APP January newsletter

January 2024 newsletter

APP in 2024

APP’s Chief Executive, Dr Jess Heron, explains APP’s priorities for the coming year.

“Thank you from everyone at APP for your support in 2023. We have some exciting plans for 2024 - and we would love you to get involved.

I must warmly thank the University of Birmingham for hosting APP as a research network for more than 25 years, and as a charity for the past 13 years. We have achieved great change over this period and we are so thankful for the University’s support. APP is now an independent charity, but we’ll maintain links with The Institute of Mental Health at Birmingham University, The National Centre for Mental Health at Cardiff University and we’re developing new links with the National Perinatal Epidemiology Unit at Oxford University.

In 2024, we’ll continue our focus on peer support, health professional training, awareness-raising, campaigning and research.

PEER SUPPORT: APP’s national peer support project has grown every year since its inception, supporting women, partners and grandparents throughout the UK, via: email, phone, video call, community forum, in person meet-ups, regional café groups, wellbeing and creative activities. In 2024, our new Muslim women’s café group will continue, and we will launch a new group for Black women. We will develop a new bereavement support online group. We’re also conducting work to understand the legal, rights-based and employment issues faced when recovering from PP, and developing web content on managing suicidal thoughts during recovery.

TRAINING: We’re working on our first two e-modules to extend the reach of our health professional training. These in-depth modules will complement our full day online and in-person courses for NHS teams, and our shorter lived experience talks. In October, the second annual Alex Baish memorial lecture will focus specifically on helping GPs to prevent maternal suicide.

CAMPAIGNING: We’ll continue our campaign to ensure that all women affected by PP have access to a Mother and Baby Unit (MBU) and that policy-makers understand the value of these services. We’ll maintain pressure for the delivery of an MBU in Northern Ireland, working with our NI café group, storytellers and linking with journalists, MPs and third sector partners. Our lived experience engagement work with the new N Wales/Chester MBU will continue, and we’ll carry on supporting calls for an MBU in north Scotland. We’re assessing the impact of our campaign for all expectant parents to be given information about postpartum psychosis during pregnancy and continuing to share our antenatal education toolkit widely to midwives, health visitors, birth educators and GPs.

AWARENESS-RAISING: We’d love your help to share our BBC Radio 4 Charity Appeal, which will be broadcast on 24th March. We’ll be in touch to ask you to make short clips on your phone about why APP is important to you and why you want people to support us. It is a fantastic opportunity to raise funds and awareness of PP and we are delighted to have been selected as one of this year’s charities. Our media team have a year-long programme of awareness-raising media and creative pieces, working with lived experience storytellers, to reduce stigma and promote hope for recovery.

RESEARCH: We are continuing our work with researchers at Cardiff University on clinical and genetic studies- look out for our webinar in March reporting findings from this collaboration. We’re working with sleep researchers and recovery researchers on new studies that we hope will receive funding.

We rely on your donations to do our work. To make a one off or regular donation, visit: www.bit.ly/APPdonate or to become a fundraiser or hold a fundraising event, get in touch. We’re always looking for more people to get involved. To find out more about training as a peer supporter, storyteller or lived experience speaker, email us.

Thank you for everything you do to support us – and I look forward to seeing you during the year.”

Café groups

APP runs monthly peer support social/café groups, which are informal friendly spaces to share experiences and meet others who have also had psychosis in the perinatal period.

Most of our groups meet both in-person and on Zoom. We have regional groups for London, Sussex and Hampshire, Wales, Scotland, NI, Yorkshire, North East/Newcastle, Birmingham, Black Country, Lancashire and South Cumbria, and Manchester.

We also have a group that meets every other month on Zoom which is for anyone who lives in the UK. The next meeting for this group will be on Thursday 8th February, 7.30pm - 9pm and you can sign up on Eventbrite here.

Our group for Muslim women who have experienced psychosis in the perinatal period will next meet up on 8th February, at 12.30pm - 2pm. You can sign up on Eventbrite.

Information about all our peer support, including upcoming café group dates, details of our regular groups for dads/co-parents and grandparents and how to join, is on our website.

BBC Appeal

We’re delighted that APP has been selected to feature as a BBC Radio 4 Charity appeal in March. Our broadcast will be presented by APP Ambassador, Laura Dockrill, on 24th March. This is an incredible opportunity for us to raise the profile of APP on a national scale, as well as really help to raise awareness of postpartum psychosis. We want to reach as many people as possible – and we’d love to get your input on the best ways for us to do this.

We’re holding two meetings on 7th February open to anyone interested in helping us make the most of this amazing opportunity. Join us at either 12.30pm, or 8pm for 45 minutes by booking a place on Eventbrite. Come along to one of them to find out more about what we have planned and how you can be part of it - feel free to pop along and listen in, no pressure to get involved - we just want you on board for this exciting journey!

Mums and mental health survey

The National Centre for Mental Health (NCMH) and Action on Postpartum Psychosis are working together to understand more about the causes and triggers of severe mental illness during pregnancy and following childbirth. You are invited to take part in this research if you have experienced postpartum psychosis or other severe mental illness around childbirth. For more information and to sign up to participate, please click here.

Birth trauma: national inquiry

The Birth Trauma All Parliamentary Party Group (APPG) has launched a new national inquiry to better understand the reasons for the prevalence of birth trauma in the UK.

The APPG is aiming to review the reasons for the prevalence of birth trauma and examine how best to support mothers. As part of the inquiry, parents and professionals affected by birth trauma are being invited to submit their stories.

If you would like to take part, you can find out more here. The closing date for submissions is 6th February.

Fundraising

Diving into the new year!
Friends Emily and Adam got 2024 off to a flying start for APP – with an amazing skydive from 14,000ft! Emily suffered with PP after the birth of her baby in 2020 and is passionate about raising awareness of the illness. Both Emily and Adam work at the Beeches Mother and Baby Unit (MBU) in Derbyshire, so they know first-hand the devastating impact it can have on women and families and wanted to do something to make a difference. Read more about their story here.

