate to.

There are still challenges we are facing because of our situation though. For example, because I’m not on the birth certificate I have to adopt our daughter, so being classed as a full-time parent I currently have the responsibility but not the legal rights, so I can’t even open a bank account for her or register her with a nursery. This is really tough because Arina is still struggling with her mental health as well. And, on the flip side, the social workers have told us that, once I adopt my daughter, they will no longer be able to support us at all – so it feels like a lose-lose situation.

The thing that keeps me going, however, is reading the stories of others, and speaking to Ellie and the couple that APP put me in touch with. While everyone’s experience is different and unique, there is always something you can relate to. It makes such a difference knowing that you’re not alone.

 

Ruth’s story: We had to travel from Spain to Scotland during lockdown to access an MBU

We’d been living in Spain for over ten years when I fell pregnant. My husband, Jamie, worked away a lot on an oil rig but we had a good network, had planned for Jamie to be home for a couple of months around the birth and the pregnancy was really straightforward. I felt lucky.

Our son was born in the September, and, when Jamie returned to work in the December, I made a return trip home to Ireland to visit family with our new baby.

While I was in Belfast I started struggling with bad joint pain. I’d had arthritis as a young child but hadn’t had any problems for years so it was a bit of a shock. I ended up in A&E and it made breastfeeding and holding my son really uncomfortable too. I was in so much agony.

When I got back home I got some treatment for the arthritis and everything seemed to settle back down. My baby was sleeping well, Jamie was working in Norway, everything felt like it was going to be fine.

Then, by the middle of February, I suddenly stopped sleeping and began panicking about everything going wrong – thinking that Jamie, might lose his job, worrying that there was something wrong with our son. I made the rash decision to move our son into his own room, and I would spend whole nights just staring at the baby monitor and listening to the buzz of it.

My mum came to stay and she remembers that I was just pacing the flat saying things like our lives are falling apart; there’s something wrong with the baby; he’s not well; he’ll be taken off us and I’ll be put in jail.

I went to the health centre and got an emergency appt with the nurse who prescribed diazepam to calm me down. It was around the time of lockdown so when I needed to go back it was a different nurse that I saw. The second time I was prescribed antidepressants, too.

Jamie was away at the time and I was continually phoning my best friend and cousin because I needed someone to listen. I was convinced there was something wrong with the baby, and I began struggling with breastfeeding and then bottle feeding – getting myself into this vicious cycle of feeling like I couldn’t feed my baby at all.

My friend was concerned and she made an appointment with a psychologist at the nearby clinic. I remember taking my notebook with me because I was writing down pages and pages of numbers and dates relating to my baby and his feeding patterns and routines.

Back at home, I would just lay down on the floor and cry and I was having regular panic attacks. But outside of the home, I was doing all of the right things – trying to feed him, dressing him. It probably all seemed fairly normal on the outside but in the background I was panicking, not sleeping, not eating and obsessing over my baby.

The next thing I remember is waking up in hospital…

Apparently, one morning, around 4 or 5am, I’d left the flat, left the door open, with my baby asleep and my mum sleeping on the sofa. I had no shoes on and I got into my car. I drove along the motorway and parked my car on the hard shoulder and got out. What happened after that was devastating. The only thing I can remember is someone saying quick get her a blanket. Then I remember waking up in a hospital.

I’d walked out in front of a lorry. Luckily, I survived. I had some very deep cuts, some bad injuries and I needed stitches in my head. I had some deep wounds on my foot and scars all over my back.

It does cross my mind from time to time about how the driver is today. It must have been such a huge trauma for him and I truly hope he has he recovered from it.

I was quickly transferred to the psych ward where I was sat outside in a wheel chair, covered in blood. We were waiting hours and hours for the psych team to assess me. They eventually decided to admit me and I was taken into a shared room where my family had to leave me due to lockdown rules.

My family were looking after my son and Jamie, who was working in Mexico at the time, flew back home. Meanwhile I was in the psych ward, unable to shower properly because I couldn’t get my injuries wet, feeling as though I was in a prison, with no furnishings or comfortable surroundings and unbelievably tall walls with barbed wire so nobody could escape.

I don’t feel I received particularly good treatment while I was there. And I remember another girl who was in there suggesting I start to write things down to keep track of the doctors I was speaking to and the meds I was put on. When my sister and Jamie came in to see me I saw a psychiatrist who granted me permission to go home under my husband’s care.

We then went into full lockdown and my husband had to try to look after both me and our son at the same time. I think he has so much strength to have been able to put up with what I now know was absolutely shocking and both terrifying behaviour.

The team of psychiatrists would come to our house twice a week and I had some zoom calls with my psychologist during lockdown. They were trying to find the right combination of meds for me but apparently they weren’t working and they suggested I go back to the psych ward without my baby – and of course no visitors were allowed because of lockdown, so I really didn’t want to go back there.

One of my friends in the UK who worked in health contacted Jamie because she had found my messages really concerning. She had heard about Mother and Baby Units in the UK and Jamie, who’s Scottish, got in touch with APP to find out more and then made contact with an MBU in Glasgow. They said I could be admitted.

Jamie had to drive us all from Spain to Calais and then to a friend’s in Cumbria before reaching Stirling, where he immediately got me an emergency doctor’s appointment. By that point my paranoia and symptoms were so bad the doctor called an ambulance and I was immediately admitted to the MBU with my baby.

Because I’d come from Spain I had to have ten days in isolation, so Jamie went back to work to bring in some money because nobody was allowed to visit me anyway.

I ended up spending five months in the MBU. I was admitted in the May, and discharged in the October.

I remember in the MBU there were quite big rooms and we had our own bathrooms, a nice play area and garden with picnic benches and windmills. They organised things like crafts, cookery and pram walks which I enjoyed, and I remember me and one of the other girls used to make apple crumbles.

Unfortunately, because I still didn’t seem to be improving, I had to have ECT. I was so nervous and I appealed it but Jamie gave permission because he thought it was my only chance of getting better.

The doctor I saw before each ECT session was so lovely, I remember he always reassured me. I never got to know his name and I’ve always wanted to thank him for his kindness. I had 18 ECT treatments in total. The only thing I complained about was having a sore head, but apparently that’s quite common.

When my son was due to turn one, however, the MBU had to plan my discharge, because they were only funded to look after mums with babies less than a year old. I started going to my in-laws’ house on weekends and eventually was recovered enough to have a full discharge. However, I caught Covid, so we had to isolate in an Air BnB for a while which was really tough. Eventually, we made it back to Spain in a far better position than we had been when we left.

I’m still on medication today, but just a low dose of antidepressants. I’ve stopped the antipsychotics and things are slowly getting back to some kind of normality.

My son started going to nursery and he’s picking up both Spanish and English, which makes me so proud. And I went back to work in the September of 2021, so I had time to get back into normal life, start exercising again and focusing on me.

Looking back, it was a very scary and intense period, especially with it all happening during lockdown. But now Jamie and I are out the other side, we are both really keen to raise awareness, because nobody in my family had even heard of PP before I was diagnosed.

I’ve trained to be a peer supporter with APP, so I can share my experience and hope with other families who are going through what we did. I know that when Jamie first spoke with APP’s peer support lead, Ellie, when I was really ill, it made such a difference so I hope that we can now pass on that support. Just knowing that someone else has been where you are and come out the other side makes all the difference.