Take on a challenge in 2024

If your 2024 resolution is to do something new this year, we can help you with that! Whether you’re into running, swimming, cycling, walking or want to do something totally different – we can find the perfect challenge for you. We have options all over the country (and beyond) and there’s something for everyone! You’ll find loads of ideas here.

We are urgently looking to fill our final places in the Brighton Marathon and the London Landmarks Half, both taking place on 7th April. Both of these events are now totally sold out, the only way to get a place is through a charity like us! Get in touch if you’d like to fill our final spot in each event.

We also have places available in the amazing Great North Swim in Windermere in June and the iconic Great North Run on 8th September. Again, contact us for more info on these.

Are you a member of a running club? Would you be able to send an occasional update to your club with some of the running opportunities we have coming up in your area? We can offer low registration fees and guaranteed places in some of the biggest events in the country. Let our Fundraiser Fliss know if you could help with this.

APP’s Miles for Mums and Babies will be back this year – watch this space for more details coming soon, but it’s never too early to get planning – let us know if you have an idea for your own ‘Miles’ challenge this year.

Support APP for free

If you’re having a post-Christmas declutter, do consider whether anything could be recycled to raise funds for APP – our friends at Recycling for Good Causes will send you a sack for free, you simply fill it with old or broken electronics, jewellery, stamps and old currency, they’ll collect it for free and APP will receive a donation in return. Alternatively, you could sell items on eBay or Vinted, then donate some or all of what you make to us. For more info on recycling and lots of other ideas to raise funds for APP without it costing you anything at all, check out this page.

Dates for your diary

APP Scotland virtual café group meet up, Thursday 25th January

APP Manchester face to face café group meet up, Friday 26th January

APP Black Country face to face café group meet up in Walsall, Tuesday 30th January

APP Wales virtual café group meet up, Tuesday 30th January

APP Sussex and Hampshire virtual café group meet up, Wednesday 31st January

APP Muslim women’s virtual café group meet up, Thursday 8th February

APP UK-wide virtual café group meet up, Thursday 8th February

APP Lancashire and south Cumbria face to face café group meet up in Blackburn, Friday 9th February

APP Lancashire and south Cumbria virtual café group meet up, Monday 12th February

APP Lancashire and south Cumbria face to face café group meet up in Lancaster, Wednesday 14th February

APP Lancashire and south Cumbria face to face café group meet up in Preston, Friday 16th February

APP dads and co-parents virtual café group meet up, Wednesday 21st February

APP Northern Ireland virtual café group meet up, Thursday 22nd February

APP Birmingham face to face café group meet up in Birmingham, Friday 23rd February

APP Manchester face to face café group meet up in Manchester, Friday 23rd February: APP regional café groups webpage

APP Yorkshire face to face café group meet up in Sheffield, Saturday 24th February

APP London face to face café group meet up, Saturday 24th February

APP Black Country face to face café group meet up in Walsall, Tuesday 27th February

APP Sussex and Hampshire virtual café group meet up, Tuesday 27th February

APP Scotland virtual café group meet up, Wednesday 28th February

Contact information for all APP café groups is available here.

APP Book Club virtual meeting, Wednesday 13th March 2024. Discussing Matrescence: On the Metamorphosis of Pregnancy, Childbirth and Motherhood by Lucy Jones. Book your free place here.

Events and conferences

MBRRACE Conference: Saving Lives, Improving Mother’s Care, Thursday 1st February

The “MBRRACE-UK - Saving Lives, Improving Mothers’ Care” report highlights suicide as a leading cause of maternal death. This online conference aims to share findings from the report and identify how individuals and agencies can work together to improve the care of women/birthing and save lives. Book here.

Black Maternal Health Conference UK, Monday 18th March

Organised by the Motherhood Group, this London conference features keynote speakers and panel discussions focusing on how health equity for Black mothers can be achieved. More details and ticket booking here.

 

If you would like to advertise your event here, please get in touch: app@app-network.org.

 

Chris's awareness raising football tour continues...

Last year, dad and APP volunteer, Chris Wasley decided to take on an epic tour of football grounds around the UK, aiming to raise awareness of postpartum psychosis and APP.

You can read more about his grand plans and the first few stops on his tour here.

The first point of call for Chris in 2024 was Stoke City FC on 20th January.  Here he reports back on his latest match:

'I went to see Stoke City unfortunately lose 2-1 to Birmingham City.  It wasn't the result Stoke's performance deserved, they played some really lovely football but just couldn't score the goals! But the result maintains Birmingham's unbeaten run under their new manager.
This was another significant ground to visit for my challenge. My wife and I actually met whilst studying at Staffordshire University several years ago and have been together ever since!  And my good friend Ed, who I also met at University and is godfather to my son Dean, still lives locally. 

Stoke City FC is only 17 miles from the Stafford MBU. Ed and some of his very welcoming friends and family came with us to the game. Shout out to the Cheeseboarders!

 

I have to say amazing thanks to Stoke City and Head of Supporter Experience, Anthony.

 

Anthony was really interested to hear of our story and experience of postpartum psychosis, and to help me in raising awareness, arranged for us to have photographs on the pitch which will be used in a subsequent matchday programme! What an experience!

 

Being a weekend I wasn't able to visit the staff at the Staffordshire MBU, but I did have a lovely phone call with them to thank them for all the wonderful work they do.

 

Up next is Newcastle United in March... I really hope I am not a curse for the home teams on this challenge!'

Photo of the match day programme article about Chris's tour

Here's the fantastic piece featuring Chris in Stoke City's matchday programme.
We can't wait to hear about your next match!

If you're a dad or co-parent that would like to meet and talk with others whose partners have experienced PP, join our virtual Dads and Co-parents peer support social / cafe group - 8-9pm, every 3rd Wednesday of the month.
Zoom joining link: bit.ly/PARTNERMEET. Or, email Simon: simon@app-network.org

Emily and Adam skydive for APP!

Two wonderful staff members from The Beeches Mother and Baby Unit in Derby are getting 2024 off to a flying start with a skydive on Friday 12th January!
Emily and Adam are bravely taking on this challenge to raise raise awareness of postnatal mental illness.
Adam says: “Ever since graduating as a mental health nurse and beginning my career on The Beeches MBU I’ve been passionate about improving services and support to people going through mental health crises in the postpartum period.
I have seen first hand the impact  that prompt care and support has on recovery rates. Additionally my friend and skydive partner Emily had her own journey with postpartum psychosis and I know how helpful APP and community services were for her.
I’m keen to help in any way that I can; so a sponsored skydive seemed the perfect way to do it! “
Emily herself experienced postnatal mental illness after the birth of her baby in 2020. She has gone on to train to become a support worker, helping other mums who are going through difficult times. She says: “After being a service user myself and working on The Beeches Mother and Baby Unit as a Support Worker, I’ve seen both personally and professionally the impact that care has on recovery. My personal experience has given me this intense drive to make a difference in services as I know first hand how scary the postnatal period can be.”

'Postnatal mental illness is so terrifying and at the time you don’t see any kind of light after dark, everything is just tunnel vision and I’ve never felt sadness and fear like it. The sadness of not wanting to be here and not enjoying this motherhood dream that everyone talks about, not enjoying anything in life, feeling like a burden and like you’re not worthy of being a parent, but honestly, it DOES change.'

You can read more of Emily's beautifully written story about her experiences, and add your support for her and Adam's jump on their GoFundMe page.
Good luck Emily and Adam!

2024 - New Year, New Challenge!

Could 2024 be the year you take on that challenge you’ve always dreamed of? Whether it’s running a marathon, jumping out of a plane or dressing up in a purple tutu and getting covered in paint – we can help make your dreams come true!

Now is the PERFECT time to sign up for a new challenge, and here at APP we have more than ever before for you to choose from!

Here’s just a few of the amazing opportunities we have available next year…

'The marathon was an amazing experience, one which is hard to describe due to all the highlights – from the support from family and friends, the other runners and the huge crowds shouting everyone's name to the feeling of achievement and thankfulness that it was over’ - Debbie

 

Plus we have access to places in so many more exciting events all across the UK and beyond! Including…

'I completed 5 triathlons in support of APP finishing with an Olympic distance at the London Tri. The experience of the support and hugging my daughter at the end and being reminded how far I’ve come in recovery was incredible.' - Alice

 

'I wore my t-shirt proudly and have to say, I was quite emotional at the finish line!' - Adeline

And if you don’t fancy a run, swim or cycle – we can offer bungee jumps or skydives if you're feeling brave enough!

'The skydive - absolutely amazing and you must do it once in a lifetime!' - Katie

 

 

 

'Smashed the bungee jump! So so scary but what a feeling once you jump!' - Jodie

 

 

Nearly all these events have a low registration fee of just £26 and a minimum fundraising target of £250 (some are a bit more or a bit less - check out the registration pages or contact us for more details).
slate APP medal with purple ribbon
We’ll provide a fab purple APP t-shirt or running vest, plenty of moral support with training plus ideas and goodies to help with fundraising, and of course your all important APP medal for when you cross that finish line!

Ready to sign up? Click here to access all the events, or contact Fliss for more info or if you have any questions at all.

We can't wait to cheer you on as part of Team APP next year!

APP December newsletter

December 2023 newsletter

Season's Greeting and a Happy New Year from all of us at APP


A message from APP's Chief Executive, Dr Jessica Heron:

"On behalf of APP, I would like to thank everyone in our community for supporting us throughout 2023. With your help, we have achieved a huge amount over the past 12 months.

Special thanks must go to our fundraisers who have worked so hard to raise awareness and much-needed funds. The phenomenal fundraising by Richard Baish, his family and friends in memory of his wife, Alex, enabled us to deliver a free webinar on suicide prevention with more than 2,500 frontline GPs, midwives, health visitors and antenatal educators signing up. The funds also supported the development of our postpartum psychosis (PP) toolkit for antenatal educators and associated media campaign.

I’d also like to thank every single person who has supported our work by sharing their stories, helping to raise awareness, donating or holding a fundraising event. In 2023, more individuals and teams have been involved in running, cycling, swimming, walking, bungee jumping and cake baking than ever before, together raising more than £160,000.

With the help of our volunteers, we provided 1:1 peer support to 292 individuals. An average of 230 used our peer support forum each month. Our regional café meet-ups, groups for dads/co-parents and grandparents continued and we added new groups for Muslim women and a UK-wide meeting. APP Insider Guides have been translated into Arabic, Bengali, Polish, Slovak and Urdu to continue our work ensuring this information is accessible to as many people as possible.

Our four NHS partnership projects, including our new collaboration with Greater Manchester Mental Health NHS Foundation Trust, provided peer support to more than 270 women and families early in their recovery journey. Our annual peer support survey showed APP’s peer support service continues to be life-saving and an essential ingredient in recovery, with 99% of respondents feeling more supported and 96% feeling less isolated.

Our campaigns have continued to make a real difference for women and families – work on a Mother and Baby Unit (MBU) in Chester serving Cheshire, Merseyside and North Wales is underway. We also saw the long-awaited announcement of a plan for a Northern Ireland MBU, thanks in no small part to our NI café group, NI regional rep Oorlagh, and the inspirational efforts of the family of Orlaith Quinn who lost her life to PP.

As always, I would like to thank all our staff, volunteers, trustees, donors and fundraisers for their dedication, passion and hard work this year. There is a lot more we want to do together in 2024. I’m delighted that APP has been selected for a BBC Radio 4 Charity Appeal, to be broadcast on 24th March, which is a great opportunity to raise funds and awareness.

For some women and families, Christmas and New Year is a difficult time. APP’s support is available for anyone facing grief or loss, for families who may have loved ones spending Christmas in a Mother and Baby Unit, or those struggling with symptoms during the recovery period. We are thinking of you and our peer supporters are available every day of the year on our Forum.

Wishing you and your loved ones a happy festive period

Peer Support during the festive period 

APP’s Forum is open as usual over the festive period. Our staff and volunteers are ready to talk to anyone who needs support. If you would like talk to others who have been there, please get in touch.

If you are emailing the APP office or requesting one to one email or video call support over the festive period, please bear with us. It may take a few days for us to get back to you.

Chester Mother and Baby Unit 


Plans for a new Mother and Baby Unit (MBU) - a specialist in-patient treatment unit where mums with mental illness are admitted with their babies – were announced by Cheshire and Wirral Partnership NHS Foundation Trust earlier this year. The eight-bed unit will be opened in Chester to support new and expectant parents across Cheshire, Merseyside and North Wales.

APP’s national team is working with the Cheshire, Wirral and North Wales NHS teams to ensure the voices of lived experience are heard throughout the whole development process, as well as ensuring the unit helps to meet the needs of families from North Wales. APP volunteers and those with lived experience of PP and inpatient units have been an integral part of the development meetings, where they have inputted into the design, landscaping, and functionality of the MBU.

APP has long been campaigning for more MBU beds in the UK and we’re delighted by the plans for Cheshire. However, in many parts of the UK it is still the case that mothers and babies are forced to travel miles for treatment or that mums can end up on an adult psychiatric ward. You can read more about APP’s campaigning for MBUs in Northern Ireland, the Republic of Ireland and Northern Scotland and add your voice here.

Café groups

APP runs lived experience café groups across the UK where mums and parents who have been through postpartum psychosis, and their partners and family members, can meet informally.

We have a new UK-wide café group and there are currently regional groups in Birmingham, Lancashire and South Cumbria, London, Manchester, North East and North Cumbria, Northern Ireland, Scotland, Sussex and Hampshire, Wales and Yorkshire.

We also run monthly cafe groups for: dads and co-parents; grandparents; and Muslim women.

Café groups meet both online and in person, so if you can’t get to a meet-up, you can always join a group for a cuppa online.

To join us and to see the new dates for meetings in 2024 visit our website.

New Midlands peer support worker

Welcome to our new peer support worker, Rachel Rollins, who is part of our partnership project with Birmingham and Solihull Mental Health Foundation Trust.

Rachel joins Natalie and Soukaina in the Birmingham team, providing peer support to inpatients at Birmingham Mother and Baby Unit (MBU) and at APP’s café groups in the area.

Rachel has volunteered as a peer supporter with APP, attending café groups, after being supported through the West Midlands teams after the birth of her second child. You can read more about our Birmingham and Solihull project and find out how to get involved as a volunteer here. To join the café group, please email birmingham@app-network.org.

(Pictured above Rachel Rollins, left, with Peer Support Facilitator Natalie Thompson)

Festive bake off

A big thank you to Cheshire and Mersey Specialist Perinatal Service for holding a Christmassy Big Bake in support of APP. It looks like there was lots of festive fun and plenty of tasty treats on offer!

If you fancy holding your own Big Bake to help raise funds as well as awareness of postpartum psychosis and APP, please email fundraising@app-network.org and we’ll send you more details and your Big Bake fundraising pack so you can get started.

APP Book Club

Join us for the next meeting of APP’s Book Club on Wednesday 13th March. We’ll be meeting on Zoom to discuss Matrescence: On the Metamorphosis of Pregnancy, Childbirth and Motherhood by Lucy Jones. Find out more and book your free place here.

Fundraising

Lee completes his final challenge!

Our amazing fundraiser Lee Smith (pictured above with MBU staff) has finished his epic year of challenges to raise awareness of, and funds for, APP His final challenge saw him run 22 miles from his home in Washington to the Mother and Baby Unit (MBU) in Morpeth, where his wife Jess was treated in December 2020. Lee said:

"Huge thank you to the staff on the Mother and Baby Unit in Morpeth, giving me a tour of the ward at the end of the 22-mile run. Due to covid restrictions I [had only been able] to imagine where Jess was staying. A really comfortable, homely environment to get the best support with staff - the mothers are definitely in safe hands."

Over the course of the year Lee has completed the Great North Run, a Tough Warrior event, climbed mountains and even braved a bungee jump! He's raised more than £4,300 and done a huge amount to raise awareness of PP as well. Find out more about his amazing feats here. Lee's work is not quite finished yet though - keep an eye on our social media platforms to hear about an interview with him on BBC Radio 5Live in the run-up to Christmas!

Thank you

A massive thank you to every single person who has taken on a fundraising challenge for us during 2023 - whether you were involved with Miles for Mums and Babies, organised a Big Bake, took on a marathon, did a collection at work, climbed a mountain, cycled, swam, swam, walked, toddled or jumped...! Every single fundraiser has been absolutely amazing this year and we are so grateful to all of you. You've helped raise an incredible amount of money this year which is already making a huge difference. Thank you for being part of Team APP! We can't do any of this without you.

Nominate APP

To end the year, easyfundraising is giving fifty causes £50 each. If you would like to nominate Action on Postpartum Psychosis for a £50 award - please take a minute to complete this form and tell them why you love APP in 50 words or fewer by 31st December. It's a really short form - just the 50 words or fewer plus your name. If you have 5 minutes any time before the end of the year, please do give it a go and we'll let you know if we win! Thank you.

Festive support
We'd love your support over the festive season! Every donation makes a difference. Here are a few ways you can support us this December if you would like to.

APP gift voucher
Are you struggling to think of present ideas for the person who has everything? Make a donation to APP in their name then drop us an email and we’ll send you a downloadable gift voucher for you to print and wrap for them for the big day. 

 

Dates for your diary

APP Lancashire and south Cumbria face to face café group meet up in Blackburn, Friday 5th January 2024: APP regional café groups webpage

APP Lancashire and south Cumbria virtual café group meet up, Monday 8th January 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Lancaster, Wednesday 10th January 2024: APP regional café groups webpage

APP London virtual café group meet up, Thursday 11th January 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackpool, Friday 12th January 2024: APP regional café groups webpage

APP Northern Ireland virtual café group meet up, Thursday 18th January 2024: APP regional café groups webpage

APP Birmingham face to face café group meet up in Birmingham, Friday 19th January 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Preston, Friday 19th January 2024: APP regional café groups webpage

APP Yorkshire virtual café group meet up, Tuesday 23rd January 2024: APP regional café groups webpage

APP Scotland virtual café group meet up, Thursday 25th January 2024: APP regional café groups webpage

APP Manchester face to face café group meet up, Friday 26th January 2024: APP regional café groups webpage

APP Black Country face to face café group meet up in Walsall, Tuesday 30th January 2024: APP regional café groups webpage

APP Wales virtual café group meet up, Tuesday 30th January 2024: APP regional café groups webpage

APP Sussex and Hampshire virtual café group meet up, Wednesday 31st January 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackburn, Friday 2nd February 2024: APP regional café groups webpage

APP Muslim women’s virtual café group meet up, Thursday 8th February 2024: APP regional café groups webpage

APP UK-wide virtual café group meet up, Thursday 8th February 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Blackpool, Friday 9th February 2024: APP regional café groups webpage

APP Lancashire and south Cumbria virtual café group meet up, Monday 12th February 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Lancaster, Wednesday 14th February 2024: APP regional café groups webpage

APP Lancashire and south Cumbria face to face café group meet up in Preston, Friday 16th February 2024: APP regional café groups webpage

APP Birmingham face to face café group meet up in Birmingham, Friday 23rd February 2024: APP regional café groups webpage

APP Manchester face to face café group meet up in Manchester, Friday 23rd February 2024: APP regional café groups webpage

APP Black Country face to face café group meet up in Walsall, Tuesday 27th February 2024: APP regional café groups webpage

APP Sussex and Hampshire virtual café group meet up, Tuesday 27th February 2024: APP regional café groups webpage

APP Book Club virtual meeting, Wednesday 13th March 2024. Discussing Matrescence: On the Metamorphosis of Pregnancy, Childbirth and Motherhood by Lucy Jones. Book your free place here.

Emily and Andy – dream team!

APP volunteer Emily Saunders has even more reasons to celebrate this Christmas as she has just come to the end of an incredible year long Miles for Mums and Babies challenge!

Over the last 12 months she has walked an amazing 1000 miles to raise funds and awareness for APP. Emily took on this mammoth challenge to help support other families affected by postpartum psychosis. She suffered from postpartum psychosis and severe postnatal depression and anxiety after her daughter was born back in 2017.

Emily now volunteers with APP to help raise awareness.  She says: 'Through APP I have met inspiring, strong women who survived this illness and with whom I can share experiences'

Emily has continued to walk throughout this year, fitting it in around her job and busy family life.  She says: 'Walking is something which really helps my mental health and was so important to my recovery. I love being in the fresh air, enjoying nature, taking time to think, listening to podcasts and spending time both alone and with friends and family.'

Not only has Emily walked 1000 miles, and been supported by nearly 40 donors, she's also sponsored herself - saving a little bit each week to reflect the miles she's done for APP.

Read more and add your support for Emily here: www.justgiving.com/page/emily-saunders-1000milewalk

But Emily is not alone in her mission to raise funds for APP though – her partner Andy is also taking on his own challenges. In October he completed the Macclesfield Half Marathon and next March, he’ll be heading to France to take on the Paris Half Marathon!

Do add your support to help him get through these harsh winter training days…  www.justgiving.com/page/andrew-rolfe-1700334019667

What an amazing couple! The biggest thank you from all of us at APP to Emily, Andy, their family and all those who have supported them.

Ways to support APP this festive season

 

There's lots of ways you can show your support for APP this festive season:

  • Host a festive Big Bake event with friends and family – for more info visit bit.ly/APPBigBake
  • Nominate Action on Partum Psychosis for a £50 award - please take a minute to complete this form and tell them why you love APP in 50 words or less by 31st December.  It's a really short form - just the 50 words or less plus your name. If you have 5 mins any time before the end of the year, please do give it a go!
  • Sign up to EasyFundraising - APP are registered with easyfundraising, which means you can help us for FREE. Over 7,000 brands will donate to us when you use easyfundraising to shop with them – at no extra cost to yourself! All you need to do is sign up and remember to use easyfundraising whenever you shop online.
    This year you can also help us WIN one of four £250 donation prizes in easyfundraising's Refer to Win giveaway. We'll get a FREE entry each time a new supporter signs up to easyfundraising before the 18th December! It only takes a moment and it's completely free, so please sign up today and give us an entry!
  • Sign up to Give as You Live - Another way to raise free donations for us while Shopping online this festive period. It's simple and easy to use and more than 6,000+ stores are registered with them. Sign up today and start using Give as you Live Online!
  • Buy your Christmas, Hanukah and other seasonal cards from Making a Difference Cards - All cards can be personalised with photos, names and messages, and you can buy them individually, in packs, as printed cards or as digital e-cards and there are options for businesses too. Browse the selection here: https://bit.ly/APPcards
  • Buy an APP voucher as a gift – struggling to think of present ideas for the person who has everything? Make a donation to APP in their name, then drop us an email and we’ll send you a downloadable gift voucher for you to print and wrap for them for the big day. 
  • Text APPXMAS to 70085 to donate £5. Texts will cost the donation amount plus one standard network rate message, and you’ll be opting into hearing more from us. If you would like to donate but don’t wish to hear more from us, please text APPXMASNOINFO instead.
  • Nominate us for a Movement for Good Award - it takes less than 1 minute and we might win £1,000 – simply visit www.bit.ly/NominateAPP and complete the form – no obligation to sign up to any mailing lists or anything either.
  • Share our social media posts – every share helps us reach more people.

Thank you so much for your support and have a fabulous festive season!

Lee's final challenge!

Lee bungee jumpingOur amazing fundraiser and dad of two, Lee Smith, is taking on one final physical challenge this month to round off a year of incredible achievements.

Lee’s wife Jess was diagnosed with postpartum psychosis, a severe mental illness, after the birth of their second daughter in 2020, and Lee is passionate about raising awareness and funds to help other families affected.

In the last 12 months Lee has completed 13 challenges – he started last December with a 10 mile mystery run; then went on to climb the three highest peaks in Scotland, England and Wales; completed 100,000 steps in 24 hours; ran 5k a day in March; finished the Alnwick 10k, the Great Run 10k and the Great North Run; plus a Total Warrior obstacle course and he got his adrenaline pumping with a 100mph zipwire adventure and a 140ft bungee jump!

He’s battled through all weathers – from snow and ice to heatwaves, fought personal illness, fitted challenges around work and family commitments and managed to convince friends and family to take part in many events alongside him as well.

For his final event on 10th December, Lee will take on his longest, most challenging run of all – 22 miles from the family home in Washington to the specialist Mother & Baby Unit in Morpeth – where Jess spent several months receiving treatment when she was ill.

Lee says: 'Jess was sectioned on 8th December and first time I was allowed in (all masked up because of COVID) was the 11th so my final run represents the whole journey perfectly.  I’m so immensely proud of Jess and everything we’ve been through as a family and the challenges I’ve undertaken this year have been a good representation of this, as well as (without realising) helping me through some really dark days. APP is always going to have a special place in my heart thanks to the support and help it has given us as a family’.

Jess is now recovered and both Lee and Jess volunteer for APP – Jess as a peer supporter and Lee through his fundraising and awareness raising.

To support Lee on his amazing final challenge, please visit: www.justgiving.com/fundraising/lee-smith215

APP November newsletter

November 2023 newsletter

Northern Ireland Mother and Baby Unit news

We are delighted with the news this week that Belfast Trust has been chosen as the site of a Northern Ireland Mother and Baby Unit (MBU). APP would like to thank Oorlagh Quinn, our NI Regional Rep, and all the families who have bravely shared stories to show why an MBU is so important.

But we are not there yet – there has been no funding allocated, no timeline given and no plans for women who develop PP before an MBU is open. You can read APP's full statement here.  

APP staff and storytellers Laura, Tara, Liz and Ellie have been in the press raising awareness and responding to the announcement.

In October 2022 we worked with the Women's Resource and Development Agency to present an open letter to then Health Minister Robin Swann, signed by 40 mental health and parenting organisations, calling for an MBU, as well as a public petition with almost 7,000 signatures.

#MumBabyTogetherNI

Café groups news 

The next UK-wide café group meeting will be on Thursday 7th December at 7.30pm. We have seen lots of interest in this group – thank you to everyone who has attended so far. To find out more or sign up, email app@app-network.org

The next café group for Muslim women who have experienced PP will be on 5th December, starting at 12.30pm. To sign up email us: app@app-network.org

Our 10 regional café groups continue to meet regularly, both virtually and face-to-face. The groups are attended both by those newly recovering from PP and those who have recovered many years ago. If you are interested in joining any of the groups – in Manchester, Wales, Sussex & Hampshire, Northern Ireland, Scotland, Yorkshire, North East & North Cumbria, Lancashire & Cumbria, Birmingham and London - please email app@app-network.org.  

The dads and co-parents group meets on the third Wednesday of every month (apart from December) and is for people who have supported a partner through PP. Our grandparents group meets approximately six times a year. If you would like to be on the mailing list for either of these groups, please email app@app-network.org.

APP 2023 peer support survey 

A big thank you to everyone who took the time to complete our 2023 peer support survey.

The results show APP’s peer support service continues to be life-saving and an essential ingredient in recovery.

Respondents accessed our peer support for a variety of reasons: 82% had experienced postpartum psychosis (PP), 16% were a partner or family member of someone who had experienced PP, 2% were at risk of PP or ‘other reason’.

The most common reasons for accessing APP’s peer support services were: looking for help and support (66%), wanting to connect with others with similar experiences (62%), and wanting to join a community of women and families with experience of PP (53%).

For respondents for whom the question was relevant, since finding APP:

  • 99% felt more supported
  • 96% felt less isolated
  • 97% felt more informed about PP
  • 87% felt less negative about PP
  • 94% felt more hopeful about the future and 97% felt that APP had helped, or was helping, them to recover.
  • 46% felt they ‘might not be alive if I had not found APP's peer support services’.

 “The support APP provides is life saving and life changing. APP’s service means community to me - from picnics, to fundraising events to cafe groups I’ve always felt included. All staff and volunteers inspire me every day - keep doing the amazing work you do APP!”

“As a partner, being able to utilise the forums and, in particular, use the virtual cafe to chat to other Dads has been brilliant and made me feel much happier and positive about the future. I think,
especially so far as mums are concerned, that sometimes there isn't anyone to turn to and having the option of a dedicated service for PPP where you can talk to people that have lived and breathed it could literally be a life saver during the recovery phase.”

 We added new questions this year about the symptoms people experienced in relation to their episode of PP.

  • Did you experience, or do you currently experience, any of the following in relation to your episode(s) of PP?
  • If yes, has APP’s peer support service helped with this symptom? (% responding Yes)
  • Anxiety
  • 98%
  • 96%
  • Depression
  • 90%
  • 98%
  • Further episode(s) of psychosis
  • 36%
  • 94%
  • Ongoing bipolar illness / symptoms
  • 37%
  • 94%
  • Intrusive thoughts
  • 71%
  • 84%
  • Suicidal thoughts
  • 51%
  • 83%

Additional questions were also included to find out more about difficulties people have with practical and legal issues because of PP. We will be working with a specialist to follow up these findings and explore the need for specialist support and advice around such issues.

Health professional training: book for 2024!

Book now for APP’s future health professional training days. Our workshops are highly rated by attendees, with 100% rating them as excellent/good and 100% saying they would recommend them to colleagues:

"Really brilliant session. Balanced, informed, inspiring, emotional. So raw and real and yet very professional and contained. Best training I've attended in a very long time.”

Supporting dads and co-parents affected by postpartum psychosis

This online workshop is informed by real life experiences of dads and co-parents whose partners have experienced postpartum psychosis. At the end of the workshop, you will be aware of the research on partners; have a deep understanding of the needs of dads and co-parents; and have considered strategies and interventions to improve support.

Friday 8th March 2024 / Zoom
 10am – 12.30pm BST
 £99
 Find out more & book.

Insider Guides translated into 5 languages 

All three APP Insider Guides – Recovery after PP; PP: a Guide for Partners; and Planning Pregnancy  after PP – are now available in Arabic, Bengali, Polish, Slovak and Urdu on our website

We’d like to thank Bradford District Care NHS Foundation Trust for funding the translation work.

APP is continually seeking ways to translate our guides into multiple languages to ensure the information in them is accessible to everyone who needs it. If you would like to help us, please get in touch

We are recruiting

APP is recruiting casual Peer Support Worker(s) to join our innovative collaborative project with Lancashire and South Cumbria NHS Foundation Trust (LSCFT).  

We’re looking for people with lived experience of postpartum psychosis to help support women, one-to-one and through small group activities, at the MBU. Peer Support Workers also spend time talking to partners and families, sharing information, giving hope and signposting to APP’s online support, community forum, and information. Part of the role will be spent helping to run monthly café groups in the region. You don’t need to have experience of peer supporting. Training will be provided.

Full details of how to apply for the role are on our website. The application deadline is midnight on 26th November 2023.

Thank you, volunteers

It’s International Volunteer Day on Tuesday 5th December and we would like to say an enormous thank you to everyone who volunteers for APP. 

Our volunteers make a huge contribution to our work and we couldn’t do what we do without them. 

Peer Support volunteers connect with women and families throughout the UK via our forum; social media; one to one email, video call and telephone support; our NHS partnership projects and regional café groups.

Media volunteers help to raise awareness of postpartum psychosis, our charity and our campaigns by telling their stories in the press, on social media websites, television and radio.

Regional Reps connect with health professional teams locally, disseminating information, support patient involvement in developing NHS services and giving lived experience talks.

Fundraising volunteers plan events and come up with fundraising ideas to support our work. 

If you would like to learn more about volunteering for APP you can find out how to get involved here.

Fundraising

Thank you to everyone who donated as part of our Big Give campaign last month. We were delighted to reach our target of £5000 in just one week! This will go towards our work supporting women and families from diverse communities. Look out for more ‘double your donation’ opportunities in 2024.

Thank you, Laura! A massive thank you to Laura Walton from Darlington, who ran 50 miles during October, raising over £700 for APP! Laura also generously shared her own experiences of postpartum psychosis with us to help raise awareness. You can read more about her story here. Laura completed her amazing challenge with a fabulous purple party for family and friends! Thank you, Laura!

Time for a festive Big Bake?

Inspired by the amazing looking cakes at Laura’s party? Why not get your friends, family, or colleagues together this winter for a festive afternoon tea, a mince pie bake off or a Christmas Cake decorating competition? Get your FREE festive Big Bake pack (including the APP team's favourite recipes!) by emailing fundraising@app-network.org 
We can't wait to hear about what you have planned! www.app-network.org/get-involved-with-app/fundraise-for-us/the-big-bake/ 

Festive cards

If you're looking for Christmas or Hanukkah cards... Buy your cards this year from www.bit.ly/APPcards and APP will receive a donation with every purchase, plus each card helps raise awareness of PP. There are hundreds of designs to choose from, including these images exclusively designed for APP by our supporter Gillian Seale. You can add photos, personalised messages and even games. Choose individual cards, packs of cards or e-cards - and send them directly to the recipient or to yourself. Thank you!

Christmas shopping

Don’t forget to sign up to use easyfundraising when you do your Christmas online shopping this year. Over 7,500 brands including eBay, John Lewis & Partners, Argos and M&S will donate to APP for FREE when you use easyfundraising to shop with them. So you can raise donations for us when you buy anything from decorations and festive food shopping to gifts like toys, jewellery, tech, experiences and more! These donations really help us. It only takes a minute to sign up: www.easyfundraising.org.uk/causes/actiononpp 

Looking for a new challenge in 2024?

We have access to hundreds of running events from fun family friendly 5ks to full marathons here in the UK and even overseas! We already have people signed up for the London Landmarks, Brighton Marathon, Paris Half and of course the APP team taking part in the Manchester Colour Rush event… and we’d love for you to join our running team! Find out more here: www.app-network.org/get-involved-with-app/take-on-a-challenge-to-fundraise-for-app 

Dates for your diary

APP London face to face café group meet up, Saturday 18th November: APP regional café groups webpage

APP Yorkshire face to face café group meet up in Leeds, Saturday 18th November: APP regional café groups webpage

APP Scotland virtual café group meet up, Tuesday 21st November: APP regional café groups webpage

APP Black Country face to face café group meet up in Walsall, Tuesday 28th November: APP regional café groups webpage

APP Sussex and Hampshire virtual café group meet up, Thursday 30th November: APP regional café groups webpage

APP Muslim women’s virtual café group meet up, Monday 4th December: APP regional café groups webpage

International Volunteer Day, Tuesday 5th December

APP UK-wide virtual café group meet up, Thursday 7th December: APP regional café groups webpage

APP Manchester face to face café group meet up, Friday 8th December: APP regional café groups webpage

APP Book Club virtual meeting, Wednesday 13th March 2024. Discussing Matrescence: On the Metamorphosis of Pregnancy, Childbirth and Motherhood by Lucy Jones. Book your free place here

Northern Ireland Mother and Baby Unit news welcome, but we need funding, a timeline and interim measures to save lives

News today that Belfast Trust is the preferred site for Northern Ireland’s first Mother and Baby Unit (MBU) is welcome, but we need ring-fenced funding, a firm timeline, and interim measures to save lives and prevent life-long trauma, national charity Action on Postpartum Psychosis (APP) said.

Northern Ireland is the only part of the UK without an MBU, a specialist inpatient mental health treatment centre where mothers can be admitted with their babies for care and treatment. Instead, mums are admitted to acute psychiatric wards for non-specialist treatment, separating them from their babies.

APP estimates that around 100 women a year will require hospital admission for severe mental illness in the year after birth, including about 30 with postpartum psychosis, a severe and life-threatening mental illness that can develop suddenly. Suicide is the leading cause of maternal death in Northern Ireland.

Dr Jess Heron, Chief Executive of Action on Postpartum Psychosis said:

“It’s been 15 years since Michelle O’Neil and the Stormont Health Committee agreed that Northern Ireland needs a Mother and Baby Unit. We are delighted that we are today seeing real plans for this to progress. However, with no Assembly sitting, we still have no guarantee of funding and there is no timeline.

“It’s incredibly good news that Belfast Trust has been chosen as the preferred site for an MBU - Belfast has well-developed perinatal mental health services, as well as excellent transport links. So we’re pleased their next step is to put together a business plan, but it still, in reality, could be many years until a facility opens. Years when women continue to be separated from their babies for treatment by non-specialists; where they don’t receive appropriate physical care in the weeks after giving birth; where they miss out on vital bonding with the baby; and where families struggle to provide care for babies. Years in which women continue to be traumatised or die by suicide because they aren’t getting the care and treatment they need.

“We’re cautious about calling for interim measures, as there is always a risk that what should be short-term solutions become long-term, or even permanent. But there needs to be a plan while we wait; we know there are women dying, and being needlessly traumatised, in non-specialist units.

“There are places such as Exeter where interim units have been just that – not ideal, but a safe and appropriate space where mums can be with their babies while they recover from severe postpartum mental illness while a permanent unit is built.

“We have cross-party agreement that an MBU is essential, but with no Stormont executive, there is little MLAs can do – we need dedicated funding and we need firm deadlines so that this facility in Belfast can be built and opened as soon as possible.”

NI women who have experienced postpartum psychosis and admission in general inpatient units have also welcomed the news, but say something has to be done immediately to stop mums being separated from their babies when they require admission.

Tara Maguire was admitted to the Bluestone acute psychiatric ward at Craigavon Area Hospital in 2021 when she developed postpartum psychosis after the birth of her daughter Maisie. Tara said:

‘‘For me, the hospital was awful. It was like a prison ward. There were bars on the windows and no bathroom doors, just shower curtains. I remember not being able to sleep, they wouldn’t let me have my phone to look at photos of Maisie, and there was no privacy. I didn’t know where I was so was very quick to try to express milk wherever I felt the need, including in public areas. It was all they had to offer me because being at home was too dangerous and there was no Mother and Baby Unit.

“I have to live with this for the rest of my life. If it was handled correctly, I could have gone to a Mother and Baby Unit. I’ve had quite a lot of therapy about it. I am a success story, but I have a lot of demons and a lot of trauma that could have been avoided.”

Action on Postpartum Psychosis has been campaigning with other charities and organisations for an MBU in Northern Ireland. In October 2022 we worked with the Maternal Advocacy Project (Mas) to present an open letter to then Health Minister Robin Swann, signed by 40 mental health and parenting organisations, calling for an MBU, as well as a public petition with almost 7,000 signatures.

Clare Anderson, Mas Project Coordinator said:

“This announcement is a positive development, but we need to know it’s going ahead. From speaking to women, we know of the damaging impact of separation of mum and baby in the perinatal period.

“We would be keen to hear more about the timescales and what is going to be put in place in the meantime for mums and babies as it is going to take a long- time for the completion of an MBU.”


For more information or to speak to a an APP representative, contact Liz Morrison on 07711 558 296, liz.morrison@me.com

Anyone affected by postpartum psychosis, now or many years ago, can access support from APP, including an NI Peer Support Group for mothers who have experienced it at any time. Email app@app-network.org for more information. For more information on postpartum psychosis and support available go to www.app-network.org

Background

Northern Ireland is the only part of the United Kingdom that doesn’t have a Mother and Baby Unit (MBU), which provides specialist inpatient care for mums experiencing severe postnatal illness and their babies. Instead, mothers are admitted to general acute psychiatric wards for non-specialist treatment, separating them from babies.

An MBU provides specialist care for both mum and baby. Mental health teams with specialist training are able to provide the best care, for example: prescribing drugs that are suitable for use in the perinatal period; supporting the mother-infant relationship and the development of parenting skills; providing adequate postpartum physical care and appropriate facilities (such as nappy changing, milk fridges, play areas, safe places for older siblings to visit).

One in 5 women will experience mental health problems during pregnancy or after birth. Around 1000 women each year in Northern Ireland will develop a severe postnatal illness. This can include postpartum psychosis, severe depression and anxiety, and obsessive compulsive disorder. Between 84 and 122 will need admission to hospital. Suicide is the leading cause of maternal death, but with the right care is almost always preventable.

Postpartum mental health problems, in particular postpartum psychosis, can come on and escalate very quickly. This is not rare. The charity, Action on Postpartum Psychosis, who have recently set up a peer support group for women in NI who have experienced PP, estimates that 35 women in NI will develop the illness each year. While women with bipolar disorder are more likely to develop postpartum psychosis, 50% of cases are ‘out of the blue’, to women who have experienced no previous mental health problems.

The risk was highlighted at the 2022 inquest into the tragic death of Orlaith Quinn, who took her own life on a maternity ward while experiencing postpartum psychosis. The Coroner called for an MBU in NI.

According to the Confidential ENquiries into Maternal Deaths, suicide was the leading cause of maternal death in the first year after birth in the UK.

Acknowledgement

APP’s NI MBU campaign is supported by a grant from Rosa’s Voices from the Frontline fund.